New Here- Formal Introduction!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 1/3/2009 1:41 PM (GMT -6)   
Hi everyone,
My name is Kathy and I was diagnosed with Fibro about 2 years ago. Like many, I ran the gamut of tests, all negative for any of the mimickers of this disorder. I feel pretty comfortable in forums. Before knowing what I had, I was told it looked like MS. So, I joined an MS support group and was pretty active there. I am very glad to see this forum run just like that one was. I look forward to meeting all of you, and offering support where I can, and definitely taking all the support I can!

I am lucky in that my DH is very supportive and has no doubt that something is wrong with me. It is just the rest of my family that are clueless and cannot understand my limitations. I just got the good news that I was approved for SSDI, and hopefully we can get back on track financially. This disorder has many aspects to it. Like so many others out there, it affects more then just our bodies. I think the emotional toll it takes is much more of a concern then many Dr.'s are willing to admit. So, for me I believe in getting a check up from the neck up is equally important in managing Fibromyalgia.

Currently, I am on only Cymbalta. It worked great for the first month, and now it seems I might need an increase in dosage or add something else as well. For the most part I try to stay positive, pamper myself and watch my diet. I don't think I could go any 1 day without stretching though. It really helps me get through the day.

I am glad I have found this community and hope to be here for a long time getting to know all of you!
Best wishes,

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 1/3/2009 1:51 PM (GMT -6)   
Welcom Kathy!! I'm new here too.
Congrat's on the SSDI... I'm afraid that might be the direction I'll be going along, too.
I look forward to getting to know you and all of my new fibro friends.

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 1/3/2009 1:56 PM (GMT -6)   
Hi Patti,
Thanks for the Welcome!
Just a word of advice for you. If you think you might need to apply for SSDI, then do it now. It is a long process, and getting approved is never guaranteed. It took me a year and a half and a bankruptcy later. I tell people to get on it as soon as they think they cannot return to the type of work they were doing before.

Hope you are doing well, I look forward to getting to know you better.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 1/3/2009 2:08 PM (GMT -6)   
Thanks Kathy!!
I'm still trying to get my head wrapped around this whole thing. I applied for disablity in 2000, was denied, got a job -stayed there for about 5 1/2 years, then got the "big" job, but had to leave it after 2 years, because the hours were deadly (50-70 hours a week)... had a meltdown.
Right now I've applied for unemployment (haven't gotten it yet) but I know there aren't too many jobs out there for someone with my problems. I've been out of work for about 7 weeks now and I know my limitations will work against me.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/3/2009 2:18 PM (GMT -6)   
Hi Kathy and welcome. If you didn't read my welcome to you Pattie, welcome.
Fibro does affect our whole lives and bodies. Stress and emotions has a lot to do with the way we feel. Having a supportive husband is a big plus Kathy. Yeah, we all have those family members that will never get it.
Read the fibro 101 thread, second on first page, if you haven't already there is a lot of great info in it. We have lots of tricks to try and make our lives easier. We love our moist heat in any form we can get it and you can make rice bags out of long tube socks and uncooked rice that can be heated in the microwave to cause moist heat, showers, baths or hot tubs. You do have to keep moving and stretching no matter how you feel or you will feel worse.
Ask questions, read and vent when you need to and we will be here for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 1/3/2009 3:36 PM (GMT -6)   
Hi, Kathy, and welcolme!  I see Marlee directed you to the Fibro 101 thread.  There are links to a lot of good info about fibro.  There is a link about stretching exercises, too!  I'm glad you have found out that you need to keep moving or else you will be stiff as a board and in more pain.  I do stretching many times throughout the day.
I'm so glad you found us.  We have a great group of people here that have good ideas to help you live a full and enjoyable life with fibro.  And, as a bonus, we really do care about one another!  So welcome to our growing family!  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 1/4/2009 12:48 PM (GMT -6)   

Hi Kathy and Welcome-

This is a good forum to come to for support. :-) Happy to hear you were able to get Soc. Sec., I am in the middle of the process- on the second denial and hiring a lawyer now. I have been out of work since last May. UG! I am a single mom and my family and friends have really stepped up to the plate since this hit me late last winter. So it was nice to read you have a supportive husband. Heck with the people that don't care or take the time to educate themselves about this, I have learned fast who is who in my life.

Nice to meet you!


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/4/2009 5:47 PM (GMT -6)   
Welcome Kathy! :-)
I am so glad you have joined us.
I haven't been a member of this forum for too long and I have found that it IS a great one and it DOES help!!
I hope you will stick around!! Look forward to hearing from you more!
Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 1/5/2009 10:27 AM (GMT -6)   
Thanks Everyone,
Thanks so much for the welcome, I feel right at home now! Although we are all here for a sad reason, I have always felt the need to share my experience with others. I am always amazed at the level of non-supportive spouses. My vows said in sickness and in health! Anyway, thanks so much again. I know I will be active and around this new community. I am in the process of starting a support group in my own communtiy, so I will pass along this website for my members to join. We need all the support we can get.

Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/5/2009 10:40 AM (GMT -6)   
Welcome Kathy,
you definitely will find a great group of supportive people here! I'm on the edge of thinking of applying for SSI. (My first rheumatologist suggested it last year but I've fought the idea, probably to my detriment).
light and love,
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 28, 2016 6:41 PM (GMT -6)
There are a total of 2,713,688 posts in 299,216 threads.
View Active Threads

Who's Online
This forum has 153808 registered members. Please welcome our newest member, MEF.
309 Guest(s), 9 Registered Member(s) are currently online.  Details
bluelyme, Richard in NY, jennydancingfish, Courage/Wisdom/Hope, jack3210111, orpaieha, Oranged, Kristvet86, minnietoty

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer