Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. - Dr. Seuss
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.
Hi Sandi & Welcome!
The first time I went to my Rheumatologist, I took a list along of all my symptoms that I had been experiencing. I knew I would forget if I didn't have it on paper. I'm sure he has your records from your dr. visit if you were referred. If not, let him know what your doc said about Fibromyalgia. I also let him know all the over the counter drugs and the prescriptions I had tried and what didn't work.
To tell you the truth, he will probably ask you more questions, so he can get a feel for what is going on.
Lyrica works different for all people. I went off because I was gaining weight and I didn't feel any relief from my pain. My sister swears by it. She said it helps her pain and she'll never give it up. It won't hurt to try it, you may be one of those people that it helps.
Good luck and keep us posted!
Never regret something that made you smile!
Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause
Dear Sandi: I am so sorry to hear about all your troubles. Sometimes it feels like it is a crime to be sick and to be poor. A person suffering as you are should have help so you can have your air on when you need it. Can someone help? The church, salvation army, some kind of energy subsidy for disabled people. I am a bit confused about your meds. Could you clarify. For example, is the cymbalta making your mouth so dry, or perhaps the ambien, and is the ambien contributing to the nightmares, or perhaps the muscle relaxer. The problem with muscle relaxers is they slow down the peristaltic spasms in the bowel and result in constipation. I eat Activia yogurt every day, and because of that, my bowels are much more efficient. However, if you have celiac, is milk products forbidden? If so perhaps you could drop by a health food store and ask about the probiotics in Activia. It might be available in another source. First, let's look at what we know. You have been diagnosed with IBS. IBS is very common with Fibromyalgia. The pain you experience is not there when you first wake up, most unusual for Fibromites, we usually wake up in bad shape, stiff, achy, feeling like we slept on the cold hard ground. It takes many of us 1, or 2 hours to be able to move about. Your situation is different in this regard.
You speak of memory loss, confusion and weird tingling in legs. Fibromites frequently experience memory loss and confusion, we fondly refer to it as Fibro Fog. Many if not all of us suffer from that. The weird tingling in your legs at night, could it be restless leg syndrome? It sounds like that, however, I experience it only when I use the antihistamine, benadryl, or when I am in withdrawl from some meds such as Tramadol (Ultram). No one should have to suffer through that level of pain. I also might reccomend a daily exercise routine, like walking, begin slowly, a few hundred feet, increasing it by a bit each day until you can walk a mile or so without collasping. It would be great if one of your older (at home) children, accompanied you for the first few days in case you have a weak spell.
Now the menopause. Oh Boy, that can be causing some of your symptoms. Obviously intolerance to heat, but also, because it's hormonal, it could be triggering problems with other hormone systems like the Adrenal Glands, the Thalmus, the Thyroid, and so on. We mammals are complicated physiologically. I had to use a gel that you rub on your belly or thighs once a day to get through menopause, it contained estrogen and helped level things out. Also, there are some soya products that have natural estrogen, or even Red Clover leaf, which is supposed to help with menopausal symptoms.
Many of us have to write our difficulties down on paper to take with us to see the doc. For example, restless legs, fibro pain, ambien-nightmares, menopausal symptom relief. Many Fibromites also have meds to get them through the really hard days. Some kind of pain med, some kind of muscle relaxer. If you have difficulty paying for medicine, let the doctor know. There are some very inexpensive meds for fibro that have been tried and true for decades. I much prefer them, just my opinion, because I know what side effects to anticipate. You ask about Lyrica, I cannot help you there, I use an older anti-depressant which has some anesthetic effect in smaller doses, and works for the neurological aspects of my Fibro pain. I also have a codeine and tylenol medicine which helps with the really sore joints and the strain of the longer muscles of the arms and legs, as well as "frozen shoulder, (like a hard golfball size knot on shoulder, just where it attaches to the collar bone. I would love to get a massage but unfortunately, like your air, it isn't in the budget. If you have a health care plan, maybe your doc could prescribe massage, sometimes that's an option. Good luck, keep your chin up. You are uniquely you, it's your body, you know it better than anyone else possibly could. Go for what you need just as you would if you were asking for help for your children. Your children need a mother who is present for them, and when mom's unhappy, everybody is unhappy.
Hi wishingyoujoy and Welcome-
I too have to write things down when I see the Dr. or I will forget. Let her know everything you have told us.
I started menopause early at age 40- perimenopause at 38. I battled 30 to 40 hotflashes a day for 4 years and it finally wore me down. I started on HRT as the benefits out weighed the risks at that point. (I tried over the counter estrogens, etc., etc., and nothing helped) Some women breeze right through it but I was not one of those fortunate ones. I now am on the lowest dose of estrogen they can prescribe for the last year and I hope to be off of that this winter or next winter. It is a personal choice on how to manage menopause but you and your Dr. will get it figured out. Same with the fibro. It sounds like the pain is not under control and make sure to let your Dr. know that also.
We all know what you are going through in one way or another and this group is the best for support- let us know how your appt. went.
Yes, I agree with Sherrine, Wishing, you need a new doctor. I do too so don't feel bad lol I am actually on the search for a new one.
Oh, and it is nice to meet you, welcome... I am Jenna and I was dx'd with Fibro this past December.
You'll love it here
21 years old
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ
Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
I agree... you need a new doc. I'm sort of chiming in after the fact, since you are probably headed for the doc. right about now. Please let us know how things went.
I just wanted to welcome you and wish you well today.