Jenna...the first Rhuemy I went to pressed on all the trigger points and I levitated off the table. However, SHE did not believe in fibro and dx'd me with myofascial Pain syndrome, for lack of anything else to write on the form. "Go with God, have a nice day, peace be with you, and take two aspirin and call me in the morning." That was fifteen years ago. I have since found one that knows it is real. My advice is to not spend anymore money on these doctors that blow you off, and find one that will spend the time to go through ALL your symptoms and recommend a serious treatment plan. If you find a doctor that you have faith in and he/she thinks something else is going on along with the fibro, then at the very least you can deal with it with confidence. Rhuemy's that roll their eyes when you ask about fibro should have their licenses taken away.
Sorry you are having such a difficult time. My legs and arms have been weak at times also. There was a period of time when I couldn't even hold a pen to write a check.
hang in there and let us know what your doc says. Hopefully, she will recommend someone who can figure all this out for you.
Jenna, you wouldn't want my legs, I have the same problem. My legs would get very tired and weak and I would have to stop what I was doing. Last Feb I went to a boat show w/ my DH, we went up and down all the platforms to climb into boats we could never afford, but we could dream! As I was coming down one platform, my right knee felt as it were swinging backwards. I almost fell, I grabbed the ropes and my DH grabbed me. I went to my dr awhile after (I kept waiting to feel better ) she sent me for xrays. I have tremendous OA in knee, since then, I've had other xrays and I know I have OA thru out my entire body. Together with FMS and other 'fun' stuff, it is difficult to walk sometimes. But after PT and doing home exercises, I don't see a lot of inprovement, so I walk w/ a quad cane when I leave my house. My house is small, walls and/or furniture are near enough to grab, so I don't land on my butt. I still do the exercises and I take walks on level areas, on my cane.
This DD takes a lot out of you and I know you're feeling bad on many counts, but don't let it get the better of you. I have had this since I was a very young child, possibly a baby. And I have many yrs. on you. Pace yourself, but don't give up and don't count yourself out.
I have had drs. who did not believe, or didn't understand what FMS really is and what it effects. They can't really help you if they don't 'get it'. It would be best to look for someone who knows what it is and is willing to expand their learning while treating you. I wish you the best.
God bless. Alice.
I have had problems with weakness in my legs, my knees bother me the most and I usually have trouble with stairs. Thankfully I haven't fallen yet. If I did, I don't think I would be able to get up. I cannot lean on my knees because of the pain.
I would bring it up with Rheumy this week and see where she goes with it. If she still blows everything off then I would see if your regular doctor can refer you to a new Rheumatologist or you can start calling around and ask on the phone if they treat Fibro.
You need a Rheumy that is going to treat you and not one that only believes in certain things. It will make all the difference in your treatment. I wish you luck and don't forget to let us know how it goes.
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