11 months of ignorance please find me a spokane wa fibro friendy doc

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3eyesofwisdom
Regular Member


Date Joined Sep 2008
Total Posts : 27
   Posted 1/15/2009 9:56 PM (GMT -7)   
I am depressed. I feel like crap. My doctor hasn't run any tests to rule out anything of major consequence. I guess if i dont have arthritis it is in my head. She only tested for 1 type and she never had an mri done. Maybe i have ms. I know fibro is the last test. They don't run anything and then tell me its psychosomatic if i don't have athritis. I tired of corretcing typos. i am having a lot of problems. Is it normal for your whole leg to go numb and fall over? the docotr i saw today told me they didnt believ ein fibro 90% of the time. i told her did you know when they utc fibro people open after death ther are holes in their mucsles. she got pissed and told me not to insult her intellegent. but before that she tels me having a temp of 102.5 and then 94.5 the next day is normal temp fluxuation. I was diagnosed with amental illness along timme ago. now i am physically sick so it is all in my head. they keep pushing for shrinks instead of testing. at the er they said i must just have ahd a panic attack. It was asthma. No one will even run mri for ms because it is in my head. I dont want to go anymore. I want to win the million dollar lottery and buy my own medicl equipment and if i find a brain tumor i will do my own fricking surgery. I do not like incompetant doctors. I think if i have ms i will just die and blame the docotr. my family can sue and at least get money then. Just because your menally illll they say you cant be physically ill. anyone know a fibro friendly doc in spokane, wa. ...i am tired of doctors that dont understand that 11 months of vomiting and pain is depressing when no one will help. i cant think. so spokane wa docotr anyone please?

Post Edited By Moderator (Chutz) : 1/15/2009 11:26:12 PM (GMT-7)


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 1/15/2009 11:30 PM (GMT -7)   
Hello, Jennifer, and let me say that I am sorry you are having such a bad time. I can relate to your situation, many of this forum buddies can too. Let me encourage you to get a small notebook and make notes throughout the day about how you are feeling. The purpose of this is not to show it to anyone, but so that you become more familiar with specifics about how you feel, what hurts, what changes through the day, etc. I did this and found that when I did have a doc appt where I had to throw down to get some real attention and help, I was better able to talk with her about specifics. When a doc asks a precise question, they want a precise answer. When you do have a doc visit, try to be calm and talk with them matter of factly. I understand how you feel and getting silly responses when you are in pain is not helpful, but being calm goes a long way. I don't know where you have looked for a doc, but I do have a suggestion of a website you can visit if you are interested. I'm not sure if I am allowed to give it to you here, but I am happy to share it with you via email. I will ask the mods if I am able to give you the website on this question. Take a deep breath and cool your head, it won't always be this bad.
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 1/15/2009 11:53 PM (GMT -7)   
Okies Jennifer, I re-read the rules and I am allowed to post a link here for you. You should know that I have no vested interest in this site, its just something that I have found to be very helpful. My husband and I have moved several times in just a few years, and I found this site a wonderful resource for finding a doctor in a new area. I hope you find what you are looking for! Here is the site- http://www.cmda.org. It is a site of christian dentists and physicians. You do not have to be a christian to visit the website or choose a doctor, and it lists many types of physicians.

One more thing- you mentioned that you have been Dx with a mental illness a long time ago. Can I ask if you are taking any meds or seeing anyone for this? I had to talk with mental health professionals along the way since my Dx, because at times I needed help making sense of the changes in my life. Let me encourage you to not leave out this part in your own healing. Good luck and let us know how you are.
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/15/2009 11:53 PM (GMT -7)   
Hi 3eyes and welcome.

I'm so sorry you are not being treated with respect. Either way you do need to find a different doctor and also a pain clinic. I would first start with Sacred Heart or Deaconess Hospital and give them a call. Ask if they can recommend someone who can treat what you have. I'm not sure but if either one is a teaching hospital that would be the one to choose. You might also try to see a rheumatologist. If it's fibro or arthritis and/or muscle pain that's who you want to see.

Good luck and keep us posted!
Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/15/2009 11:56 PM (GMT -7)   
3eyes, I also am very sorry that you are going through this and I agree with Sera that getting silly answers while being in pain is THE WORST! And you are absolutely 100% correct that JUST BECAUSE YOU ARE MENTALLY ILL DOESN'T MEAN YOU'RE NOT PHYSICALLY ILL TOO! I have 2 mental illnesses AND Fibromyalgia. The Fibro is NOT IN OUR HEADS. I am so so sorry that I don't know what doctor for you to go to (the doctor I have right now isn't even all that great either) but we are here for you to vent to... You are not alone!!
 
TAKE CARE!
 
________________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/15/2009 11:59 PM (GMT -7)   
OH! And is it really true that when people with Fibromyalgia die, they have holes in their muscles????????!!?
 
I have never heard that before!!

confused confused

________________________________________________

21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/16/2009 1:01 AM (GMT -7)   

Your doc should of done more testing and if you requested mri you really should have it done. I had all the tests done and nothing showed up so they sent me to shrinks ect while I got worse, finaly I got onto a pain spec, took two but this ones beleives and he put me on meds and now my doc is much better also but I still have to see a shrink to make him happy.  Have and mri to  be sure, and having you leg like that is common for fibro, numbness that moves around especially.  Ask to see a pain spec after your tests come back.  After my mri   it was the nuerologist who diagnosed me..  good luck  sue2z


Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 1/16/2009 6:40 AM (GMT -7)   
I am sorry that you are having problems getting a diagnosis. Though I know some types of depression cause pain too. It sounds like you are having a lot of pain and yes that could be fibro. Often though, they do put you on antidepressants to help relieve the pain and it also makes pain meds work better.

I hope that you can find a good pain management doctor. Don't give up. This will work out. Keep your chin up.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/16/2009 7:04 AM (GMT -7)   

Hi,

So sorry for all the problems you are going thru right now. I found 2 links to doctors who treat Fibro and other similar pain disorders. Hopefully you might be able to find someone thru them. A good doctor who understands & treats Fibro makes a big difference in the care you receive.

Just hang in there, you are not alone. There are many of us here that are going thru similar things. There is always someone here willing to talk, give advice, or support. I am glad you found our Fibro Family!

Please keep us updated on finding a doctor and I wish you well. Hope things will get better for you! Here are the 2 sites I found.

www.co-cure.org/USA_WA.html

www.med-help.net/Fibromyalgia-Doctors.html

Hang in there. Things will get better!

Hugs!!!   Margie

 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


3eyesofwisdom
Regular Member


Date Joined Sep 2008
Total Posts : 27
   Posted 1/16/2009 9:31 AM (GMT -7)   
The thing is I was very positive about life when this happened. I had a job and just finished my degree in music. I also got married. I felt like evrything was going up and just gonna stay there. I thought i would have a kid. I was on psych meds when this all happened. I am on lithium now. The only thing a therapist would do is give me someone to tell how horrible everything is to. Yes I could vent. But thats about it. Ten years in a mental health system and i know therapists that are good are very hard to come by. It is hard enough trying to find a doc that is not a moron, let alone a therapist who listens. one therapist wouldn't let me come back to see her supposively because my suicide attempt in the past. I thought this ridiculous. One therapist i went to i told that i was upset because i am sick and cant do what i used to. I cant sing, play piano or guitar, unless my body will let me. My hand gets stiff and i can barely type let alone play music. thn she says im depressed because i cant get a job. She didnt listen. when i told her i had jealousy issues nd ask for help with them. she tol d me if i kept being jealous my hubby would leave me. Thats not help at all. I asked for ways to look at things differently so i wouldn't get jealous or cognitive exercises to do and she said "just don't be jealous." Well if all therapists were that good they would tell someone depressed, just dont be depressed. I do not ned the stress of finding a competant mental health person as well as a doctor. And everytime they have an intake you have to go through every bad thing in your life. You have to tell them you were raped, and youseem to have memories about someone trying to murder you, and all the abuse and crap. Like that isn't stressful. and then you have to hear that they cannot see you because they can't treat one thing you have. That is whay i am not up for a therapist. In my experience, books are the bettter therapist. They teach you, in less time and money, what takes therapists years to get around to. Although you need to find the right books.
I only went on lithium because the neighbors are so loud that if i am not in pain and could try to sleep i cant. It is not an exxageration. My hubby thought the roof caved in last week because of one of the loud crashes they made. They stress him and me out. managemtn wont fix anything in the house. And the docotrs seriously won't run any tests. I had to ask several times to get to go to the gi before they actually did it. they tell me the ct scn of my stomach is normal so nothing is wrong and push therapy. ct does not show everything. Things can still be wrong. I was only tested for one type of arthritis. the day i said my legs wer always in pain, she just said i dont know what that is,take a vitamin. What kind of doctor doesn't check your symptoms out and just tells you to take a vitamin? A bad one. she doesnt even remember prescribing the meds she did. The thing is no one will even run a test because of my mental health diagnoses. I dont like mental health meds. they make me about as smart as a rock. When you go to the doc with a flu they dont send you to a therapist so why when i go with more serious symptoms they do? And she didn't even recommend an mri. she basically said if i dont have arthritis then it is all in my head. at this rate if it is ms and not fibro i will be dead much quicker, becuase i wont be able to get the therapy to help slow the progression.
I think the medical society is ridiculous at this point. when they list depression as a symptom for a chronic or deadly disease. That to me is not a symptom. Depression is caused by knowing you are giong to die or be in pain the rest of your life.
I took a psychology course when i was in college. they basically said everyone was messed up in one way or another. To me that means no one is messed up. I am not saying people don't get depressed or hear voices. I am saying most people would probably be better if they actually had a different treatment. If they had an optomism program, instead of depression 101. The greatest help in all my years in therapy was learning to change my mind, or perspective. No one will let me get healthy either way, because of my past. they say i will always need meds adn i will always be messed up. It is everyone working together to make sure that is the truth. But when someone wont do an mri because you have a mental illness, oh and i am just upset because i am mentally ill thy say, not because no one will help me and i am in pain and cant even do laundry sometimes. Thats like telling someone who runs and gets there legs cut off that they are only depressed because of mental illness. It is ridiculous. I don't believe in my mental illness anymore. I believe i get upset, angry and depressed. I know if i change my thoughts onmany things i will get better and not experience it so muchh. But having doctors that want to send you straight to a shrink and not test your body is making me mad.The only reason i need mental health is becuse of my doctors making me upset and making my body symptoms worse.
I do have an appt on monday for a therapist. I finally got one. If he is not good i will not try for a long time again. I do not like intakes. I got him to be able to vent about the doctors and then the darn doctors cant tell me it is because of my mental illness and being unmedicated. I am already medicated, so the therpist is for my proof of sanity i guess, and to vent. adn if he is real good he may know a doc who can help. Westren medicine has the mind body connection way messed up. It is important to treat both, but they are not. they only want to treat my mind. And the way they treat the mind is also insane. I could go on and on but i wont.
Thank you for everyone who posted links. I will be checking them out. And the muscles in the holes after death my mom told me about because she has fibro. I want to do some research and see about it for sure. But by the doctors response she either meant she wasn't that stupid to believe that or that she knew that because she was educated. So I would have to loook. I have done a lot of reading on diseases, and health, but mostly just symptoms and tests. But anyways I am gonna go for now.

acpj
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/16/2010 12:37 AM (GMT -7)   

So I'm in Spokane, & as you all know there isn't  crap for docs that any insurance may cover...@ least ones that fibro is concerned.  ~ most are holistic~///(if u do know...please let me know). Seen a lawyer, regarding soc sec which I so do not wish to go that route, but if you have fibro, you all know how debilitating it is! So here I sit...so darn depressed~oh...how they love to just say "your just depressed". Of course they couldn't believe, or admit they believe in fibro...that'd ruin their credentials! As I explained to many docs...I wasn't depressed until this wacky insane stuff started happening, & by the time they figured out what was going on with me...I was depressed. I tried to explain that because of the pain, & the wierd memory/cog facts happened...I was "ok"...not depressed! I tried to explain that I TRULY don't want to be on soc sec/ssi....I have too many things I "want " to look forward to, & better things I could do with my time. They just don't friggin get it, & even if they don't...their too afraid to admit (regarding credentials). I feel like telling them ...this is why so many peeps with fibro are depressed, &/or commit suicide!!! No one (but a rare few...I haven't found yet?!) wants to stick up for us. They have too much at stake, & we're not worth it. Of course, if I actually said anything like "suicidal", then they'd just say.."see...told ya it's depression"! The laywer I seen said that no judges (especially in Spokane) like to "deal" with fibro. I wasn't too surprised considering it's hard to find a doc, let a known a judge who believes in it. Especially since my doc is "non-supportive". He wouldn't take my case, even though I have enough other aliments to qaulify for soc sec/ssi. Now that's bad...just cause fibro is attached. Like I said...wasn't surprised, but they were my last hope. Don't know what I'll do now..maybe get a job suffering as I did before. Maybe I'll win the lotto & get good treatment & help! Good luck to all, I wish you well.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 12/16/2010 12:05 PM (GMT -7)   
Clueless doctors!
DX: Fibromyalgia, Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS, Pituitary Glandular problems!

Note * Florence Nightingale, Elizabeth Barret Browning and Charles Darwin were CFS/ME/Fibromyalgia sufferers...
From Living with M.E. By Dr Charles Shepherd Page 11 Line 11...
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