I Gave Blood...

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TeNNiSd0C09
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Date Joined Jul 2007
Total Posts : 1303
   Posted 1/1/2009 6:52 PM (GMT -7)   
(sorry this is long, but it contains alot of different info)

and when I was giving blood yesterday at the hospital(I volunteer there so decided to give as I was leaving!)..I developed a headache while giving and didnt think it was anything so I didnt say anything...

Needless to say, I still have that headache. And Today I woke up hurting, ALL OVER. Like the flu, without a fever. I have been under heavy covers all day on the couch... When I stand it hurts worse, I want to just lay there and no move at all... which is what I have been doing. I feel to weak to move. I've read reactions like this are normal... This wasnt my first time either, I've never had any symptoms or ANYTHING after giving... wonder what was different this time...

But, anyways, I was wondering, what do they think about Fibromites giving blood? Just curious..anyone read anything on giving blood?

Oh, and I went to the doctor early yesterday morning(yes, it was a LONG day) and I got tested for Lyme..just the usual test and if it comes back negative then I have to get the test done by iGenex and pay $200 for them to run it.. my dad is persistent because a family friend/my childhood doc was tested multiple times and then the one run by iGenex came back positive...

So, now I feel Im in for alot of testing.... I thought it would stop when I was diagnosed with Fibro. I dx myself and Im confident in what I've learned...but now I have people going in both ways and everyone disagreeing that Lyme exists or that I could possibly have Fibro!

Im going to join the Y so that I can go there and exercise and they have a pool which is totally perfect, I love to swim and its really good for us. I want to focus on exercising and losing all the weigh I've gained from meds. I've gained 20-30 lbs from my meds alone. I HATE it, but they help me, what is a person to do! And my doc gave me the names of some good counselors so hopefully I can look into that. If I go, I plan on spilling my guts! lol

Sorry so long, had alot of stuff I wanted to say...my neck is KILLING me right now and I cant see straight, things are slightly blurry so, I probably wont be on as much til Im feeling better.

Thanks -Christi =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 1/1/2009 7:18 PM (GMT -7)   
Why would you
 
Dagger, Rule #3 says,
 
3. No posts that attack, insult, "flame", defame, or abuse members or non-members.   Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member.  Decisions about health and well-being are highly personal, individual choices.  "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.
 
 

Post Edited By Moderator (Sherrine) : 1/2/2009 1:41:47 PM (GMT-7)


TeNNiSd0C09
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Date Joined Jul 2007
Total Posts : 1303
   Posted 1/1/2009 8:58 PM (GMT -7)   
wow, im sure that i dont. my dad just doesn't want to believe my Fibro diagnosis. I researched for years about lyme and fibro...i thought when i first started reading that I had Lyme, but the more I learned the more I was sure that I didnt. I know alot of people who do... my parents just refuse that I could have fibro because there isnt a cure and theres nothing they can do. Im taking medicine for my fibro, and Im doing alot better with it. If I had lyme it shouldnt be helping, I should be getting worse.

I understand what you are talking about. And what I just said means nothing since theres always a chance. I've been tested before also, and no I didnt trust the results...but....I think I trust my judgment. I've learned alot and I've met and talked to ALOT of people that have both...

Im just going to stop. I didnt mean to cause any sort of uproar. Im sorry I did it....and Im sorry you made it sound like I were some killer or something.... Im sorry I took that chance to help someone. I didnt expect that kind of reaction. All I can say is, "Im sorry".
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/1/2009 9:03 PM (GMT -7)   
Also, I wanted to add, Lyme here is not very common at all. There have been reported cases of course, and I've been tested mulitple time by just about all of my 12 doctors. Its been 5 years for me that I've been going thru all this. And I have been dx with Fibro twice by specialists. I dont trust doctors, but I trust myself and I have done alot of studying. I'd say that if I ever have a positive Lyme test that I have be TOTALLY shocked. I've been to doctors who know about Lyme and they have said that they didnt think I have it based on symptoms and everything like that...

I'd say the chance is VERY slim. And I understand that that is not reassuring to hear there is even a chance. But, I have just as much a chance of having Lyme as anyone. Im sorry... Im not feeling at all good right now so Im going to stop because I have a tendency to get defensive and I apologize for that. And I understand your concern. I will take that into consideration.
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 1/1/2009 10:07 PM (GMT -7)   
Christi, you hit a point close to home for me and I am sure for many others- what we have to rely on, one thing that holds firm for us, is our instincts. Its our instincts and our experiences that give us the wisdom to know when we can contribute any type of our treasures to the community, including blood. We don't fault you for considering giving blood when it is so needed right now. In fact, I have had friends recently who needed transfusions, so thank you for your generosity. In addition, health personnel at blood donation sites are very familiar with our kind of health challenge and related issues and know which flags to watch for. I hope you get some rest and feel better tomorrow.
 "It's never too late to be who you might have been"  George Eliot
 
Dx FM- 2003
Rx Meds- Ultram, Buspar, Flexeril, Toprol, Cymbalta,
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/1/2009 10:24 PM (GMT -7)   
Thanks, I needed that.

I have learned to trust myself more. I look toward medicine and life to guide me through things. Im O- so my blood is very much needed. When I was younger, my little brother was 2 and had a brain tumor... he also has O- and we had to search for people to donate blood for him for his surgery. I was too young to give, but I know the importance of giving...

And on my 17th birthday I went and gave blood. I was looking forward to donating my blood more than anything else. I enjoy helping people and I dont want to hurt anyone... Im confident im Lyme negative. But, now you have me questioning myself and doubting myself.... Im getting tested because my dad requested it...so I suppose I will have to wait to find out for sure... I sure hope Im right.....
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/2/2009 5:15 AM (GMT -7)   
Hey guys. I used to give blood, fourteen times, when I was younger, but had to stop when I started to develop all my health conditions. Just the high blood pressure meds alone put the blood donation contributions in the trash. I guess, from what the folks there said was there would be complications due to the meds. I'm on a dozen meds now, so I can't contribute. If I wasn't so tied down (ball and chain) as the sole sib caring for Alzheimers Dad, I don't have an opportunity to do much else.Otherwise I would volunteer or something. Please be kind to one another. We have such a plateful just dealing with our own Fibro symptoms, and other health concerns, we need to be supportive on this forum. There are many ways to make a point, gently is best.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 1/2/2009 6:53 AM (GMT -7)   

Hey Christi...I have O negative blood too.  When my brother was 16 (O neg too) he got wry's syndrome and almost hemmorhaged to death from the nose and throat but I couldn't give him blood because I was 8 months pregnant.  They couldn't stop the bleeding and the doc came down and told us he was probably going to die and did we want to call a priest for the last rites.  As a last resort, they went on television and ran a public sevice announcement asking anyone with O neg to please come and donate...which they did and it saved his life.

My son works in one of the biggest blood testing centers in the country and none of your blood will pass on to anyone else if it has Lyme, Hep C, or any other contaminents in it.  Don't worry, sweetie.  You did a good thing by donating...and I am sorry you feel so badly ever since.  I personally am proud of you...our blood type is precious and there is never enough!

hugs,

donna

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 1/2/2009 8:14 AM (GMT -7)   

In Canada, Ontario anyway, you cant donate blood if you are on daily meds. Not to mention illnesses.  I used to donate too, but had to stop because of my meds, and R/A at the time.  I really hope you dont have Lyme Christi, you are so young to have what you already have.

Diane

 


Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/2/2009 9:02 AM (GMT -7)   
christi,

definitely listen to what donna said! i am sure that all blood donated is tested for everything under the sun before it's given to someone else. considering the issue with aids-tainted blood in the 80's, i'm sure that the health care community is super thorough with blood now, so please don't worry that you might have infected someone else with something! you did a GOOD thing and should be proud of that!

that said, i also really hope you do NOT have lyme!! please let us know how the igenex test goes.

{{{{hugs}}}}
~danielle

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/2/2009 11:27 AM (GMT -7)   
There is no reliable test for Lyme Disease, therefore they can not accurately screen blood for it.

My cousin almost died from a Lyme infection we believe she received in a blood transfusion. Yes, she needed the blood but probably wouldn't have died without it. Now she is disabled with chronic Lyme. We can't prove that's how she got infected but it's the most likely route.

I believe every healthy person should donate blood. I also have very rare blood and donated regularly until I got sick. Then I stopped. Now, I encourage the healthy people I know to donate. My son plans to donate on his 17th birthday.

There are some theories that fibro is caused by one or more viruses. We can not test for them right now so we can't prove or disprove this theory. That would mean we can't screen blood for it either. AIDs tainted blood got through because they couldn't screen for it at the time. It's still not 100% accurate, that's why they ask you about high risk activities. There are many rare disease in blood that aren't screened for because it isn't cost effective.

Yes, I could have made my point more politely, but I am still in complete shock that she did this. And so many are supporting her.

Post Edited By Moderator (Sherrine) : 1/2/2009 1:52:50 PM (GMT-7)


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/2/2009 12:38 PM (GMT -7)   
okay, I understand your concern Dagger, I do. And Im sorry about your cousin.

People can have lyme and have no symptoms at all, and if they gave blood then someone could get it. If they test blood before giving it to someone and its negative and they give it to someone, isnt that the same thing as me getting tested and it being negative. No one can be 100% reassured that they dont have it. Some people are just carriers.

Im trying to be impolite! We are here for each other. I appreciate what you have said, regardless of whether I agree or not. Please dont be agree with me or any for supporting me. I was only trying to help and they are trying to help me. Lets try to be more quiet about this, Im not here to start an argument.

My doctors have told me I dont have it, thats not reassuring to me. I've been tested many times, and thats not reassuring at all either. Nothing is. My dad is way behind, he doesnt know anything about me or my symptoms so he cant possibly know if theres a chance that I have it. He's just persisting this because he refuses to believe in the Fibro. Like my mom, who believes my life cant possibly be stressful.

My post was about more than just that....so lets attempt to stick to the other stuff please.
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/2/2009 1:40 PM (GMT -7)   

Dagger...there is no way to test for Lyme in donated blood but they do test for 'red flags' that would eliminate the blood from being used.  High elevated viral loads, infections, and other markers are used to determine whether the blood is usable.  It seems to me that someone with active Lyme disease would have some kind of 'red flag' in their blood as neurological symptoms are not the only symptoms of Lyme.  Yes, things slip through in the blood testing.  My brother died of Hep C last year from donated blood he got in 1992.

Her myriad of doctors say she doesn't have it.  She gave blood on that diagnosis....what was she supposed to say?  "I'm going in for my third Lyme test even though I have been told I don't have it because my father doesn't believe in Fibro?"

Hang in there Christi and take care of your FIBRO issues.

donna

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/2/2009 2:20 PM (GMT -7)   
Dagger, I'm sorry about your cousin  But you state that you "believe" that your cousin got the infection from the blood transfusion.  I understand that they think that Lyme can lie dormant in the body and then come out years later.  Here is a link to some of that information.
 
 
But, no matter what, I'm sorry you lost your cousin from Lyme.
 
Christi has been checked and rechecked and rechecked.  All tests that are available have said "no Lyme".  IGenex is the most accurate of testing but it isn't foolproof either.  (Very few people have blood work sent to iGenex.  I just heard about that lab 2 years ago and I've had fibro for nearly 22 years!)  Her diagnosis is fibromyalgia...to the best ability of her doctors...including a rheumatologist.  I'm sure she let them know before donating that she has been diagnosed with fibro and what medications she takes.  If they thought there was a problem, they would not have taken her blood.  Then, the blood that they took will be thoroughly screened.  
 
We do understand your concerns but not your harshness.  Christi is a responsible person and would never do anything to hurt anyone.  I know I wouldn't be afraid to receive a transfusion of her blood because she has been tested for everything under the sun!  Her blood is much safer than the "man on the street" that comes in and hasn't had a physical in thirty years. 
 
Kristi, I think you did a wonderful thing.  Blood is needed and you have been checked every which way but Sunday.  There aren't too many teens that even think about doing something like that.  I know you are careful and I'm proud of you.
 
Sherrine

Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 1/2/2009 2:22 PM (GMT -7)   
Christi, whatever is making you feel bad I hope it gets better soon sweetie so you can enjoy the last of your vaction.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/2/2009 3:41 PM (GMT -7)   
Wow, thanks for your kind words, its really nice to know you guys care for me. I didnt realize it... I did, but still..

Im hanging in there to the best of my ability! I been taking my puppy out alot today and I tried doing some stretches... I know she enjoys the walks! Im still feeling bad, but Im ignoring it lol I have a stubborn thing about medicine so my moms been trying to get me to take stuff, but I really prefer just ride it out and leave it to my body to fight whatever it is off!

Thanks you guys, I really needed some kind words from people who care! I feel a little better! Thanks again
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/2/2009 6:53 PM (GMT -7)   
I suppose Dagger wins... I called.

I just took my temp and it was 100.9 so...i guess that means im sick. Im still hurting all over, and have a HUGE headache behind my eyes(its been over 50 hrs!)...but Im not really one to slow down.. I rarely take meds, im stubborn..i prefer just riding things out and letting my body fight it off. I think if I had Lyme, I wouldnt be able to do that. But, I guess the fever proves it... I hate being sick, I thought it would just go away after a day or so...

Well, I suppose I will continue to live under the covers on the couch! Take Care all, and thanks for supporting me...I do my best to do the responsible things in life...
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/3/2009 6:33 AM (GMT -7)   
When I had a blood test last week it took them about a half an hour just to draw 2 veils. (which they couldn't complete) It took 3 different pokes and when they finally found a vein that worked it went at a rate of a drop about every 2 minutes.
Does anyone else have that problem???

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/3/2009 6:43 AM (GMT -7)   

Christi, you might just have that nasty flu that is going around.  I had it for more than a month.  Hubby had it that long with a screaming headache and a fever for about three weeks and he is still complaining about the body aches.  He NEVER misses work and stayed in bed for three days straight.  It's just a thought...I know that new flu lingers and is unrelenting...takes forever to go away!

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/3/2009 7:50 AM (GMT -7)   
Also, some people with fibromyalgia have a higher than normal temperature.  I know I do.  I've had a 100 degree temperature at a doctor's visit and was healthy.  When I told the nurse I had fibro she knew I was fine.  This doesn't mean you have Lyme so don't start worrying about that!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/3/2009 9:00 AM (GMT -7)   
I get a little temp when I'm in a flare too but not that high. Whatever your body is fighting off I hope your body wins soon. smilewinkgrin
 
Hi Pattipanda and welcome to the family. No I get blood drawn quite often and they never have a problem. Now getting an IV in me is a different story.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 1/3/2009 11:44 AM (GMT -7)   
I've had the same headache since Wednesday. Im hurting all over. but everything seems to go up and down. My normal temp is like 97.6-ish... im really cold natured also so... I felt horrible when I woke up, but I feel better now actually...

Im keeping my baby boy tonight tho so im pretty happy! He just came over and he was so CUTE! and sleepy! But, he's coming back to spend the night!

I am actually worrying now. My mom told me last night that she actually wished this lyme test is positive so they can treat me. I was right, they dont want me to have Fibro because I'd have to live with it my whole life. She wants me to have Lyme so they can treat it. But, I know ALOT about it and its not that easy. I've had this stuff for 5 years so if I have Lyme then it wont be as simple as just taking and antibiotic for a week. I had to explain that to her....

...so I dont know what to think anymore. Im stuck questioning myself. If this test is negative, then Im in for MORE testing and lots of money my parents will have to cough up... So, I feel guilty because they dont make much of anything and we cant afford to pay for it...but they'll have too....

So, Im kind of stuck in the mud!...or feel like I am.....

Im feeling better thanks!
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

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