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Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/3/2009 11:22 PM (GMT -6)   
Not many of you know me and thats okay but there is something I really wanted to say to you all.
I just wanted to thank everyone here for well.. being here! I've been in a lot more pain lately(feet and hands are daily) and my lower back has been added to it(I can only sit for a small amount of time and then I lie down and then that hurts and well you know...), my pericarditis and  costochondritis is still flaring, my heart rhythm is still wacky, blood pressure is all over the place, my doctors seem to be limited in their capabilities as my blood work doesn't add up for them. I've been out of work since last April, drawing unemployment that basically pays for my COBRA. Then the latest came today..I was denied an extension on my unemployment benefits even though I had worked steadily for the company for the last two years. I lost it. I was angry and upset and then angry again and man did the pain flare up! There was nothing I could do about it but I let my emotions get the best of me and I felt out of control and hopeless.
So I came here like I usually do when the pain doesn't let me do anything but web surf and I read and read and read and not just in this forum but others also because well I really don't fit in just one like so many of you. And that is what got me.. there are soo many of me here! And you all of have so graciously told your story and shared your fears, pain, suffering, determination, joy and wit and I no longer feel alone or hopeless. So, thank you! Thank you anxietyridden for sharing your pain in losing your job. It was horrible what happened to you and my heart goes out to you. I guarantee though that you have helped many on here including myself by sharing your story. Thank you vestabula, your daily wit keeps me up on my vitamin "L" (laughter). Thank you Ginny and Okie and Barbara Lee(Lupus board) for being old timers that are willing to give info and insight even when your own plates are so full! Thank you all of you for letting me be in on a little of your lives.
I still hurt. I'm still without a diagnosis. I'm still without a job or unemployment benefits.
But I'm not alone.
Light and love,

Regular Member

Date Joined Oct 2008
Total Posts : 257
   Posted 1/3/2009 11:55 PM (GMT -6)   
Couldn't have said it better myself!

So sorry for your situation, Cynthia.

You are never alone - remember that!

Be nice to yourself, you deserve it.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/4/2009 12:09 PM (GMT -6)   
Cynthia I'm sorry you were denied the extension, can you appeal it??? I read some of your stories on here and it breaks my heart what some of you are going through. Yet, you come on here to give comfort to others. This is such an amazing group of people and I don't think some of you know how amazing you are. I don't go looking at other fibro forums but I would be willing to bet you won't find one like this on line. We are family here, probably closer than some families. smilewinkgrin
I hope you get a dx and can either find work if your able or apply for SSI.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/4/2009 5:17 PM (GMT -6)   
Hi Marlee and Julie,
I appreciate your thoughts and wishes. Marlee, I'm going to go in on Tuesday (I've got an appointment with my cardiologist tomorrow, so that'll wipe me out) to the unemployment office and sit there all day if I have to, to talk to someone. I've thought of SSI but I first really wanted to try and work and secondly, I'm afraid with my diagnosis in limbo that I would most likely be denied. I don't know if that's true or not but if anyone has any info on that I would most appreciate it. My boyfriend and I talked today about our situation (he's also been out of work and looking). We've got two months and then our next best step is to possibly move up north onto my brothers property where there is a yurt (yes you read that right!) available to live in. Life is still an least that's how I'm going to look at it. I love my brother and his wife so that would be good but boy I don't know how I'll handle the cold and then there's the whole thing of finding new doctors...yeesh..okay I've got two months to turn things around , so we'll see!
light and love to my "other" family members,

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/4/2009 6:41 PM (GMT -6)   
I am sorry, Cynthia, that times are tough.
It is nice to meet you, I am Jenna... and I am here if you need me as well as everyone else!!!!!! :-)
You are not alone. And NEVER feel helpless or hopeless. The strength and hope is what will get you by!
"You can't be brave if you've only had wonderful things happen to you..."
Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/4/2009 8:40 PM (GMT -6)   
Hi Jenna,
thanks for your support. I checked out your ferret. cute lil' guy!

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 1/4/2009 9:31 PM (GMT -6)   


So sorry for everything that is going on. Seems like they should have more options out there for people, but they don't. Alot can happen in 2 months, so hopefully things will turn around for the best!

Please keep us updated & holler anytime you need to talk. That's what we are all here for.

Hugs!!!    Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus*Menopause

Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/6/2009 7:18 PM (GMT -6)   
A brief update for you all. When you call unemployment now there is a long message as usual saying lots of people are trying to contact them now and then "goodby!" and the line goes dead. rolleyes   I ended up going into the unemployment office here to try and find someone to actually talk to and find out why I was denied the extension. I brought two sudoku puzzles, a bottle of water and extra pain pills. I was going in for the long haul if I had to cool .Well there's a whole bunch of people still working there but apparently they don't talk to anybody! shocked . I was told to call instead ( uh yeah...) when I explained that I already knew that they hang up she mentioned that I could use their phone system which is supposed to be easier to get through. She said it'd probably take about 1 1/2 hours as you have to keep hanging up and re-dialing to get through. After memorizing the sequence to bypass the bazillion messages "press 1 if you blah blah blah", I was able to wittle it down to 20 minutes where I was greeted by a surly woman who sneeringly told me that I hadn't worked long enough to get anymore. Huh? I asked what date they had and they were off by a freakin' year! smhair .She then sneerinly said that I'd have to appeal to get it changed there was nothing she could do. I really wanted magic hands that could go through the phone lines and throttle her at that point. Instead I said thank you and hung up. So yeah I'm now appealing. On a side note I wrote about my latest doc appt. with my cardiologist. He's putting me on a cardionet monitor. Anyone use one here?
love and light,

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 1/6/2009 7:33 PM (GMT -6) sorry for your nightmare.  The system in all respects puts us through the ringer.  I can't imagine what you must have felt after trying to get your extension.  It took me SIX tries to get a New YorK State drivers license because I didn't have my marriage certificate from my first marriage.  They wanted me to pay $35 to get a certified copy from the county I was married in.  Called there and they couldn't find it.  I needed five sets of ID and they took my library card but wanted my marriage certificate...which I burned up years ago.  I finally brought in a shoe box of stuff, dumped it on the counter and told them to find whatever they wanted to prove who I was, but I could not produce a marriage license from 1967.  Finally, they got sick of me and gave me one.  The lovely woman's final comment was "You moved here from Va Beach which is where three of the 911 terrorists got drivers licenses.  You of all people, should understand why you have to go through this!"

I hope you get your extension...don't let them bully you.  I know it's easier said than done but you deserve it!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Aug 2007
Total Posts : 101
   Posted 1/7/2009 10:37 AM (GMT -6)   
Holey smokes Donna!
Yeah, I just needed to vent.

tink 2
Regular Member

Date Joined Jan 2007
Total Posts : 371
   Posted 1/7/2009 10:49 AM (GMT -6)   
Hey nanda we have all been there. I love the Lupie people to I to have Lupus. I was on another board when I first got sick and alls they did was gossip and was not very much help at all. I found this place just by chance and really helped me out alot. Every one is so kind. I pass the web sight on to others when I can.
this is just a kind place and no one judges you no matter what. They have unconditional love...
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
                   Have a great Lupie Day Denise 

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