Hello - an introduction thread

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Wookie Luvvah
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/13/2009 10:42 PM (GMT -7)   
Hello Forum! My name is Wookie Luvvah and I too suffer from chronic pain and all the good stuff that goes along with it.

I am currently 39 (turn 40 this summer) and getting ready to work with some new doctors in 2009 to see if I can get a better handle on my pain, fatigue, and mental fuzziness which has been growing increasingly worse this past year.

Let's see - a little about myself. I was diagnosed with Fibrositis way back around 1982 (I was 13). Such a long time ago and boy has the research and acknowledgments of this condition grown by leaps and bounds. Somewhere around the age of 19-20 I decided to flush my crazy amounts of meds down the toilet and try to manage my condition through diet and exercise. For the most part it has helped (although I've no clue what it's like to not be in pain) but I've lost the balance and as a result I'm dealing with more issues.

I've set a goal of getting this back to a manageable state this year (or at least in the right direction) and since I enjoy message boards, I thought I would search one out on this topic as I may need to reach out to "those in the know" or possibly be able to share my experiences to help those new to this diagnosis.

Anywho - that's who I am (at least the cliff notes version). Looking forward to 2009!

Wookie Luvvah
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/13/2009 11:04 PM (GMT -7)   
PS - I've only been here a little bit (and no replies - with good reason, you're all getting the rest you need) and I already feel better.

It's nice to know that others deal with the same poo that you doo. ;)

julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 1/13/2009 11:31 PM (GMT -7)   
I'd love to be getting some rest, but my recent insomnia is another one of fibro's lovely gifts...

Welcome. I haven't been here very long, but it is good to be amongst those who understand.

Hope you find the balance you are looking for in '09.

Take Care,
Julie
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/14/2009 12:25 AM (GMT -7)   

I dearly wish I could get off the cocktail of drugs im on but the pain is just to bad. Sounds like you do well for yourself. Keep up the good work, this forum is fabulous.  sue2z


Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/14/2009 12:45 AM (GMT -7)   

Welcome,

I was resting, but usually I get up 2-4 times a night with pain or just can't sleep. Hope you are able to get things back on track in '09. You've come to a great place. Everyone here is great and always willing to reach out and help each other. Hope you hang around.

Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/14/2009 8:48 AM (GMT -7)   

Hi Wookie and Welcome-

You have been on here? Have not seen you, but it's nice to meet you! You've had this for awhile, (understatement) I am new to this as of late winter of last year. It's been quite an adjustment and still learning. The group here is great- they have taken my hand and guided me for the last 8 months now.

Join us on our daily Koffee Klatches when you can. It takes our minds off the pain and we get to know one another better. :-)

Wish you all the best for reaching your goals for 2009!

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/14/2009 8:52 AM (GMT -7)   
Wookie-

Oops, you meant last night. I thought you meant you have been at the site for a couple days and no one responded. Never mind- :)

GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Wookie Luvvah
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/14/2009 9:31 AM (GMT -7)   
Good catch GamJill. It was funny - last night I expected to see more insomniacs like me up and posting.

And thanks all for the nice responses.

This does seem like a nice forum full of supportive people.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/14/2009 12:23 PM (GMT -7)   
hi wookie!

welcome:-) i love your name lol. chewbakkah (sp??) was always my favorite.

wow-diagnosed at 13! that's so young..i am so sorry you've been struggling with this for so long. i am really glad you found us, though!
love and hugs
~danielle

this being human is a guest house.
every morning a new arrival-a joy, a depression, a meanness,
some momentary awarenewss comes as an unexpected visitor.
welcome and entertain them all!
even if they're a crowd of sorrows, who violently sweep your house empty of its furniture,still, treat each guest honorably
he may be clearing you out for some new delight.
~rumi


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/14/2009 12:49 PM (GMT -7)   
Hi Wookie and welcome. Sounds like your a veteran at this. Read the fibro 101 thread, second on first page, it contains a lot of great info.
 
Jump in and join us.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 1/14/2009 1:13 PM (GMT -7)   
Hi, Wookie, and welcome!  I'm so glad you found us.  I, also, was diagnosed with "fibrositis" back in 1988.  I had never heard of it but I sure know about it now!  LOL
 
As Marlee said, check out the Fibro 101 thread.  There are links to good info about fibro.  Also read back posts and ask questions.  That's what we are here for. 
 
You have come to a great place.  We have good people here that will help you live a full and enjoyable life with fibro!  The bonus is that we really do care about one another!  I'm happy to meet you and hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/14/2009 1:21 PM (GMT -7)   

May the force be with you Wookie!!! tongue

You've found the right place!!  This is an awesome forum!! I've only been around for a couple of weeks, so I'm kind of a newbee myself.  These wonderful people have made me feel SO much better.  We compare our feelings and ailments.  Everyone is so understanding and non-judgemental.  We have some fun and learn alot!!

Welcome!!


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/14/2009 1:32 PM (GMT -7)   
Hello Wookie!!
 
Nice to meet you
 
And I'm with Julie, I'd love to be getting the rest also, but I've had insomnia lately shocked
 
Look forward to hearing from you more!!
 
 
___________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 1/14/2009 3:00 PM (GMT -7)   
hello Wookie, I am fairly new here also.  It is a very good place to come & get the help we all need.  I am sorry you are having a hard time of it right now but it sounds like you know your illness & body well & will be able to find that balance again.  Sometimes we get these big flares that just seem to take our lives away.  I hope it doesn't last too long.  Welcome & come back often, you will learn alot & you will also be able to share with us things that have helped you.  Many hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 1/15/2009 10:11 PM (GMT -7)   

Hi Wookie,Hi Wookie,

My name is Aux and I'm fairly new here too.

In the summer of 2006, I was exposed to some highly infectious bacteria as well as virus. As a result, I developed Tolosa-Hunt Syndrome. Most people respond well to steroids....I didn't. A few months later, I developed FM. My physician from the Mayo Clinic said FM was secondary to the Tolosa-Hunt syndrome.

Interestingly, he said that someone with a trauma or disease that seriously affects C 1-4 will often later develop FM.

At any rate, I'm now disabled. The last two years have been miserable and I can only imagine 20+ years. Let all hope for a better 2009

 

 


kitkat67
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 1/16/2009 11:56 AM (GMT -7)   
Hi Wookie,
I am new here too, but not to Fibromyalgia. It has been diagnosed just about 3 years ago, so I feel like it has been a lot longer. Funny how the days seem so long when you are in pain!

I think you have the right attitude, taking control and being proactive in controlling your pain is important. Myself, I am always researching on my condition, and looking for alternative therapies. So, glad to see you found us here.
God Bless,
Kathy
Kathy

http://www.myspace.com/mlmteacher
Fibromyalgia,bi-polar,DDD and osteoarthritis.

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