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SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/4/2009 9:36 PM (GMT -6)   
does anyone else get weird tongue pain? for me, it's pretty random and comes and goes, but when i get it (like i am tonight) it feels like i burned it on a hot drink and when i go to eat or drink something, it feels like i have a bunch of pop rocks candy in my mouth.

just wondering if anyone else gets this weird symptom, too..

hope you're all having a pain free sunday evening:)

{{{hugs}}}
~danielle

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/4/2009 9:47 PM (GMT -6)   

I get the tongue pain off and on, but mine feels like a have a few sores on my tongue and I cannot find anything or the roof of my mouth feels like I burned it. It is kind of hard to explain. Just another funny symptom to blame on Fibro!

Margie

 

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus*Menopause


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2757
   Posted 1/4/2009 9:53 PM (GMT -6)   

Yeah...I get tongue pain, like my taste buds are sore and sometimes along the sides.  I think we should all 'swish and rinse' with Sherrine's 'medicinal rum'.  She claims it gets ride of the soreness but I haven't tried it yet.

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/4/2009 10:00 PM (GMT -6)   
hmm. i wonder if whiskey would work. it's the only booze we've got in the house..(no, no-i'm not kicking back the jack daniels on a regular basis! my brother in law likes the stuff and we have some leftover from our last 4th of july party..)

thanks for the input, margie and donna! it's always nice to have reassurance that i'm not the only one who feels these weird things.

{{hugs}}
~danielle

dirtyflowergirl
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 1/4/2009 11:51 PM (GMT -6)   
Oh yeah. I have the burning tongue. It cycles on and off. I have red spots that form on my tongue with white rims. It burns quite badly, and I've tried everything I can think of to treat it. Nothing works so far.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/5/2009 6:45 AM (GMT -6)   
well i tried the whiskey last night. it burned terribly for about 5 minutes, then my tongue felt much better. the benefits are sadly short lived, though, because this morning i'm right back to where i was yesterday. maybe rum is longer lasting??

tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/5/2009 11:19 AM (GMT -6)   

This may help I also have Lupus and posted about the pumps on the toung. Here is what i got for more gotolupus and go to 3rd page this was the most helpful.

 

 

 

Hi tink, I'm sorry I was so busy earlier I hope you got some releif by now. If not there are a few things you can do without a perscrption. Go to the pharmacy and get yourself some mylanta or malox. Swish it around in your mouth and spit it out. do that every for hours. it helps with the pain. When you can get to the dr. or call or what evrer you can do on christmas tell them you need some nystatin swish and swollow. it's basically 3 drugs in 1 and one is mylanta and one is an antibiotic not sure on the other probably a pain killer. I keep it around all the time. I have 2 huge bottles here I wish I could help ya. That's the thing with this disease it doesn't have to have a reason to beat ya down. but what the heck christmas is as good a reason as any right? (sarcasm). If you can get into an all night walgreens and as the pharmacist iff you can get somthing to mix with malox that you can just swish around until you can see your dr.

I'm praying you have a nice christmas and the pain eases up.

hugs

carol


Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/5/2009 11:27 AM (GMT -6)   
I think they might have been kidding about the rum SleepyBug but I've never tried it for sore tongue. My tongue gets sore spots too but I think they are from getting very dry at night and my tongue cracks open. I breathe through my mouth and with the terrible dryness I have it causes my tongue to crack. The first time it happened I think it was before being dxd with fibro and I went to the doc thinking I had some infection in my mouth but when he looked at it he could see the cracks. I sleep with a humidifier in the winter but haven't gotten it out yet.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/5/2009 11:49 AM (GMT -6)   
definatley get the weird tounge thing....burning,phantom bumps and such.very strange...

Fibro,Heart Disease,Diabetes other assorted.


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/5/2009 11:55 AM (GMT -6)   
the rum thing was a joke?? you mean i burned my mouth with whiskey for nothing??!!!??
turn
love and hugs
~danielle

this being human is a guest house.
every morning a new arrival-a joy, a depression, a meanness,
some momentary awarenewss comes as an unexpected visitor.
welcome and entertain them all!
even if they're a crowd of sorrows, who violently sweep your house
empty of its furniture,
still, treat each guest honorably
he may be clearing you out
for some new delight.
~rumi


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2757
   Posted 1/6/2009 7:00 AM (GMT -6)   

Hi...Sherrine, one of the moderators, told me that she has always rinsed her mouth with rum when it gets sore and when her kids were small and got canker sores, she had them swish with it.  I hope she wasn't kidding (don't think she was) because I had the hubby buy me some Bacardi as I am very prone to cankers and a sore tongue.  She swears it works!

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Avigayil Neshama
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/22/2009 9:47 AM (GMT -6)   
I've got it right now. It's been going all morning, all day yesterday, the day before, and the night before that. Weird. It is very persistent, and seemingly worse. What is this? I don't see any bumps or pimples etc, which is usually what I see.

Avigayil Neshama
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/22/2009 10:04 AM (GMT -6)   
I tried the rum, and it HURTS!smhair OUCH! cry YIKES! mad Intense pain for about 15-20 seconds. Has only a little numbing quality. The sides still hurt.

Here's the thing:

I was too scared to swish, so I dipped my tongue in the rum. I WAS RIGHT TO BE SCARED! Woooo hoooo!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14637
   Posted 1/22/2009 12:58 PM (GMT -6)   
You bunch of sissies!  devil    I've really used the rum for years.  Yes it stings like crazy for a few seconds and then your mouth kind of goes a little numb.  I usually would have to do this two or three times before the sores went away.  I'd do it like eight hours after the first time.)  It doesn't take care of it with only one time.  Plus, the second time you use the rum, it doesn't sting quite as much because the sores are healing.  I use it and so do my children.  I know it sounds crazy but I'm not joking.  When my children were little I would dip a Q-Tip in the rum and place it on canker sores they got.  It helped them and they even would come to me and ask me to do that to get rid of the sores. 
 
But, a lovely group from this forum, came to my home while I was on vacation and drank all of my medicinal rum so I need to buy some now.  Thanks, guys!  turn
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 1/22/2009 12:02:42 PM (GMT-7)


Steffiel
New Member


Date Joined Jan 2009
Total Posts : 13
   Posted 3/2/2009 12:22 PM (GMT -6)   
I can SO relate to this!! My mouth (especially TONGUE) is driving me crazy. It all started with increased thirst and a slight white coating. I thought it was thrush due to my asthma and allergy meds...and an antibiotic I had just finished. This has been going on for well over a month now, maybe even two? Anyway, I've been to three doctors and a dentist. All of them conclude that it is NOT thrush (though they didn't culture me even when I asked), or diabetes, but rather due to GERD. My GERD is something awful right now, I'll admit. I'm seeing a Rhuemy (sp?) tomorrow. Hopefully she'll have a few tests for me, as I know that GERD doesn't rule out everything else, but I'll try not to go into the office with a disease set in mind. Know what I mean? Doctors are only human and go on what you tell them (or so I've experienced). I have the "magic" mouth wash (3 meds), but find that it is a little too harsh. The dentist told me to lay off of it for a while because it is causing some gum annoyance. Other than that, she said my mouth looks fine. My throat is a little red, but again...she said her gut feeling (no pun intended ;)) is that it is GERD or a GI problem.
 
I can say that plain yogurt helps a little. Also, biotene mouth rinse and tooth paste. I do have an RX for Xanax and find that it does help when I am in a lot of pain. The mind kicks into over gear when the pain increases... The xanax takes the edge off. Traditional pain killers (vicodin)? They do nothing for the tongue pain. Nada.
 
Anyway, I hope you are feeling better! I've had to cut out soda and coffee. Just the mention of rum makes me jealous. I want some.  tongue You always want what you can't have!

Steffiel
New Member


Date Joined Jan 2009
Total Posts : 13
   Posted 3/2/2009 12:25 PM (GMT -6)   
Oh, and ps... They (primary docs) did check my thyroid and vitamin D levels. I don't know those results yet. We'll see... I'm seeing the GI within the next two weeks. Maybe they'll shed some light. smurf

Post Edited (Steffiel) : 3/2/2009 11:28:19 AM (GMT-7)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14637
   Posted 3/2/2009 1:06 PM (GMT -6)   
Stef, you don't drink the rum.  You just swish it around in your mouth and spit it out.  I can't drink alcohol but do this.  Plus, I like the taste of rum!  yeah
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Giovanny Whaley
New Member


Date Joined Nov 2010
Total Posts : 6
   Posted 11/12/2010 5:28 AM (GMT -6)   
Tongue pain...can be many reason for this...Red Spots On Tongue...and many more... for The natural treatment begins with dental hygiene. Try to keep your mouth, especially the tongue, neat and clean. Brush your teeth and clean the tongue with a tongue-cleaner at least twice a day. Rinse your mouth well with water after eating anything. You may use antacids like Maalox and Mylanta, and antihistamines such as benadryl instead of water, if you wish. These things will give you better results. Increase the amount of vitamin B to replenish its deficiency in your body. This will restore the condition of red dots on the tongue back. yeah

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 11/12/2010 1:02 PM (GMT -6)   
Omygosh! Me too! I hope the researchers figure out fibro soon cuz it is so wierd!

BTW: I used to keep a small bottle of rum in our babies' diaper bags to rub on the gums for teething. I swear, it worked. A friend told us about it when the baby was teeny tiny. Some people would raise their eyebrows when they saw the rum, but seemed to understand after we explained what it was for. Sometimes we would tell people that we put it in the baby bottle to help baby sleep! hahaha

I always thought the rum swishing was a joke, too!

Sherrine, thanks for the rum. It was delicious. I thought we cleaned up the house well enough that you couldn't tell we were there. But the bras hanging in the trees probably gave us away, huh?
Sue

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 11/12/2010 1:10 PM (GMT -6)   
I get the same thing in my mouth, just another thing to add to the list. When I get it I try to think what I ate that burned my mouth. Last time I had it the only thing I ate was a bowl of cereal and a sandwich and iced tea for lunch. I like rum but my husband told me a long time ago that it's not the best for my mood. He said that I tend to get alitte ?itchy. lol So now I'll have to tell him I have a reason to try it again.
May the sun shine on you and keep you well.

CrushFibro
Regular Member


Date Joined Nov 2010
Total Posts : 291
   Posted 11/12/2010 8:58 PM (GMT -6)   
From all the posts on here, it sounds like people are experiencing a few different things. For those who are dealing with the burning tongue/scalded type feeling, you may get some more info if you google "burning mouth syndrome" or "burning tongue syndrome". The Mayo Clinic website (www.mayoclinic.com) has some good information.

When mine is at its peak, I usually try a baking soda and water rinse. It dulls the pain for a short time, but sometimes that's enough to help me get to sleep because it usually gets worse in the evenings.

Frankey
Regular Member


Date Joined Nov 2010
Total Posts : 299
   Posted 11/17/2010 9:51 AM (GMT -6)   
I've been experiencing the burning mouth/tongue for a few months now.  I've never had this before.  I was at the Dr. yesterday and again questioned her (for the 3rd time) if she was sure it wasn't a candida overgrowth/thrush.  She assured me it wasn't, grrrr.  This is an insane symptom!  I've had to switch toothpastes (the mint one I was using really made the pain bad) and eating cinammon makes my mouth feel literally on fire!  I have this sensation almost all the time so I'm not sold that this is allergy related.  I go to the allergist in the beginning of December so we'll see her take.  I have the white coating on my tongue and I am just getting to wits end with this.  Sometimes the pain in my mouth is worse than in my body! 
 
 

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 11/17/2010 12:33 PM (GMT -6)   
I also get the white coating, burning and cracked looking tungue.  A mix of maalox and benadryl helps and I also chew acipopholis (sp)
 
I have been checked for yeast overgrowth and Hpylori.
 
about a month ago I got a new grind and brew coffee maker and thought I burned my tongue......nope a flair of the tongue thing
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