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Denial~it ain't just a river!
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 1/17/2009 9:55 PM (GMT -7)   
Hi, I'm actually a little suprised to find myself posting on a forum, I'm usually not one for internet chatting, but something just sort of drew me in here, so, thanks for being here!  I haven't been officially diagnosed yet, but I'm pretty sure that my instincts are right. 
 
Ironically enough, the way that I learned about Fibromyalgia was from my sister in law who I didn't believe really had it - thought she was just addicted to pills. (Turns out I was right, but that's a whole other topic).
 
I had always felt like there was something just not right with my body.  I can't remember ever feeling "good."   I mean, I had good days and bad days like anyone else, but on the whole I never felt completely fine... there was always some kind of ache or pain of feeling of discomfort somewhere in my body for as long as I can remember.  My body would suddenly feel like it was coming down with teh flu - the achy bones, sensitivity to touch, tiredness and just plain BLAH feeling, but there was never anything wrong in bloodwork or Dr exams.  This went away for a while and I had pretty much forgotten about it until recently.
 
about 4 months ago I slipped and fell pretty good.  I am seeing a few Dr's and my pain mgmt dr for this diagnosed me with severe whiplash injuries.  I have gone for the whole series of  spinal injections, months of physical therapy and chiropractor, pain medications, teh works - but it seems to be getting worse instead of better.  I'm ALWAYS tired and I can never seem to sleep through the night.  when I do fall asleep, I wake up really itchy or sweaty or from being so uncomfortable and painful.  My body is so sensitive I can hardly stand it - my kids (all under 4) touch me or grab at me to get my attention and it feels like I was punched my a full grown large man!  It's gotten so bad some days that I can't wear my coat because it feels like I am carrying around a ton of bricks on my shoulders.  I absolutely can't wear a bra because the straps weigh me down and hurt like hell. 
My hands and feet go numb and have that pins and needles sensation every morning.   At first it was just my upper body, but now it is hurting all over - I feel like a 90 yr old woman when I walk and I can't cary my 1 yr old because my arm is so weak.
 
So, back to where I learned about Fibro - My SIL developed an addiction to percoset and last year she decided to detox.  She went to a dr, got ceboxin but she aparantly wasn't ready.  She began complaining CONSTANTLY that she needed the percosets because she was in pain, not because she was addicted so she doctor shopped until she found one who she could convince.  She went for MRI's, teh works nd nothing substantial showed up so the Dr said that she may have Fibromyalgia triggered by depression - as soon as she learned what it was she began saying taht she had all the symptoms, totally psychosomatic, I know.  Anyway, through all this, I tried to be supportive and listen to her go on about this.  I'll admit that because of the way she presented Fibromyalgia to me, I thought that it was an imaginary disease, but it turned out that the disease is real, she just didn't have it.  Once I started having all of these symptoms (and some others) I began remembering the research that I did with her on Fibro when she was misdiagnosed and they really hit home for me.  It makes so much sense and my Dr's are now monitering me for it and running all kinds of tests. 
 
Ahh... sorry about that ramble!!! It's the first time that I admitted to something outside of my head that this is really a problem with me, I kind of feel like I was in denial about it until now... I didn't expect all of that to come out when I started writing.
Thanks for being here to vent to and I look forward to being able to offer the same kind of support to all of you!
 

Denial~it ain't just a river!
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 1/17/2009 10:43 PM (GMT -7)   
Lol, I just thought of my mother's nick name for me - ever since I was very little, she called me her little defect depot! So, with that in mind, I guess I really wasn't the only one who knoticed that there was something not right with my body - that just goes to show that Mom's really do know best!!

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/17/2009 10:48 PM (GMT -7)   

Welcome Believer!

Glad you  joined our fibro family! No need to feel bad for rambling on, that's what we do here and there is always someone who will listen and give support. There is some great information in the 2nd thread from the top "Fibro 101". It has all kinds of good information and advice.

So sorry that you have been in pain for so long, but now maybe you'll have a name for it and get some help with the pain. I waited years to get diagnosed too. I thought everything was really in my head after so many years of problems. I was actually happy to get diagnosed, to at least learn what had been bothering me all those years.

Feel free to ramble anytime or just jump in anywhere. Hope to hear from you again soon and that you get to feeling better!

Hugs!!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 1/18/2009 7:38 AM (GMT -7)   
Welcome, I am new to the board too. I too like you don't go for the internet chat, but this forum is wonderful.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram, flexeril, and peroxicam, and Tylenol.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/18/2009 10:03 AM (GMT -7)   

Hi, and welcome again.  I just welcomed you on another of your threads!  We are here to help all we can and we do have a great bunch of people here that really care about one another.  So, you have come to a good place! 

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/18/2009 12:41 PM (GMT -7)   
Hello, I just answered to another one of your threads, but I just wanted to officially welcome you... so welcome, stay awhile, and we're so glad you have found us!! :-)
 
xoxo
 
_________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/18/2009 1:49 PM (GMT -7)   

Welcome......(oh crap..the name...uuhh..a river..Mississip..Ohio..no..ganges..Nillee..Nile!)Hey Denile!

Pleased to meet you and as you can see,just a tad foggy in these parts.I've been posting here a short time,but I really must admit,these folks are a lifeline.Every day,they validate for me that I'm not crazy or a hypochondriac or drug additc.(What the devil is with my spelling today?)See....Fibro effects your body in so many baffleing and painful ways,its almost like a gypsy curse.(no offence to the gypsys..)But anyhoo..welcome to the family! turn


Fibro,Heart Disease,Diabetes other assorted.
 
      She Hath Done Wonderous Naughty


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/19/2009 9:33 AM (GMT -7)   
Hi Denial and welcome. One of the reasons I never thought about having fibro til my GP dxd me was cause I have a SIL that says she has it and she sure doesn't have the fatigue and everything I have. As it turns out she dxd herself and fibro is what she calls her aches and pains of osteo arthritis. She doesn't use it to get drugs but it still upsets me that she compares her aches and pains to how I feel cause she doesn't have a clue how I feel. I have osteo arthritis too and yes it is painful but there is so much more to fibro than the pain. People with fibro are still fighting to get others to understand this DD so when there are those out there dxing themselves or using it to get drugs it is upsetting.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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