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jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 1/10/2009 1:39 AM (GMT -7)   
Hi FMily, I have a new symptom that I wanted to run by you guys.  I have a mylar rash that does look like a butterfly.  It goes from right under one eye, over my nose & to midway under the other eye.  It comes & goes & will range from very light to bright red.  It can be on one side or the other or both.  I am not sure if this is ME/CFS or Fibro.  I do know it is a sign of Lupus but so far that doesn't seem to be the case.  All my bloodwork was normal.  I have noticed lately that now my ears seem to be involved.  Yes, very wierd!!  If the rash is on the right side for instance, then that ear will be bright red & very warm to the touch like it has a fever.  Also, I have two piercings in each ear & they are now becoming infected & I can't wear my earring & I love my earrings.  The back piercings have become infected & I haven't worn earrings in them for about 10-15 years.  They are still open & now oozing & bleeding especially the left side which is the one that is red today.  I will tell you, this illness has so many unusual symptoms, almost anything can be caused by it.  I just want to wear my earrings & if this illness takes them away I will cry.  It is a simple pleasure.  Thanks for reading this.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 1/10/2009 2:40 AM (GMT -7)   
Denise, is it possible you have rosacia? I don't know much about it but maybe... I do understand about the burning ears, in fact I have been trying for a while to find someone who understands what I mean when I talk about the intense heat and burning of one ear, then the other, usually beginning around 4pm. Bright red, HOT and not fun. I hope you find something to put on your ears to help heal the infection so you can wear your jewelry.
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/10/2009 8:56 AM (GMT -7)   
I have not had the redness yet. I have not been able to wear earrings for many years without my ears getting sore in no time. It doesn't matter what they are made of either. I have had two holes for many years and the top one is the worse. My granddaughter and I got a third piercing one day several years ago and I had to take them out the next day my ears got so sore. Never thought about fibro having anything to do with it. I use to wear earrings everyday and now only wear them on special occasions and for short periods of time.
 
luv and hugs
Marlee
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/10/2009 9:13 AM (GMT -7)   
That is very interesting about the piercings.  I can't wear earings anymore.  They get infected too.  Hmmmm.
 
Yeah, I thought about the rosacia possibility too.  Just so you know, you can have Lupus with negative blood test results. It's becoming more and more common to get a diagnosis based on negative blood.  Those blood tests are a snapshot of what is happening in the body at the time the blood was drawn.  It can be hit and miss if the Lupus is in its early stages. As the disease progresses, the blood work will start to become positive all the time.  Don't rule Lupus out. It's very common to have Lupus and Fibro together. If you want to pop into the Lupus forum to read and poke around, I'd encourage you to do that.
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 1/10/2009 1:00 PM (GMT -7)   

My mother and I had our ears pierced over 35 yrs ago, my mother never had a problem w/ her ears. I had a short period of time w/o problems. Since then it's been terrible. I had 'good' earrings, 'fun' earrings, didn't matter, my ears would swell and burn. I had to remove my earrings w/i about 10 min of  putting them on. I only wear my watch and wedding ring and that is only when I'm going anywhere. My skin is so sensitive, I get a rash on my hands, arms (by the inside of elbows), my face. I was tested for Lupus 26 yrs ago, even had a biopsy, I was told it was negative. My niece was dx w/ Lupus 15 yrs ago. I have so many skin allergies, it is ridiculous. I had the 'all over your back' skin allergy test done, they kept it on from Wed b/f Thanksgiving till Monday after. Oh the ITCH!!! The test showed I was allergic to EVERYTHING. The derma dr. told me that was strange (ya think?!) he never had a patient react to everything in all his yrs of practice. I felt so special smilewinkgrin   I have had the oozing, too.

Sorry you're having a hard time w/ this. I just gave up wearing earrings.

God bless.  Alice.


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/10/2009 3:21 PM (GMT -7)   
I get contact dermatitis from anything metal that touches my skin. So I can only were nickel-free earrings. I can't wear the cheap stuff. I love jewelry and wish I could wear fun stuff.. no way. I've been allergic to metal since I was a kid.
Interesting!!
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Heart Disease, Bi-lateral Carpel Tunnel.  (Still being tested for other disorders/or whatevers).


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 1/10/2009 7:01 PM (GMT -7)   
Thank you all for your imput.  I did think of rosacia, but I have a friend who has it & her symptoms are totally different then mine.  Also, hers is a blotchy, bumpy type rash & is itchy, very itchy.  Mine is more of a swelling & redness that comes & goes.  I will be sitting watching TV or something & all of a sudden my face will feel warm or even kinda burn, also I get it alot when I am feeling sick & fluey. (Is that a word?) I usually say "Is my face red?"  I can tell alot of times it is there before I go look.  Other times I am surprised to see it & of course have to make my clown face & cross my eyes because it looks so funny.  People often ask me if I am hot. 
 
My ears are really a sad thing.  I hope it goes away soon but it has been going on for a couple of months.  Hmmm!! Ever since I started flaring. Maybe when the flare goes away so will the burning ears & infected piecings.  I'm such an optomist!
 
Ginny, I will look into the Lupus forum & check around, thanks for the suggestion.  My daughter has Lupus so I guess it is a possibility.  I just figured since the Rheumy dx'd me with ME/CFS a few months ago that was probably the cause.  My regular Dr said she wants to send me to another Rhuematologist because as she said (& we all know) not all of them know what they are doing. 
 
I hope you are all having a wonderful weekend.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 1/10/2009 10:23 PM (GMT -7)   
I'm very fortunate that so far I can still wear my earrings - I'd be majorly bummed if I couldn't.

The only ring that's still comfortable is my wedding ring. Everything else is uncomfortable or too small with the weight gain and the inflammation.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 

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