Hi...so sorry you are feeling bad. I don't go to work every day and I couldn't imagine having to be prompt, reliable and alert all day long. I had a e-bay business for ten years that I abandoned because I couldn't lug all the boxes to the post office. My basement is full of stuff I intended to sell and I keep looking at it and wondering if I will ever be able to list, pack, ship...again. I really enjoyed it and I could do it at my leisure but you know fibro flares...they just hit and you are down.
I just had a new grand child and they visited in November...you might be surprised at how the sheer joy of it releases those endorphines and you will actually feel better. I too wondered if I could pick her up...I over did it, of course, because they live so far away and I kept telling myself I should 'seize the moment' because I didn't know when I would see her again. You will just have to be careful and recognize your limits.
Many husbands don't 'get' fibro. I think they have been brainwashed by the same doctor's that some of us have had the misfortune to treat us for this condition. "It's just pain, take these pills and call me in three months." I am fortunate that mine DOES get it. I am lucky because he plays tennis with my new Rhuemy who does happen to believe in it so he has been informed!
I have a friend that just went on disability for fibro...have you tried that?
Hope you feel better.
Hope, I'm so sorry to hear your feeling so bad. I work 5 days a week, but just 7 hours a day. I don't know how much longer I can hold out neither. I deal with a very active autistic 6 year old that has a behavior problem too.
Some days when I come home I'm so tired I can't hardly walk up the stairs in the back of my house.
My rheumy has really helped me though. She has put me on Lyrica, Cymbalta and Flexeril. When she ask me if I was depressed I told her no, but she put me on Cymbalta and I feel so much better. I suffer from exhaustion more than pain so I'm just drained when I get home.
You listed that you suffer from depression so perhaps you could ask your rheumy about Cymbalta. It has really helped me.
I hope you get to feeling better. Just keep in touch because it helps so much to talk to people that feel just like you.