HORRIBLE FLARE! I CAN'T TAKE THIS! NEED KIND WORDS.

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JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/17/2009 5:28 AM (GMT -7)   
Hi!!!
 
It is 7:15 a.m. and I've barely slept yet, my insomnia's been horrible, on and off for about a month now. I did sleep a little tonight - I plan on trying to get some more rest once I am done with this here. I just need to hear kind words telling me that things will get better (even though I am only 21 years old - can't imagine how I will be 20-30 years from now!!) I keep going through flares on and off and this one in particular started Wednesday (it seems ever since I cleaned the heck out of my apartment wednesday, everywhere on my body has been so achy).. My balance has really been off and the weakness in my legs has been getting bad, making it difficult to walk around normally and freely (please tell me it is just a Fibro flare and not anything else going on!) I've been having shooting pain in my temples, horrible tension headaches, eye-ball pain/discomfort along with a terrible ITCH in my eyes (still plan on getting tested for Sjogren's because of my excessive, chronic dryness of all mucous membranes, especially the eyes). And from my mouth also being so dry I have sores on the inside of my cheeks and on my tongue! (the one on my tongue is PAINFUL - I think it may be because I tend to scratch my tongue with my teeth because I get a bad itch on it often!!!!!!!) I've had severe shooting, stabbing, tearing pains, and burning/cold sensations in all muscles and some joints. My elbows are always giving me lots of trouble, especially the left (my left side always seems to be the victim of a lot of discomfort). My skin is extremely sensitive to the touch or if I bump into something (which I do quite often!), especially my ribs/sides are in horrible pain. My blurry vision comes and goes and has been very bad at times! Loud noises and voices are just killing me lately!!!!!!! Or anything even relatively loud-ish bothers me. My right foot tends to get numb now quite often (which isn't painful obviously but more annoying than anything!!!!) Pelvic pain has been just god awful. On top of everything, my OCD's been bad, I've been driving myself crazy because of my perfectionism and compulsively doing everything over and over and over again. AND I've been manic for a while now.. doesn't seem to want to let up.
 
Now you're all going to think I am crazy but I do not take medications for ANYTHING anymore, I did for my Bipolar, depression, and hallucinations (due to the Bipolar) but now I am on NOTHING at all because I never wanted to be in the first place... I believe more in natural remedies..I meditate every day which does help a lot to certain degree. I am starting soon going to the Y often to swim. I HAVE tried muscle relaxers in the past because of being so desperate, no relief from any of them. So I am on nothing whatsoever to help me with these flares, and this one seems to be the worse I've had so far. I just need a few kind words, please, anything. I was just crying so much yesterday which I know makes it WORSE but I felt there wasn't much else I could do but sit and bawl to my husband.
 
My main concern of course is my gait - my walking, it is declining pretty quickly now it seems. My heels hurt way way too much when I do walk or stand and my legs are weak weak weak!!.. My balance is horrible, needing to always hold on to something............
 
I thank you all so much for reading this blob of mess lol and I know you really care.. thanks so much! I just needed to vent and write into words exactly what is going on with my body.. Hope everyone is well!
 
xoxo
-Jenna
 
____________________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/17/2009 6:59 AM (GMT -7)   

I am so sorry about the ordeal you are going through at the moment.  My first suggestion is that you might consider going back on some of your medications, as much as you don't want to and I completely understand that.  My kids forced me to get something for my anxiety and pain a year ago.  I did not realize how upsetting it was for THEM to see me in the condition I was in.  Up until that point I was taking nothing except Advil, and I was sitting in a chair crying for hours on end.  I think it is difficult for people who love us to see us suffer.

As far as your symptoms go...they certainly resemble many of the symptoms I experience.  I am dragging my right leg at the moment...my balance is off and my hip throbs like a tooth ache.  My legs tingle and 'crawl' 24/7.  This all happened after my I had my two month old grand daughter for two weeks and just was not sensible about walking her, picking her up from the crib...I felt almost normal when she was here but a couple of days after she went back to Atlanta with her mother I collapsed and have been in a flare ever since (she came the end of October).  I think most of us on the forum tend to over-do when we have a few 'good days' and try to accomplish a months worth of work...then we pay the price. 

Think about going back on your meds and see how you feel.  You might be surprised!

 

Feel better...and my New Years resolution was to never ever again Google my symptoms.  It's the Kiss of Death for those of us who suffer from health anxiety along with the fibro!

hugs

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/17/2009 7:00 AM (GMT -7)   
Jenna,
Please get some serious rest. I know all of this is scary and painful. Please try to at least take something for the pain. Above all you need some rest to decrease your anxiety.
Remember that we all care about you very much and hope that you'll feel better soon.
Gentle warm hugs,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 1/17/2009 8:02 AM (GMT -7)   
You really do need to get some rest. Have you tried taking a hot bath and reading a book to help you relax a bit. Sometimes it helps me. Pain is definitely not fun to deal with. I hope you start feeling better soon.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram, flexeril, and peroxicam, and Tylenol.


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/17/2009 10:30 AM (GMT -7)   
jenna,

i am so sorry you're going through such a rough time right now! i agree that you really need some rest (even though i know how hard it can be to get that rest we need!) i wish i had more to add or better advice, but please know i'm here and i understand and i care {{{{{{{{{{{{{hugs}}}}}}}}}}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/17/2009 11:04 AM (GMT -7)   
Jenna,

I know it is so hard to hear, but rest is definately key. I was like you and didn't want to take any medication. However, I do take a small dose of trazodone (an anti-depressant) before bed. That has REALLY helped the sleep that I get. I have also noticed that my flares are less because I get better sleep. I notice the days where I have been run down and my sleep suffers because I cramped too much in the day. Anyway, my point is maybe you should take something, even if it is only something small. I do like the idea of natural medicine/therapy as well. I have really gotten into yoga and watching what chemicals I put in my body and what I eat and that has REALLY made a difference.

Oh, I meant to also say that your shoes might make a difference with the heal thing. I know this sounds crazy (but I am a shoe fanatic) and your shoes really make a difference. My mom didn't believe me growing up, but she does now. She used to want to buy the cute 20 dollar pairs because she could get 4 for the price of my one. Lol. Anyway, she's now had surgery on both of her big toes and came to me for shoe advice the last few pairs of shoes because her 20 dollar ones weren't doing it anymore. SO, I know they are a little pricey, but they are worth it. If you go to the right shoe store, they will look at how you walk and you can tell them what you have and they fit your feet, not try to sell you whats hip. My leg and foot pain have decreased since starting to pay attention to what my feet were trying to tell me. Also, if you are favoring your feet, it throws off your balance and you can begin experiencing more knee and back pain because of poor walking posture.

Hope this helps! You cn get through this! :-D Get some rest and maybe some hot chocolate and a good magazine. Chat soon! Let us know how it's going!!

Aimee
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/17/2009 11:19 AM (GMT -7)   

Jenna,

I have trouble with my heels. Sometimes I cannot even touch them because it is too painful. I have been wearing slippers for a month now because of swelling and also I can't put anything against my heels. I also walk funny! I feel as if I have no strength in my legs and I am terrible at stairs because my knees are getting bad!

Anyway, wanted to let you know that you are not alone. I wish you would think about getting something from your doctor for pain. It really helps so that you can at least rest & relax a bit. I don't know how you do it! I am on painkillers and sometimes that isn't enough! I hope you are able to get some rest and relief.

Sometimes a shower or heating pad will help. I hope things get better for you.  Hang in there!

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 1/17/2009 11:27 AM (GMT -7)   
I agree with all of the above.  You probably need to speak to your doctor about all of your problems and he/she can give you something that will help with the pain.  You have to think about quality of life.  I don't like taking all of the ibuprofen and Tylenol that I do, but I want some quality of life.  There is no joy for me to avoid medications and be so miserable.  By getting some help, I am enjoying my life and living it pretty much the way I want to.  But I do pace myself and don't clean my house all in one day.  That's a sure fire way to get a flare!
 
Please speak to  your doctor.  I hate to think of you being so miserable.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/17/2009 11:28 AM (GMT -7)   

Dear Jenna: I am writing for the third time today, Vista, my operating system ate two posts already. So, you are not taking anything for BiPolar, Fibromyalgia, and OTC. Not to mention " unrealistic fears". That is why I have been seeing a psychiatrist for most of my life to help me sort out what is realistic and what is not realistic. I also am a Fibromite with BiPolar disorder, as is most of my family on Maternal side. Without a trustworthy objective observer, I would not know. I know I suffered a lot as a child and youth, thinking I wasn't good enough, didn't fit in, I thought people were making fun of me, and I was scared to go to school. It took years of counselling and yes, some medication, for me to get a handle on when a fear was realistic or not. Is there an objective observer, like friends or parents who tell you they are "unrealistic".?  I ask that because as a BiPolar person myself, and having it through-out my entire family, often, the fear may be rooted in reality or it may not be. Years later school chums told me they thought I was pretty cool, back then, but nonetheless, the signals I got were rejection.

The pain issue (associated with Fibro) can be treated with a minimum of medication. I am not telling you what to do, but I hurt just thinking you are weathering today, without comfort from the Fibro Flare. Someone mentioned a "warm bath," I like mine a bit on the hot side, epson salts (or bath crystals) will sometimes soak away some of the pain.

One big thing I have learned is that if I don't stop and take rest periods through-out the day, if I over do it, I will pay the price in pain. So, I do try not to over do it.I am sorry you feel so awful. I wrap myself in an electric blanket, get my "bed buddy" heated up, and put those heat patches, like you put in mittens, all over my body, wherever it hurts. I end up looking like a bulletin board.

Please consider getting some medication for the pain, something for the BiPolar. I prefer some of the older, time tested meds, like valium. It is true for me anyway, that all my stress congeals in certain vulnerable muscles in my body. Not the same, everyday, plus muscle spasms. The valium, when I have it (Doc gives me a limited ammt.), takes away some pain by relaxing the muscles, takes away the irritability I feel from BiPolar, and helps with the OTC and fear. 


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 1/17/2009 12:55 PM (GMT -7)   
Jenna, SOFT HUGS for ya first!

I can relate to a lot of the symptoms you have and oh yes it is Fibro related. Like others I think you should revisit you doctor and go over your concerns about pain and wanting to be all natural in healing but to function in today's world we sometimes need a different approach. Maybe a little of both?

Your feet may need more attention. I could barely stand on my feet at one point so I changed my shoes and bought some good supportive shoes. I am normally just a flip-flop kinda of girl but as soon as I changed them up to some real supportive (they are cute) sandals and a pair of walking shoes(slip on too!) it made a tremendous difference. I really miss wearing my high heels too but my feet and knees are very thankful.

You are NOT alone hun, I am sorry your having such an awful time right know. I hope the much needed rest your body is screamin' for, you get today.....Sending you lots of SOFT quiet HUGS your way.

Lori :-)
 


Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 1/17/2009 2:41 PM (GMT -7)   
I couldn't sleep for a week just recently, I had increased sound and light sensitivities and I thought I was going crazy.

You said you're not taking any meds for anything? - My last bout of insomnia was brought on by medication changes, I have to take amytriptilne to be able to sleep since I don't seem to have enough seritonin in my system to facilitate a proper sleep cycle, and I take Venalfaxine to stop my body from metabolizing the seritonin and if I don't... I do not sleep.

I know you're tired of taking meds... (trust me I am too! I'm 20! Why do I need to take so many pills just to feel normal?) but be careful (I'm not trying to be judgmental... I just know that I struggled with the same thing a couple months ago) some meds actually help.

Rest is the most important thing you can get. I even have some heavier sleeping meds for when my insomnia gets bad. I only take them when I feel like I'm at my wits end - if you don't get sleep... your body can not rest and if your body doesn't rest it's weaker to be able to handle the stimuli that are causing you discomfort.

Awww though *hug*

I've been there... take care.

Try a warm bath and calming music... that seems to help for me
Diagnosed with Fibro - October 2008

Venlafaxine 70mg/Armitriptyline 40mg to help me sleep and anxiety

Ativan... when things get real bad.

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