My HEAT troubles...........

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Date Joined Dec 2008
Total Posts : 176
   Posted 1/7/2009 7:13 PM (GMT -6)   
confused  So, my rhuemtologist has told me, I have read various articles about it and I have talked to people about it... I want to hear it straight from the horses' mouths ;] ...
Hot showers are supposed to be GREAT for Fibro, reduce the pain and whatnot, but the past week or so of me taking showers, the heat has made me feel HORRIBLE, I can't even describe it... but I feel extremely lightheaded, and today I was very close to passing out... I switched quickly to cold water and sat down to relax, and within a minute or two I stood back up in the cold water, and I felt sooo much better for the remainder of the shower.
Coldness usually does bother my joints (like the weather lately), BUT, the heat makes me feel AWFUL.
Can anybody give me answers and/or their opinions??? Thank you in advance!
I have an appt. with my Rhuemy the 22nd, I can't wait to discuss some things with her, this being one of them (as long as you guys feel it is necessary or "odd" of this to be happening)...
Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

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Date Joined Jan 2009
Total Posts : 386
   Posted 1/7/2009 8:03 PM (GMT -6)   
Hi there,

Sounds familiar but I am not sure this would be the same thing.

When I use the fentynl patch I can Not take a hot shower or use my heating pad because it raises my blood pressure. I felt like passing out a few times and nauseous on top of it.
Maybe you can do some research on special effects/warnings to whatever meds your taking just in case one of them may be the culprit. On the "side effects/warning" portion of the pamplet that came with the fentynl med. said not to apply direct heat. Well just the hot water or heating pad on any part of my body would start making me ill.

Take Care,
Soft Hugs,

Regular Member

Date Joined Dec 2008
Total Posts : 139
   Posted 1/7/2009 9:12 PM (GMT -6)   
Is it the heat of the water, or the heat of the bathroom? I know that if I get hot in the shower I get weak, but it's even worse if the room is hot and foggy, I can't even breathe. I don't take long showers for that reason. I've noticed turning on the fan works to take that steamyness away. Maybe a few short hot showers over the span of the day would help?
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/7/2009 9:20 PM (GMT -6)   
I don't know, Orlo, but there is a fan that turns on in my bathroom along with the light, so its always fanned and doesn't steam up...
21 years old
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

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   Posted 1/7/2009 9:32 PM (GMT -6)   
I use to take baths so hot I would look like a lobster when I got out but now I can't stand the water very hot or it nauseates me. I do get lightheaded but I've never related it showers. It comes an goes like all the other symptoms. I'm glad you had a place to sit. I hope your doc will have the answers.
luv and hugs
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   Posted 1/7/2009 9:44 PM (GMT -6)   
Oh yuck!!!!  The heat does that to me too.  It's horrible.  I can't tolerate a hot shower at all. I need my showers or baths to be luke warm at best.  Like you, I get physically ill!  I'm that way when the heat is bad in the summer too.  I prefer winters! Well, okay, spring and autumn...LOL.  I think it depends on the person.  But I know Fibromites have trouble with extremes. Be it hot or cold.
It all has to do with our hypothalmus gland.  In the brain.  That gland controls our body temperatures and what we can tolerate. It controls our "homeostasis" or equilibrium. In Fibro, that gland, along with 2 others, doesn't work right. If you look up HPA axis, you'll find a lot of info on it. If you mention that to your doctor you'll probably get a wide-eyed, shocked, response!! Hehe....
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
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Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/8/2009 6:41 PM (GMT -6)   
Thank you all for your replies!! And yes, I plan on just brushing past it with my Rhuemy when I go to see her the 22nd!
I'm actually getting off of here now and going to get a SHOWER lol, I won't use too hot of water though ;]
Thanks again.
Take care all.
21 years old
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
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