Hi, and welcome. I have many of the sensations you experience and have also been through every test known to man. I feel that water-thing and keep feeling my clothes because I am sure they are wet. The skin on my legs feels like it is 'shriveling up' when I go outside in the cold, like it is too tight or something...it's hard to explain. Sometimes when I turn my head I feel this buzz, or swishing sound. After I was diagnosed, I had this vibrating-thing that wasn't just a sensation...I was really vibrating and after several trips to the ER and nothing was found, it almost got to be funny. I would lay on the couch and my husband and I would watch the vase on the table across the room shake. The first time it happend, I thought there was an earthquake but no one else felt it. It was similar to sitting on a washing machine on the spin cycle. Burning skin sensations are typical with fibro.
So...all I can say is I have experienced just about every fibro symptom there is. I hope you find something to help. It's hard to believe a condition that really causes no physical harm can be so dibilitating!
Welcome to the forum!
I have had alot of the symptoms you talked of. Dizzy once in a while. My hands and feet will go numb for no reason at all. You are right - there are so many funny symptoms and sometimes I worry at first, but know that the doctor is going to say it is a symptom of Fibro.
It is great that your doctor referred you to a specialist. They know so much more and hopefully will give you something to help with all of your symptoms. I applaud you for being able to teach full-time and juggle kids at home. I don't think I could do it. I also have the pain in certain areas that are very touchy. If someone bumps or touches it, I can just about scream because it is so painful. Fatigue is one of my biggest problems right now. I have no energy and can sleep all day, so I am not surprised that you are exhausted after what you take on every day!
Well I hope things go well with the specialist. Please keep us posted and feel free to ask questions or jump in anytime. Also, the 2nd thread down on forum is called Fibro 101 - it is a very good place to start. It gives advice on what you can do to help pain and many other interesting things. Reading that really gave me ideas on helping my pain and learning about Fibro. Good luck!
Never regret something that made you smile!
Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause
I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ
Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
I clapped my hands together the other day to get my dogs attention and they tingled with pins and needles for about twenty minutes! I guess we aren't candidates for the 'as seen on tv' Clapper that turns your lights on and off!
Welcome to the forum! I have reposted your reply on it's own thread so more people will see it. If you ever want to post a new message, just click on "new Post"
Happy you found us. It is a great group here and there is so much to learn and just talk about. I hope you stay around!
I get light-headed and the dizziness at times. I also have the balance problem & it seems to get worse as time goes by. I get the burning sensations on my feet & legs sometimes.
I could go on & on. There are so many different symptoms. Not everyone will have the same or have them as severe. Just depends on the person.
When I first joined I was so surprised to here others talking about symtoms that I had. It is great to talk to others who are experiencing the same things.
Hope you stay around and feel free to jump in or ask questions anytime.
Thanks for all of your responses and support. It is really great to hear from people who get it. When I explain it to my husband he listens, but he doesnt get it and will offer some type of advice that is more just to be nice. Today was a tough day at work. I am special education teacher in a high school and it can be very tough and I just cried today at one point from the overwhelming stress and work(of course not in front of the kids) and I find myself so much more sensitive and cry easily.
I hear alot of people say they take tramadol, does this work. I was never one to take pills, I usually get the prescription fillled but never take it. But I have to take my hydrocodone at night for bed because the pain is so bad. I told my dr if I really took it when I needed it would be all day, but I only choose to take at night and just try to get through it.
I also have endometriosis and raynauds syndrome, which I have read relates to fibro someway.
Thanks again for the support!
Thanks for the information. I have read about Sjogrens Syndrome in some of my reasearch and I was wondering about that. I also have thrush a lot,I am not sure if this is another symptom.
I will follow up with my doctor. Is there a cure or treatment for this?
Thanks for the help