Newbie, here is my story...

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Curlykraut
Regular Member


Date Joined Jan 2009
Total Posts : 43
   Posted 1/10/2009 2:57 PM (GMT -7)   
smurf  Okay, my name is Julie, and I live in Virginia.  I work as a CNA at a nursing home, which I love!!  It has brought me to realize that I definately want to pursue my LPN degree. 
 
I have two girls, one 13 and one 3.  I am married to the love of my life for 10 years, we've been together for 18 years. 
 
I have always had fatigue issues and aches that people would say, "you have more aches and pains than an old person", but now it has gotten so bad that I am on Ultram, Flexeril, Lyrica, and Levothyroxine (for my Hypothyroidism).  I also have endometriosis and seasonal allergies. 
 
I have had a ton of tests, MRI's, CT scans, X-rays, Ultrasounds, been to a ...well there goes the Fibrofog, I can't seem to remember the term for the Dr. who deals with MS.  NEUROLOGIST!  Both locally and at a University Hospital about 60 miles away.  I've been in and out of the emergency room, had tons of blood tests and everything comes back negative.  I am scheduled for a visit to the Rheumatologist on March 13, which is the earliest they could get for me, because they only have one in the area!!  (He must be a busy man). 
 
If you want to know something I didn't cover, I have no problem sharing it, my life is an open book.  I hope to get the rheumatologist to diagnose me so I can move forward.
 
Julie

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/10/2009 5:40 PM (GMT -7)   

Welcome Julie,

I had to laugh when you said people used to say you had more aches and pains then an old person. My mom, sisters, and I like to get together to play cards when they are down to visit. We have all teased each other over the years about that and also about having "sometimers". Currently I have 2 sisters besides me that have Fibro and one that has Fibro & RA.

Anyway, I kind of got diagnosed the same way you did. All the tests, etc. My family doctor then referred me to a Rheumatologist and I really like him. He diagnosed me with Fibro & Osteoarthritis and has worked my medications around to try and find something that helps.

I hope you have good luck at your appointment. Hopefully you will finally get a diagnoses and like you said start to move forward. Not knowing what is going on is the hardest to wait for. Keep us updated and good luck!

Hugs!!   Margie 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/10/2009 5:40 PM (GMT -7)   
Hi Julie and welcome. Your story sounds quite familiar. I hope you get a dx when you go to the rheumy. Read the fibro 101 thread, second on first page, if you haven't already. Ask questions and read and we are here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 1/10/2009 5:56 PM (GMT -7)   
Hi Julie,

Welcome to the fibromyalgia forum. As Marlee said, read fibro101. There is a wealth of information on there.

Your story sounds so familiar. There are so many on here who can relate to you. So you will no longer feel alone, though with your sisters having it too, you probably don't feel isolated or crazy like some of us do. LOL...

Best wishes

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/10/2009 7:39 PM (GMT -7)   
Hello hello, Julie! :-)
 
Your story sounds very familiar to me also, right down to the people saying you have the aches and pains of an old person.. I am only 21 and people have told me this for years about myself!!!!!!!!
 
I was dx'd with Fibro this past Dec. and am fairly new also to this forum.. I am glad you found us! There are such compassionate people here and you will fit right in!
 
 
__________________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

Katted
New Member


Date Joined Mar 2005
Total Posts : 12
   Posted 1/10/2009 9:11 PM (GMT -7)   
Hi, I am 23 and I had Fibro symptoms since highschool, where my friends and I would joke that I was like a little old lady with arthritis. I recently went to a Neurologist myself and found out that I have Narcolepsy, which has made a huge difference in my treatment.
Hopefully you're visit will be successful as well,
Kat

julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 1/10/2009 9:44 PM (GMT -7)   
Hi from one Julie to another!

I pray your rheumy can give you an answer - that really is half the battle - just knowing what it is.

And, especially in the case of fibro, then you can begin to manage it - although your scripts sound very much on the money.

Take good care.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/11/2009 6:52 PM (GMT -7)   

Hi Julie and Welcome-

Good for you to want to pursue being an LPN. It is very satisfying work, but after 16 years of being a geriatric nurse, I went into burnout. Do miss my skills and the eldery, but do not miss taking care of 32 patients at one time and all the paperwork.

As others have said- your story is all too familiar! MRI normal for me and after gallons of bloodwork and everything coming back normal and the bad pain setting in I was able to get a diagnosis quickly.

I know the rheumy I saw was scheduled 2 months out too before I was able to see him. Keep us posted.

GamJill 

 

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/11/2009 7:37 PM (GMT -7)   
hi julie!

welcome! although i'm not happy that you, too, struggle with this dd, i am very happy that you've found us! :-)

kudos to you for being a cna-one of hardest jobs out there, but so needed! and also kudos to you for going for your lpn. i briefly thought i wanted to be a nurse, but then i found out i absolutely suck at knowing and understanding the parts/systems of the body. um..yeah. big drawback there. lol. i still greatly admire and appreciate people who go into the nursing field, though!

i also have a teenage daughter (she's almost 16), so i can relate to you on that point, too!

welcome again!
love and hugs
~danielle

this being human is a guest house.
every morning a new arrival-a joy, a depression, a meanness,
some momentary awarenewss comes as an unexpected visitor.
welcome and entertain them all!
even if they're a crowd of sorrows, who violently sweep your house empty of its furniture,still, treat each guest honorably
he may be clearing you out for some new delight.
~rumi


Denial~it ain't just a river!
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 1/17/2009 10:36 PM (GMT -7)   
Hi, Nice to meet you! Thanks for sharing - I'm new here also and I'm really glad to find people who are able to understand the way I feel - it's nice to not be the odd one out somewhere!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 1/18/2009 12:48 PM (GMT -7)   
Hi, Julie, and welcome!  I was out of town whe you first posted this.  It does sound like fibro.  We all have the aches,pains, fatigue and some of us have the hypothyroidism, too.  It's good to rule out other illnesses first, since fibro mimics several illnesses.  Plus, it's nice to know it's not all in your head!
 
Stick with us and we will help you live a full and enjoyable life with fibro, if it turns out that's what you have.  We have great members here that have wonderful ideas to help you.  I'm glad you found us and joined in.  I hope to hear more from  you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/18/2009 1:53 PM (GMT -7)   

Hi Julie!Welcome!

I have a sis in Va.Nice country...

I hope this place helps you as much as they have helped me,wonderful group of people.


Fibro,Heart Disease,Diabetes other assorted.
 
      She Hath Done Wonderous Naughty


Curlykraut
Regular Member


Date Joined Jan 2009
Total Posts : 43
   Posted 1/20/2009 2:52 AM (GMT -7)   
Do your symptoms float around?  I go from severe pain in my elbows, to it lessening a little, and then sharp pains in my ankle, or neck, or pelvic floor.  I don't know, is this common in Fibro?  Since I have not seen my rheumy? yet, I am not sure.  (Appt. in March).  I feel like I am on so many meds, I get a lot of grief about how much med. I am on, from my hubby, he doesn't understand.
 
Right now I am having a lot of neck pain, and can only sleep on my back.  The Lyrica is doing nothing for me, but adding horrible side effects, I am going to call my family Dr. today to talk about going off of it.
 
Jules
 
Lyrica, Paxil, Ultram, Levothyroxine, Flexeril, Multi-Vitamin with Maximum Greens (GNC item)
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