what kind of doctor?

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WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/1/2009 3:46 PM (GMT -7)   
I was wondering ...if you could see only one doctor that you think would help you the most,what kind would it be?I need to narrow it down due to insurance problems.So a rheumy or pain managment or who?any suggestions?......thanks so much

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 1/1/2009 5:01 PM (GMT -7)   
Orchid this is a GREAT question.  Honestly, now that I know how bad my pain gets, I would rather see a pain specialist.  My rheumy is totally useless.  She's great with my Lupus, but when it comes to Fibro, she has nothing to offer me.
 
I vote for the pain specialist!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Sue2z
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Date Joined Jul 2008
Total Posts : 368
   Posted 1/1/2009 10:23 PM (GMT -7)   
I went to a rheumy who said he could do nothing for me and to go excersize. I now see a pain spec who has put me on meds that help, a patch and treats me also for arthritis.   sue2z  ps,  it took two pain specs though.

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 1/1/2009 11:06 PM (GMT -7)   
I think it depends more on the doctor him/herself than on their specialty. Some have great rheumys, some have not so great rheumys. Some pain specialists will help you, others can't be bothered with fibro patients. Some docs only prescribe lifestyle changes (diet, exercise) while others will prescribe pain meds.

The physician's assistant in my PCP's practice is great. He helps me with any problems, orders tests, will discuss and consider any request, and really listens to me. He helps me with my endometriosis pain, my gyno is useless.

Ask around for referrals. If you have an in person fibro support group nearby, ask them for recommendations. Just because someone claims to be an expert doesn't mean they will help you in the manner you expect or need.

It's a tough choice, good luck.

jewelrylady
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Date Joined Jun 2008
Total Posts : 717
   Posted 1/2/2009 12:51 AM (GMT -7)   
WyldOrchid, I think it should be whichever one you have the best connection with.  The one you trust the most to help you & not just see you as another patient.  My Dr is a GP but she will always sit down with me at the start of the appointment to chat & see what has helped what hasn't & what I want & feel like I need.  If I say chocolate she would say "How much?"  I trust her more then the internist or the rheumy I went to.  So, I hope they are both just the best & hard to choose between, then it would be a win situation whichever one you pick.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg

Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 1/2/2009 4:54 AM (GMT -7)   
i go to my PCP for help with Fibro. I also see a pdoc (psychiatrist) but he scoffs at my "pervasive pain disorder."and would like me to not use pain meds at all. I have told him I will try to use them only when necessary, and he acquiesces. He has given me valium for my sleep problem which seems to be helping the fibro, a lot. As it is also a muscle relaxer, it has helped enormously in getting some knots in my neck untied.
Good luck, I recommend you find out ahead of time, what his protocol with Fibromyalgia, is. I saw one new doc whom I left in tears (I was in tears, not him), because he really put me down as a druggie and said he would treat with cymbalta, regardless that it's contraindicated with BiPolar (can cause rapid cycling.)
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/2/2009 12:59 PM (GMT -7)   
tyno3....I so understand the left in tears part,matter of fact,it happened again just 2 days ago.Currently,the only thing i have for pain is Goody powders,a combo of tylenol and asprin.Most docs that i tell that i'm taking 5 to 6 a day scream i'm going to destroy my liver,yet they will not even consider something stronger.I've had the Lyrica,amitriptalyne,neurotin,flexiril,etc with either no effect or bad side effects.On good days,i muddle through,on bad days i wonder how much more i can take without walking out my door and stepping in front of a truck.

Southernlady
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Date Joined Jun 2008
Total Posts : 844
   Posted 1/2/2009 1:32 PM (GMT -7)   
I don't know what I would have done without my rheumy.  She has been wonderful.  I just see her every 6 months but she has already helped me so much.
 
Seems like in the last year or two I've heard more people with fibro than ever and it doesn't hurt to check around and see who they are using locally.
 
My rheumy has helped me with pain, sleep and energy so I would say she would me my number one choice if I just had one dr.
 
God Bless!
Shannon
 
 
Of all the things that I have lost, I miss my mind the most!!!!


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 1/2/2009 2:10 PM (GMT -7)   
I go to a MD that seems to be have allot of pain issues and is quite stressed himself.

Since I found him, I don't even go to the shrink anymore because this guy actualy listens to me on what makes me the most functional. He has been prescribing Baclofen for muscle relaxers at maximum dosage for over a year and a half, Klonopin at 4 mgs a day because I am so resistent to it after being on it for 7 years it takes that much to even effect me. On pain killers I take Percocet, and he knows I do and what dosages. He says he knows I am not drug addict because I never increase the dose, I am always trying to wean off of it. He doesn't prescribe the Percocet himself, he can't afford to, since the DEA is treating Doctors that care enough to prescribe a pain killer that is strong enough like they are columbian drug lords or something. He has offered to prescribe Tramadol for me, but says it will be ineffective unless I can go through the 4 or 5 days of misery to be clear of the Percocet. Basicaly, he says on opiates and opiods, and Tramadol is a Opiate, but not scheduled as one, that if your going to take a Opiate, you may as well take the one that works best for you and doesn't give you that mental feel good. Percocet definitly does not give me a mental feel good. I hate the stuff. Vicodin does give me that everything is alright with the world feeling, and I stay clear of it just for that reason.

But, your question was what kind of Doctor. I have found Shrinks to be useless for me. I have had to use them in the past to be prescribed Klonopin since most regular Doctors won't on a long term basis. I let the Shrinks write their wish list of anti-depressents and I make sure I pick them all up from the Pharmacy so they can see their scripts are being filled, and then take what works. I have enough Lexipro in my dresser to last for two years.

So I would say you will have to hunt for the Doctor that helps. Probably pain management Doctors since they are already willing to take the risk to their license just to be doing it. Unless you happen to get lucky and find a GP or Rheumatologist that actualy cares.

Oh, and Tyno. Flexeril is a upper based muscle relaxer. Really good for increasing anxiety for some people. I suggest you give Baclofen a try if the Valium helped allot. Baclofen works on sensitizing Gaba receptors, sort of like Valium, but its hitting different receptors then Benzodiazepenes. I asked my last scoffing Shrink if it was such a good idea to be taking two drugs, the Baclofen and Klonopin that are both sensitizing GABA receptors, and of course he scoffed. He said it was two totaly different things, so either he really didn't know how Baclofen works, or he did. Baclofen works allot better for me then Flexeril or Soma. I would have never been able to hold my job without it.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.

Post Edited (Grailhunter) : 1/2/2009 2:47:45 PM (GMT-7)


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 1/2/2009 6:45 PM (GMT -7)   
My GP is wonderful, and the rheumatologist she referred me to was great as well. She was the one (rheumy) who diagnosed the fibromyalgia. She was really young, which might make a difference. She seemed quite nonplussed to diagnose me with fibro, and to explain it to me and talk about it. I've had none of the troubles others have described with doctors, which makes me think that it might pay to find a new one if you don't get treated well. Of course, I'm in Canada where health care is free, so perhaps in the USA this is not possible.
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released)


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/2/2009 7:32 PM (GMT -7)   
Oh Canada!My eyes tear up at the thought of free health care...*sigh*....

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/2/2009 7:40 PM (GMT -7)   
Well, it's almost free!  $40/month is what we pay.  It's a blessing we don't take for granted. I can see the mass exodus of American Fibromytes crossing the border as I type this..... smilewinkgrin
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums

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