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2tmoose
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 1/10/2009 10:06 PM (GMT -7)   
Does anyone out there feel that the fibro punishes you when you do anything out of the norm?  Maybe I am just depressed, but I feel that any time I really enjoy myself for one day, I pay for the next 2 to 3 days.  Even when I just try to clean my house for company, I still pay for that.  It's not like cleaning is fun, but it is a change from just usual upkeep. The pain has been so bad since the end of the holidays when we had family here, that I feel like the fibro gets mad when it is not the major thing in my life and makes me remember it is there and trying to take control back.  Does anyone feel that way?  Anyone ever feel like the fibro seems to be a living, breathing thing that wants recognition of its existence?  I may not be explaining this correctly, but maybe someone out there understands what I mean. cry   The pain tears have been falling today, but I know the pain will ease eventually.  Any feedback will be greatly appreciated.
Tomorrow is another day......and it might be better!
 
 


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 1/10/2009 10:21 PM (GMT -7)   
I'm sorry you've been having a rough go of it - maybe it's the full moon affecting your outlook.

I have not separated my fibro from myself - as in, giving it life of it's own.

I do "pay to play", that's for sure. And, it seems the amount of time out of the house is getting shorter and shorter. I go out shopping to take care of a few things, and I may be gone for as long as four hours at time, trying to consolidate my trips, and when I get home, I'm in so much pain, I could just puke. Sorry to be so graphic.

Hang in there - it's a victory in and of itself.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/10/2009 10:26 PM (GMT -7)   

I think you explained it just right. It sure does seem that way, doesn't it?  I have the same problems. If I even do anything around the house, I pay for it later. Believe it or not, I used to enjoy cleaning my home or just rearranging things. Now I cannot really do it, but sometimes I will get to feeling great and give the house a half-way good cleaning. Next day I am in pain and it usually lasts the rest of the week.

It almost seems like it doesn't want us to be happy or go without pain for too long. I guess when you live with something like this dd every day it does begin to seem alive.

Hugs!!   Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


2tmoose
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 1/10/2009 10:36 PM (GMT -7)   
wink  Thanks for the replies.  At least someone else knows what I meant.  I probably should not give it a life of its own, I don't even know when I started doing it.  I guess I sort of compare it to doing something wrong when I was a kid and getting into trouble.  I guess I feel that the fibro is the rules.  If I put it in the back of my mind, I broke the rules.  Thank you again, your responses have made me feel better than I felt in days.  Someone understands.  Bless you all!
 
Maybe one day we can be the rule makers of the fibro.
Tomorrow is another day......and it might be better!
 
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/10/2009 10:39 PM (GMT -7)   
Ok, it's not really punishment but simple chemistry. Because we have problems with energy production in the mitochondria (energy factories) of our cells we have a lot of built up lactic acid from the use of our muscles. If you have just a little bit of extra lactic acid in each cell you have just a little pain in each cell. Put them all together and you have a lot of pain. Rest and gentle exercise will help your body remove the energy byproducts from your body and you feel better in a few days. Massage and heat also increase circulation and this speeds the elimination of wastes as well.

If you are taking malic acid you will notice a lesser degree of 'punishment' because the malic acid helps the energy production in the mitochondria. If you find you must do some extra movement or heavy cleaning try to increase your malic acid intake as well as your fluids to assist in waste removal in the kidneys and liver. If you don't take malic acid then start noshing on apples, at least two a day, to help increase your malic acid intake. This isn't the best way to obtain it but it's better than nothing.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/11/2009 12:02 AM (GMT -7)   
I understand completely, 2t! Whenever I do something that I enjoy I am in agony the next day.
 
I had a great Xmas Eve, going up to the Pocono's to my cousin's house. My dad's whole side of the fam was there! It was fun, good food, lots of laughing, and LOTS of walking around!! They have a lot of freaking steps in their house, let me tell you!!!! I should've just cooled out on the couch there and let people come to ME lol.. cause the next day I felt like a train hit me (well ok, not THAT bad blush ) But my heels were KILLING ME when I walked around my apartment and my eyes are soo sore because in their house their lights seem very very bright. My head throbbed once I got home and into Christmas day. Next time I'll wear my sunglasses there lol scool   And I tried explaining it to my husband's family when I went to visit them then on Xmas.. I just don't think they understood what I was feeling like.
 
Even when I go to the mall once in a while with my friends, I pay for it a few hours after I get home and the next day. Gimping has become second nature to me now because my legs get so pained and weak after trips to places.
 
And I think I do too tend to give it a life of its own.. I am fairly new to all of this still and am still learning and "grieving" in a way. I haven't gotten to the point yet where I've learned to control IT instead of letting it control ME. I hope I get there.......
 
Take care, 2t.
 
__________________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
 

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 1/11/2009 12:58 AM (GMT -7)   
I do not know. I can swim but I cannot do housecleaning. Some shopping is okay but not too much. Most of my work and research is done at home on the internet. If I have to go to a research libraby I have to make sure that I use my wheelchair because library and class room chairs hurt.

Up until last month I took 8 hour classes on the weekend, ugh. They exhausted me. I would rather swim for 4 hours than sit in class for 8.

In my case the water supports me so I can get lots of hard exercise. I do not have the lactic acid problem even when I swim for tow hours straight. However, recent scientific findings concur that swimming is the best exercise for people who have fibromyalgia.

House work is painful period. This week I asked my 21 year old son to come over and do the general cleaning around here, he did. I now plan to ask him to help at least once per month. I mean, the man sterilized the bathroom and kitchen, de cluttered the place and vaccummed everything.

I pace myself even though I exercise daily. I do go out with friends but mostly during the day. My present medications remove a lot of pain during my waking hours and they help me rest at night. I hope these pills work for a long time.

If I did not pace myself, I would be miserable.

I understand.

Donnaeil

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/11/2009 10:11 AM (GMT -7)   
Years ago anxiety tried taking over my life and keep me from doing the things I wanted, driving was a big issue for quite awhile but I wouldn't stop no matter how anxiety tried to get me to. I did talk to it as if it was something that had invaded my body and I wasn't going to let take over my life. As crazy as it may sound it did work.
 
Jeannie explains all this so well, don't know what we would do without you Jeannie. I'm one of those that can't take the malic acid cause of my tummy.
 
What I have found is that if we increase the use of the muscles that we don't use in our daily lives slowly we can sneak it by the demon fibro without as much pain. For instance, when we got our puppy Krissy she weighed about 2lbs but the extra activity of getting up and down with her had me sore at first. Now she is over 7lbs but my body has slowly gotten use to the extra weight so I don't feel it. I moved my couch across the family room the other day just to move it back where it had been and I can sure feel it all over my body. We get in these moods to do things our bodies aren't use to doing and use muscles in a way they are not use to moving and we pay. So to me if we get our muscles use to moving in all different ways slowly we will have less pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 1/11/2009 10:38 AM (GMT -7)   
I seem to always be hurting, no matter what I do. But I have gotten use to the pain. I do take the malic acid/magnesium and it helps a lot. I would encourage anybody who can take it to try it. You would be suprised at how good you will feel.

Best wishes for a wonderful day

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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