Research Update

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/7/2009 10:44 PM (GMT -7)   
Hi all...

Yesterday I stumbled on a lecture on the Research Channel...we get it on Dish Network but I'm sure it's available other ways. It was out of Stanford University and was called "An Update on Fibromyalgia". Below are two links. The one to Stanford tells you about the shows they offer and way down toward the bottom is the one on Fibromyalgia. They do offer the show on CD for sale but...if you click their link to the Research Channel you can download it for free. I highly suggest everyone at least try to listen to the audio version. Some of the newer research is very promising as to what is happening to people with fibro and why they have so much pain. The consensus is centering around a central nervous system disorder which has been slowly moving to the forefront of medical opinion for the last few years.

I hope you find it interesting.
Chutz


http://healthlibrary.stanford.edu/videolibrary/index.html

http://www.researchchannel.org/prog/displayevent.aspx?rid=28078&fid=1698
ps....the download of the video takes quite a long time but you can be creative. ;-)
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 1/8/2009 7:55 AM (GMT -7)   
Thank you so much for posting this!  I watched it this morning, and it is very informative. 
 
I've been diagnosed by 2 rheumatologists with fibro, but it is hard sometimes not to feel like a hypochondriac because so many people (doctors included) don't believe fibro is "real".  This video goes into the actual science of fibro, and after watching it, I feel so much more validated. 
 
The doctor (who is from Stanford University) in the video not only goes into the science of fibro, but he discusses different treatments and how and why they help.
 
It's a great video to watch yourself or to share with someone who doesn't understand fibro.  I think it would also be very helpful for the newly diagnosed.
 
Thanks Chutz!
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/8/2009 6:13 PM (GMT -7)   
Thanks Chutzie. Ken and I listened to the audio of this today. It is encouraging to know there are people out there trying to figure this out. I've thought from the beginning that it had something to do with the central nervous system from all I was going through when I got it and I do feel like my central nervous system does not react normal to things. Like startling very easy and over reacting or under reacting to stimulants.
 
The one thing I don't agree with is what he said about people with fibro not having any more anxiety and depression than normal people. When I look at the signatures on here I keep seeing anxiety and depression listed.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 1/8/2009 9:11 PM (GMT -7)   
Marlee, maybe he's using the drug company statistics on anti-depressents to define how many are in depression. I think anti-depressents are being totaly over prescribed in this country. If you went by how many people are on anti-depressents anymore for everything you can imagine, statiscaly maybe were not anymore depressed. I don't think I would equate the depression of a chronic illness with the depression of oh, golly Doctor Smith, I have been really feeling down in the dumps lately, do you have something I can take? Kinda like comparing a hang nail to be run over by a bus. One piece I was reading was saying that in the worst cases of Fibro, the quality of life is right about the same as a Aids patient in the last few months of being alive.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/8/2009 10:12 PM (GMT -7)   
There does seem to be a lot of folks who do suffer from clinical depression and it would be interesting to know if it has any medical relationship to fibro or not. The researchers are probably more curious than I am. Either way it's just darn hard to live with.

I too was encouraged by the newest research being done. This guy even gives you his school email address to see about getting into some of the trials. If I didn't have so many other issues going on I would sure be tempted, but with diabetes and the other things that would complicate the issue I doubt I would be accepted.

Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:47 AM (GMT -7)
There are a total of 2,732,021 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
220 Guest(s), 5 Registered Member(s) are currently online.  Details
81GyGuy, Ruey, Milla, Traveler, maioeiage


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer