We all have similar diseases and syndromes

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New Member

Date Joined Jan 2009
Total Posts : 19
   Posted 1/11/2009 8:29 PM (GMT -6)   
Hi everyone,
This has been a great group to join, I appreciate everyones support, and advice as well as shared experiences. It is an odd syndrome,and because there continues to be so many skeptics, including Dr's, it does make you question the validity of the symptoms. Talking and listening to everyone in this forum confirms that it is real and I am not crazy. My family Dr has been great and he believes this is what I have and has been great about sending me for tests,and he is now sending me to an internist that has joined "prohealth" and is looking for Fibro patients. I found it interesting after reading and perusing through the different posts how many similar diseases and other problems we all share. For example, I have suffered from severe endometriosis since a teenager, and have had several operations.(My 4 children are a miracle), as well as raynauds disease. I am goingto ask the dr to test me for Sjodrens, because of my dry mouth and increase in cavities. (Thanks Ginny for the information regarding this).
Does anyone suffer from an overall "weird" feeling. Sometimes I am in a situation in which I just feel strange. I have a history of panic attacks, but have learned to work through them and can handle them(brought on by a serious car accident),so I dont think it is anxiety or panic. I just dont feel like me. It is so uncomfortable I hate to do things like I used to. Things like going on vacation,or a longtrip,are not comfortable for me. It is hard to explain.
Thanks for listening, I think I was rambling... but it helps to get it out.  

Regular Member

Date Joined Nov 2008
Total Posts : 159
   Posted 1/11/2009 11:09 PM (GMT -6)   
I actualy had that happen a few weeks ago. I went into the bathroom and I was feeling and thinking completely differently then I ever have before. It didn't feel like me. I have had so many variations on how my mind is working or not working, I thought I had seen them all, but this was more like I was someone else. Its only happened that one time ever, but it was quite weird and scarey.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

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Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 1/12/2009 12:43 AM (GMT -6)   
Hi Mom...

... and I so glad you have become part of our family and are enjoying it.I do know what you are talking about ... that "weird" feeling. There's no way to describe it. It comes from somewhere in your gut, inside you feel just weird and creepy. I used to have it occur more often, like every other week or so, but any more maybe once a year. It's when you are among other people, it's not panic...just creepy. That's the best I can do...lol. But it's also very uncomfortable. So far as I know we just learn to live with it unless it's disabling.

Glad you have a great doc! They're not always easy to come by,
Co-Mod Fibromyalgia & Chronic Pain Forums
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The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Regular Member

Date Joined Aug 2008
Total Posts : 26
   Posted 1/12/2009 12:09 PM (GMT -6)   
I call them my disturbance in the force days, like in Star Wars where everything was blamed on a disturbance in the force that kept things in balance. I just feel kind of creepy and have this sense of impending something...I just seem to have had all the joy sucked out of my life..and I just want to sit quietly in one spot till it passes..and it is not related to nor does it act like a panic or anxiety attack..it is just a really strange kind of otherworldly other person feeling..makes ya wonder about parallel universes almost..if so, I am apparently sick there too, dang it!
Its NOT denial..Its selective reality!

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 1/12/2009 12:12 PM (GMT -6)   
Hi Mom,
I have had that feeling too. I tell my husband about it and he just looks at me funny. It is hard to describe it. Kinda like floating about, not quite in time with everyone else.
I once looked in the mirror while this was happening and had a hard time focusing on my face? I always just shrigged it off as a side effect from meds. Maybe it is related to Fibro.

Glad you joined this forum. Looking forward to hearing more from you.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/12/2009 12:18 PM (GMT -6)   
I get some really strange and weird body and mind feelings but have always blamed it on anxiety. They are too strange to describe and come out of no where. I have had them happen while I'm alone or when I'm in a crowd. There is a psychological term I'm trying to think of but can't of course.
luv and hugs
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Veteran Member

Date Joined Jan 2007
Total Posts : 1042
   Posted 1/12/2009 2:15 PM (GMT -6)   

Are you talking about that feeling..well I call it the feeling of impending doom...like something is wrong..but you dont know what, and along with this creepy feeling, sometimes I also feel my body is a mere shell, and the real me is peeking out. TMI??  tongue    devil    Thank God it always passes with no events...but is this the creepy feeling you are referring to Marlee, bridgewitch, Chutzie??  I have had it for years...but then maybe I was sick long before I was ever aware there was anything wrong with me.



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Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 1/12/2009 2:26 PM (GMT -6)   
A few times I felt almost like I was having an out of the body experience!  I know I'm there but feel like I'm not there and just observing.  Does that make sense?  (Hush, Marlee!) 
Forum Moderator/ Fibromyalgia
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God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1371
   Posted 1/12/2009 2:52 PM (GMT -6)   

Sherrine, welcome back, hope you had a great time!. I have had the same kind of experience that Sherrine spoke of. I was sitting in my own living room talking to my dear friend, when I suddenly felt as if I were sitting above us and looking down as we had our visit. This happened several times when she came to visit. Very weird. I have been in front of my class talking and suddenly feel like I'm watching me speak to them, as if I'm a seperate person from the speaker. Twilight Zone! I didn't mention it to anyone but my DH for yrs, for fear ppl would think I was crazy.

God bless.  Alice.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 1/12/2009 3:13 PM (GMT -6)   
Yesss.... I get that too. WOW that's weird!! I didn't really know how to explain it till I read all of your posts!! I never mentioned it to anyone either.. cause I thought it was kinda creepy and nutty. Thanks for getting this thread going, Momtech. It's interesting that we all get that feeling, we can't all be nuts. Can we?
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Heart Disease, Bi-lateral Carpel Tunnel.  (Still being tested for other disorders/or whatevers).

New Member

Date Joined Jan 2009
Total Posts : 19
   Posted 1/12/2009 4:21 PM (GMT -6)   

Hi everyone,

I am just getting home from work, and I am exhausted, I have my kids settled to do homework but before I strart all of my homework(teachers have more homework to do than students) I thought I would check in. It was a relief and a comfort to hear that many experience the "weird feeling". It really is hard to explain and I do tell my husband, but I dont think, I mean I know he doesnt get it. I am so glad to hear you guys get it and I know it is real. Glad I could help, PattiPanda. I am sure I can think of other threads to start with other "weird symptoms.

Thanks everyone, this forum is very therapeutic for me. Okay, now I have to do some paperwork,the benefits of teaching.

Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 1/13/2009 2:18 AM (GMT -6)   
I get that feeling too, I feel like if people look at me they won't see me.  I feel like I am an observer of the conversation & feel real funny when people ask me a question.  I often wonder what I look like to them, probably fine but I feel two dimentional.  Wow, that word doesn't look right but I can't seem to remember how to spell it.  Good thread.  Hugs Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

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Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 1/13/2009 8:40 AM (GMT -6)   
ok.....this is too weird.

i have this feeling, too. for me, too, it feels like i'm there, but not really there and watching myself from above almost. when it happens to me, i also get a weird tingling sensation throughout my body. i have always blamed this odd sensation on anxiety, but now that i think about it, i don't have panic when this happens. i almost feel too..removed? to panic. does that make sense?

wow. what an odd thing to have in common. there has to be some fibro connection here, do you think?? how on earth would we all go about talking to our doctor's about it without sounding nuts??? lol
love and hugs

this being human is a guest house.
every morning a new arrival-a joy, a depression, a meanness,
some momentary awarenewss comes as an unexpected visitor.
welcome and entertain them all!
even if they're a crowd of sorrows, who violently sweep your house empty of its furniture,still, treat each guest honorably
he may be clearing you out for some new delight.

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