Can't walk, sit, stand???

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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/19/2009 11:04 AM (GMT -7)   
I think many of us have this issue:  Walking too much is painful, so I use a cane when my feet and hips hurt, but that causes my arms and shoulders to hurt.  Sitting too long can be painful too.  So, walk awhile, sit awhile, and on and on you go.  How do you find a balance between them all that works for your body?  I don't think this makes sense cuz I am feeling foggy.   Does anyone know what I am trying to say? 
Sue

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/19/2009 11:43 AM (GMT -7)   
Hi, Sue.  I just wrote you a long post and then the site said I didn't have permission to post on this site!  GRRRR  So I'll try this again.
 
My first question is, do you take something for pain?  I use ibuprofen with food, Tylenol, and malic acid/magnesium for pain and fatigue.  I'm glad this combination works pretty good for me because I can alter the dosages depending on how I am feeling.  This gives me better control of my pain and I don't always have to take the maximum amount.
 
I try to keep my surroundings as comfortable as possible.  For example, right now I'm sitting on a stuffed leather chair that I have put a memory foam pillow in the seat.  I also have a pillow behind my back.  It's comfy!  LOL
 
My mattress is a pillow top mattress that I have a foam egg crate on top of and I have a fiber bed (like a feather bed but you can wash it) on top of the egg crate.  I also have a pillow that I put behind my back for support when I sleep on my side...the only way I can sleep.
 
I wear Birkenstock shoes because they have taken the pain out of my feet.  Before I started wearing them, I could barely walk and my husband would have to order a wheelchair to help me out to airline gates when we would travel.  Now, I can walk for several hours before I need to sit for a few minutes...primarily because I have some varicose veins...not because of my feet!
 
Sometimes I take short bus trips.  The bus seats kill my back, hips and shoulders.  I used to carry a small pillow to help with that but it was such a pain to lug around.  So I did a web search and found a lumbar support pillow that fits in a small pouch that I can carry in my purse.  When my back starts hurting, I take it out, blow it up (about 4-5 breaths) and voila! a lumbar support pillow for my comfort!
 
I do keep moving throughout the day.  That is important to me so I don't become too stiff.  Even if I only stretch for a minute or two, every little thing helps.
 
So, these are some of the ideas that I have come up with that help me to live the  life I want as comfortably as possible with fibro.  I'm never without pain but I have it controlled.  That's important.  Maybe some of these things would help you too.  I'm sure you will have some good ideas of your own.  Hope this helps!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/19/2009 1:11 PM (GMT -7)   
I know exactly what you mean Sue, you did make sense (to us Fibromites anyway) and it was a very good q to ask!!
 
I don't have an answer, although someone else has suggested to me to get better shoes, like Sherrine has to you.. I plan on it, to take the edge off my foot/toe pain. I don't know what to do though either when I can't sit long or stand long, or walk well... it's terrible. I'm curious as to what the others have to say!
 
Take care, Sue!
 
xoxo
 
____________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 1/19/2009 1:24 PM (GMT -7)   
I am fairly new to fibro so I haven't found my balance yet. I'm up I'm down, I am constantly moving all the time. I can't sit still at all. it's horrible. I hope you find your balance, I'll keep looking for mine.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram, flexeril, and peroxicam, and Tylenol.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/19/2009 2:34 PM (GMT -7)   

Thanks for the advice.  You are right about finding a balance and walking while you can, then sitting for awhile, stretching and moving about when possible and making your area comfortable.  I started taking a cushion into church and that helps a lot.

I have Birkenstocks.  A special Italian anniversay editition. woo woo.   I also have clarks, sketchers running shoes and flats, Born, Sofft, Aeresols . . . all bought recently.  None of them keep my feet from hurting, but by changing shoes frequently, I can keep ahead of it - except when walking a lot.  (A lot depends upon the day and can be 20 minutes or a few hours). 

It is a difficult balance to find. 

Sue


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 1/19/2009 2:59 PM (GMT -7)   
Sue, My dr. told me that the problems I have with my wrists (and shoulders) was caused by putting a lot of weight on my hands. I do this when I go downstairs and when I get up out of chair, because my knees don'ts work very well and might give out on me. I really feel bad that this came up because I am having a lot of trouble now with my wrists and shoulders--making it hard to sleep. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 1/19/2009 3:44 PM (GMT -7)   

Hi Sue,

Do you suffer from anything else along with the fibro?  Have you been checked for eg...arthritis? etc?

 

Hugs,

Diane


Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/19/2009 4:45 PM (GMT -7)   
Yes, I have osteoarthritis in my neck, myofascial pain syndrome also in my neck and shoulders and hypermobility joint syndrome which hurts my hips. My feet are perfectly "normal."

Today I am getting very sore because I am trying to do spring/winter cleaning. I must do it because my daughter and her husband are moving home temporarily and we need to make room for them. I try to take a break and visit you all, or lie on the floor and stretch between bouts of cleaning.
Sue

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/19/2009 5:52 PM (GMT -7)   
Im on a 20min cycle of sit, stand, and a little time walking. Everything is painful.     sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/20/2009 7:48 AM (GMT -7)   

Hi Sue-

It's not an easy task trying to find that balance, is it. My biggest lesson I have learned is to take it one day at a time. Some days I can do more and some days less. Some days I have more pain than others. I try to fit in gentle stretching exercises and to keep moving. I get fatigued every few hour intervals so I will take a couple rest periods during the day where I put my whole body up on the couch and take a nap or just close my eyes for awhile and shut off.

Just this last Sunday I had to take it easy all day. The week was busy and I know I over did it.

GamJill

 

 
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/20/2009 8:55 PM (GMT -7)   
Yes, every day is different. I forgot to say I am taking mobic (meloxicam) and zanaflex for pain. Today I feel horrible and tomorrow is going to be a busy day. I am not looking forward to it. Gonna rest now. Wish I hadn't turned off the hot tub!
Sue

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 2/1/2009 10:24 PM (GMT -7)   
I am definitely grumpier when I am in pain. I have been in a lot of pain and a big grump the last couple of days.
Sue

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 2/2/2009 7:02 AM (GMT -7)   
The pain is sometimes uncontrolable, I understand. I too have a lot of pain and difficulty standing and walking. I wish I could stand just long enough to get my kitchen cleaned. I have to sit in order to load and unload my dishwasher and this is difficult in itself. My house is messy all the time and just lately I got sick of it and decided to hire the maid a couple extra hours every so often to help me get it back in shape. I hope I can keep it up after she helps me clean it. lol.

Don't despair, you are not alone in your plight. Many of us are in the same boat with you. Gentle blessings, Sue and all the others that have posted too. God bless us all.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 2/3/2009 1:23 AM (GMT -7)   
I have pain when walking. the only comfortable chair I have found is my power wheel chair, it is cushy and firm. The pain is uncontrolable for me also.

I take zanaflex now and it helps a great deal. My doctor just started me on voltaren which is an nsaid. Surprisingly, it helps.

Sometimes I walk with hiking poles but I become winded which is strange since I swim for two hors a day with only minor breathing problems. I am in pretty good physical shape because I have been exercising for over two hours per day for over two years.

Swimming helps my hips stay in shape and since I began the zanaflex, I walk easier. It is still hard work though.

Donnaeil
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