Joints and muscles hurt so bad today and absolutely no energy...

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QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 1/16/2009 1:27 PM (GMT -7)   
I am sitting here huddled by my space heater and hurting like hell.  I woke up feeling like someone snapped my back in half and it just got worse after slowly climbing out of bed.  Took me an hour just to make it downstairs turn the heat on for the darn parrott,ya I know she hates me but still deserves to be warm.  I feel like if there were just one day of sunshine it would help so much and back to 30 degrees today and I have to go out.  Went to the doctor with my mom yesterday and shes having trouble with her legs,very red and swollen and she has a history of phlebitis and blood clots.  Her coumidin levels were way off too and so they are having her triple up on her oral meds and I have to give her shots in her belly daily for 5 days with more blood thinner.  She is also going in to have a doppler test to check for blood clots in her legs.  So besides feeling like crap I am very worried about her too.  She was like a small child yesterday at the doctors and didnt even seem to notice when the doctor gave me all her paperwork and was talking to me about her care.  Normally she would have been going heyyyyyy buddy Im right here ya know.  She just seemed so very old and beaten down,it took forever for us to even get her into the truck we were in and that was with a stool and 2 of us helping her.  Makes me realize just how little time I might have left with her.  I just feel so deeply depressed today cant stop crying and I know that not making my pain any better and now I just got a call that Jays coming home 3 hours early and I feel like I will bum him out and bring him down not to mention so much for the dinner I had planned.  I hate it.  I hate this darned disease and I hate hurting from every direction and I hate not having the energy to barely go to the bathroom let alone take care of all the things that need me to take care of,it just goes on and on and I want just one good day is that too much to ask?  I guess so because its not coming.  Thanx for letting me gripe..........
 
Karen


Karen
 
Mom of one gramma to 4 lover to One
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 

Post Edited (QTKaren) : 1/16/2009 1:30:28 PM (GMT-7)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/16/2009 2:26 PM (GMT -7)   
Karen  your facing something no one wants to face with their parents. I didn't get to see either of my parents grow old, my dad died of cancer at 56 and my mother died 9 yrs ago at a healthy 75 from a pulmonary embolism after surgery on a broken arm she got in a fall. On Jan 10th 2000 when I left the hospital to go home I never thought for a second I would never see her alive again but five hours later she was gone. Try not to be depressed about your mother's time on earth coming to an end but enjoy the time she has left with her. None of us know when we wake up each morning who may be taken from us that day and they don't have to be old to be taken. I learned at an early age to enjoy the people in my life every chance I get and to treat people as if it is the last time I may see them cause you just don't know. I never pass up a chance to give someone a hug and tell them I love them.
 
Why do you worry about hiding your feelings from Jay??? If you paste on a fake smile and fix a meal you really don't feel like fixing is that being honest with your husband??? Tell him you feel like crap and your fixing a simple meal and the two of you can spend the evening watching a movie to take your mind off the pain. I didn't get this far in a marriage by being someone I'm not. I don't have to tell Ken how I'm feeling, if I'm up and working on something he knows I'm having a good day, if I'm on the couch he knows I'm either tired or hurting. We say so much to each other without opening our mouths and saying a word.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/16/2009 3:16 PM (GMT -7)   

QT, I am sorry you are going through a rough patch.. I too have not been up to doing much, am in unbearable pain, and haven't been able to sleep till the wee hours of the morning because the aches get so bad. Ughh, I am with you when you say this disease is awful.. especially since I am only 21 years old!!!!! Every day at some point I stop and think "how will I be years from now if I feel this bad at 21?"

I am soo sorry about your mother and I don't blame you for worrying or even being depressed.. thats normal! But I agree with Marlee that it isn't going to make things any better to make a huge dinner for you and your husband if you are feeling this lowsy. Let him know how you are feeling! Spend a relaxing night with him!!

I really hope that tomorrow brings relief and happiness to you.

-Jenna

_______________________________________________________________

21 years old

Fibromyalgia, Bipolar Disorder, OCD, Irrational fears


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/16/2009 9:38 PM (GMT -7)   
Im so sorry for your pain and the added pressure with your mum.I remember days I would get up and vomit from pain then sit there all day unable to do anything but cry, luckily I got put onto a pain spec who gave me some decent pain killers and now its not so bad but I still remember how bad it was and im scared when my meds no longer work I will go back to it.  It use to be every day I hope yours isnt like that and that it is just a bad patch. I couldnt do anything, not dress, no housework, no dinner and no on supported me.  sue2z cry cry
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/17/2009 8:05 AM (GMT -7)   

Hi Karen-

Trying to maintain a positive attitude here too, with the winter being SO bad I am in lots more pain and now my right knee is hurting like all get out- have no clue what I did to it! I did start walking at the mall and you would think that would be good for my body, but the knee is telling me a different story!

Sorry to hear about your mom, and it sounds like they are on top of things. Let us know how she is doing though OK?

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/17/2009 11:42 AM (GMT -7)   

Hi Karen,

I woke up this morning feeling pretty bad. Took my medication and went back to bed. I am now feeling a bit better. At least I'm up and moving.

I am so sorry about your mother. It reminds me of when I took care of my dad. It hit me one day that I didn't have much time left and I ended up crying & so upset. The next day I tried to pull myself together and be strong for dad. I knew there was nothing I could do to change anything, so decided to try and enjoy what time we had left and be strong for him.

You can never change things, they will happen & we just have to adjust and be strong. Marlee is right, you need to let your hubby know how you feel. You are making yourself sick by pushing when you should be resting. Your hubby will understand. My dh makes supper more than I do anymore. He knows that most days I'm not up to it. It will really help you to start being honest with him about the way you feel.

I hope things get better for you and you can be strong for yourself. Just know that things will get better. We always have our good times and hard times, but it's how we get thru them that matters. Take care!

Hugs!!! Margie 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 1/18/2009 11:57 AM (GMT -7)   
Thanx ladies.  Well Jayson just hauled my butt outta bed,literaly so things are still rough but together we are making it work.  He does some stuff I do some stuff but he mostly stays away from any cooking lol but the meals have been pretty simple.  And there is sunshine today!!!!  that cheered me up.  Maybe now we can get that darn 8 foot tall inflatable dried and out of the yard! lol  As for my mom we finally got the injectable meds for her and I have started her shots yesterday.  It was pretty scarey giving my mom a shot on the stomach but I did it and without hesitation which I was afraid of as that would hurt her more.  She said shes proud to have me as her private nurse.  Gotta go, trying to get myself downstairs and it might take some doing today.  Thanx for all the support and love.
 
Hugs,
Karen
Karen
 
Mom of one gramma to 4 lover to One
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/18/2009 12:40 PM (GMT -7)   

Karen,

Glad you got some sun back in your life! Jason reminds me of my dh. He would drag me out of bed after awhile and get me going. It does seem to help too! At least you're up and moving and hopefully you will see less pain for some time!

You're mom is proud of you for a reason! To be able to do what you are doing for her is great. It is funny what we can set our mind to if it is someone we love. She probably feels so much better that you are there for her. My dad was uncomfortable around all of the nurses and felt better after we moved him in with us and I started taking care of him.

I hope things continue to look up for you and that your mom does better.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/18/2009 4:08 PM (GMT -7)   
Dear Karen: When I read the top post on this thread, I thought, that is exactly how I feel. It was womderfully articulated, hit the nail right on the head. Amen. I had this crazy thought this evening while cooking dinner. We are living from Disabilty check to disability check, as I struggle with exactly what you described at the top. Every once in a while, though I get a hiatus. Aday or maybe 2 in a row where I wake up only a little sore, I try to hold out as long as possible w/o pain meds, but rarely get longer than 1/2 hour, before I need the meds. So, there I was fixing pancakes out of muffin mix, surprizingly good, by the way, just add an egg and double the liquid ratio. My son, who is trying to help me through this really rough time, but also, had no where else to go, said something about chlorphyll. It causes plants to grow. Since I believe my body hurts so bad because I don't heal , ie have no growth hormone, therefore a pulled muscle stays pulled. Maybe, just maybe, I will take a look at this chlorophyll business. Warning: Don't try this at home./ Worth researching. There are only 2 ways to cope, vent and complain being the first, it reduces our anxiety, gets it off our chest, so to say; and the other way to cope is to take action. I'm ready to find some answers. I'm glad Jupiter is clear in Southwestern sky, like a diamond, telling us of better days ahead. I am getting  a hot bath. Good Night and Good Luck.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/18/2009 4:39 PM (GMT -7)   
Dear Karen,

I lived for 5 years taking care of my mother and watching her become like my child. Yes, the roles reversed and it was just something to live through. She had 52 fractures in her body at her death, terrible osteoporosis. Her skin became like rice paper. I will tell you I would not change it now, I was strong and did what I had to do. You are too and you will get through this. Fortunately this dreaded disease hit me right as she died and I was pretty strong most of my time with her. I am convinced I just got to the point my body broke through with pain, could no longer handle the emotion.

I am thinking about you.

Patsie

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/19/2009 3:08 AM (GMT -7)   
Thank-you Patsie: I looked after my Dad until his aggression became unmanagable. Dad's mother, we kept her home right up until the end. She died with me beside her. Dad, he wandered around at night and starting coming into my bedroom, I could not keep up. With this disease proper sleep is the key, and sleeping with one eye open and one foot on the floor doesn't qualify.I didn't like to have to seek a LTC facility, but he left me, or I should say, the disease left me with no other options. However, Dad was a ragealcoholic all his life. He got some kind of reinforcement through yelling at people, mostly women, mostly his wives. As he neared the point where he had to go to emergency, he was mistaking me for his curent wife (in a nursing home), who had spent all his money, sold almost everything to gamble. And Lost.  

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/19/2009 4:47 AM (GMT -7)   
Hi Tyno,

Off subject but tell me more about chlorophyll please.

I feel very sad for your dad and so understand you. You have to be quite a gal...

Patsie

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/19/2009 9:46 AM (GMT -7)   
Dear Patsie: Is chlorophyll a growth hormone for plants? If so, and we know it can't be bad cause all the leafy green veggies have it in abundance, and since there is a link between lack of growth hormone in Fibromites, therefore, every injury, pulled muscle, ligament, etc. stays pulled, that is new cells are not created to heal those sprains and strains, isn't it possible that may-be, just maybe, instead of Steroids which are animal growth hormones, chlorophyll might be a vegetable/plant growth hormone. I could be way off here but there is no lack of information saying eat lots of green leafy stuff like broccoli, parsley, leaf lettuce. I am going to see if anyone has it in a more concentrated form like a tincture, or tablet. It surely cannot hurt and may help. I'll let you know what I find out.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/19/2009 9:58 AM (GMT -7)   
Tyno, that does make sense to me. I am going to research it too :) Patsie

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/19/2009 10:02 AM (GMT -7)   
Really!?(runs outside to chew on a magnolia tree)

Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/19/2009 1:30 PM (GMT -7)   
If you google chlorophyll on Web MD, you will find it is available in Barley grass and wheat grass, or you can sprout your own like bean sprouts.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/19/2009 2:53 PM (GMT -7)   
Karen,
I'm glad you have Jay and the sunshine to help you through this. One cannot overestimate the power of a good friend when things are falling apart all around us. I hope you feel better physically, so you don't have to battle both the physical and emotional stuff at the same time.
Gentle hugs,
Sue
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