A LETTER FROM FIBROMYALGIA

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springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/18/2009 12:59 PM (GMT -7)   
I posted this quite a while back & thought it would be something for our new members to read or just anyone who missed it the first time around. It brought tears to my eyes the first time I read it because I was struggling with finding out what was wrong with me and trying to convince my family that it was real. I hope you find it as interesting and touching as I did.
 
Hugs!!  Margie
 
 
 
A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I'm an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.)Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you'll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You'll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you're just having a bad day", or "Well, remember, you cant expect to do the things you used to do 20 years ago," not hearing that you said "20 DAYS ago"! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can't remember what you were going to say next!

In closing, you've probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People With Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I'm stuck to you like Velcro – and I expect we'll be together for the rest of your life.

Have a nice day!! (ROFL),

Fibromyalgia
 
Author Unknown
If you are the author and claim copyright to this writing please contact me with your claim
and I will attribute this work to you or remove it if required.

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/18/2009 6:11 PM (GMT -7)   
OMG, Margie, that did bring tears to my eyes cry
 
I'm going to save that to my computer if you don't mind... I'm so glad you shared this.
 
xoxo
 
_________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/18/2009 9:13 PM (GMT -7)   
ooohhhh-reading that makes me angry!! i want to kick fibro right in its snotty little butt!!

*ker-POW!* take THAT, fibro!
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/18/2009 9:18 PM (GMT -7)   
How very right you are. Its not right, if only we were diagnosed with something that existed maybe they would all treat us differently, in everyones mind what we have just isnt real  How very right your email is.  Its just not fair for all of us who willl have to fight for ever more...      sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/18/2009 10:43 PM (GMT -7)   

You're right Sue, but I just can't wait for the day when we will kick it's butt! I don't think it will always be this way. One day the doctor's will know more and I think people will also look at Fibro differently in time. I hope anyway.

One of the moderator's gave me a new way of looking at this letter one time. She wrote how we should stay positive and not let Fibro have the upper hand. We have to stay positive and know that some day it won't be like this. So now I do try to look at it that way, even though the letter still makes me wan't to cry!

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/19/2009 1:42 AM (GMT -7)   
I copied that letter as I think its a good thing to pass on to people around us in a half hearted way.  sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


eXcelon
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/19/2009 1:43 AM (GMT -7)   
I was very angry reading this, because the last part is true.  This will be with me for the rest of my life.  My sister has Fibro too so I can at least talk with her about what I may be feeling.  The letter describes a lot, but not the half of what it's done to me.
Pull Through, You Can Bear It, I Know You Can


Fibromyalgia, Sleep Apnea, Hypertension, IBS, Diabetes, Super Obeseity, Asthma, Anemia, Bi-Polar, Panic Attacks, Anxiety Attacks, High Triglycerides, Tachycardia......more but I can't remember.


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/19/2009 8:01 AM (GMT -7)   
Thanks for sharing, Margie.  Unfortunatly its too true!

Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 1/19/2009 8:24 AM (GMT -7)   
Thank you Margie, for sharing this letter.  I'm printing it up to show some of my family that thinks mine is in my head. 
 
It shows exactly how we feel.  So true!
 
God Bless!
Shannon
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Of all the things that I have lost, I miss my mind the most!!!!


FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/24/2009 9:46 AM (GMT -7)   
Hi Margie,

Thank you for sharing that with us. I've never heard it before. I plan on making copies and giving one to every family
member, friend, and email buddy I have.

I have one that stuck with me. I can't remember where I found it, but have had it printed and on my desk for
10 years. I'll start a new post with it... It's called "Me and My Shadow".

I love finding different ways that will describe what is going on within myself. People who have no idea really get a
sense of what I go through.

I pulled the Spoon Theory on my Mom last night.... she definitely got it. She got it before the spoons, but she liked
hearing the Spoon Theory too.

Tina

KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/24/2009 11:32 PM (GMT -7)   
THAT DIRTY COCKSUCKER FIBROMYALGIA!!! STP ****IN OVER MY FRIENDS YA darn ****** FOR I **** YOU UP, ***** lol jk

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/28/2009 3:09 AM (GMT -7)   
Bump for newbies

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/28/2009 4:12 AM (GMT -7)   
Hi Spring,

I have Osteoarthritis of the Spine and shoulders. (and other problems)

I always thought that this was the main cause of my debilitating pain. Now I hear,
Fibromyalgia. The doctor I saw today does not prescribe Opiod medication for
Fibromyalgia. (Fortunately, he is not my doctor) I see a Pain Doctor for my Pain
issues.

This is just so upsetting to me. This non believer has an office right down the
hall from my pain doctor. They talk or perhaps I'm just paranoid. NOT.

Life would be incredibly difficult without Opiod medication. It's very hard the way it
is. I don't drive or socialize. Going out to dinner is possible but not pleasurable.
I can sit through a movie because it hurts my back.

No one that I know understands except my husband. That is a true blessing, I
know. I just hate to put so much on him. I hate to take pleasures of life away
from him.

What do we do? What do we do? What do we do?

Pamela Neckpain
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.

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