story, diagnosis and meds...comments, suggestions and advice greatly appreciated

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New Member

Date Joined Jan 2009
Total Posts : 7
   Posted 1/20/2009 8:22 PM (GMT -6)   
Hi all. First I would just like to say how incredibly thankful I am for this forum.
All of my life I have experienced pain. The last few years especially. I actually thought that I was just a wimp and everyone felt this way they just handled it better. I gave birth via c-section 4 months ago and that's when the pain started getting really bad. Stiff neck, soreness in upper back, sciatic type pain, tingling in shoulders, knee pain, pelvic and abdominal pain. Shortly before I got pregnant my gyno diagnosed me with IBS. I came to the realization a few weeks ago that something was really wrong after I got home from the grocery store, put my groceries away, and felt like if I didn't lay down right then and there I would certainly die. The pain was intense. My whole body ached and I was fatigued beyond belief. I'm 28 years old. That's when I realized this is NOT NORMAL! There's NO WAY that everyone feels this way! My sister was diagnosed with fibro a few years ago so I called her up and told her how I felt. Of course she knew exactly what I was talking about.
I saw a dr. just last Friday for the first time regarding my symptoms. She agreed with the fibro diagnosis and ruled out all other conditions when my labs came back negative. I started taking Elavil a few days ago - 25 mg before bed and just started Lyrica today - 75 mg twice daily and will increase to 150 mg twice daily after 7 days.
Any thoughts on these meds? What should I expect from here on out? I'm in a daze right now and have been since I started taking the Elavil. Much worse than the fibro fog. Will this ever dissipate? Comments, suggestions, advice is greatly appreciated!!!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 1/20/2009 8:40 PM (GMT -6)   
Hi, Purple, and welcome!  It sure does sound like fibro but I'm glad  you had the lab work done too.  That is important since fibromyalgia mimics other illnesses.
I do not take any of the medications that you have been prescribed.  I use ibuprofen with food, Tylenol, and malic acid/magnesium supplements for pain and fatigue.  What works for one person doesn't necessarily work for another so sometimes it's a trial and error type thing.  I know some members love Lyrica and others hate it so see how it works for you.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to some good info about fibro.  You will learn a lot there.
Moist heat is great for fibro.  A hot shower or a Bed Buddy placed on the painful areas feel so good.  You can get Bed Buddies in Walgreen's and other places.  Or, you could make your own!  Take a tube sock, fill it 2/3's full of raw long grain rice and tie a knot on the end.  Voila!  a Bed Buddy!  You pop that in the microwave and it gives off moist heat.
It's important to keep moving with fibromyalgia.  If you sit or lay a lot, you will be stiff as a board.  Walking is a great exercise and so is water exercise, if you have access to a pool.  There are some good stretching exercises in the Fibro 101 thread too that you can do sitting down.  I do a lot of stretching throughout the day.
Be sure to pace yourself, too.  You can't do things in the same time frame as you did before fibro.  If you try, you most likely will pay for it in pain.  Everything does get done but not quite as quickly.  You will pick the important things to do and let your family help, too.
Read back posts and ask questions.  That's what we are here for!  I'm so glad you found us and joined in.  I do hope to hear more from  you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Jan 2009
Total Posts : 7
   Posted 1/20/2009 8:46 PM (GMT -6)   
Thanks for the reply Sherrine. Never heard of a Bed Buddy but it sounds fabulous! I will have to try that out!
Fibro, IBS
Lyrica, Elavil
"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." ~Dr. Seuss

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 1/20/2009 9:42 PM (GMT -6)   
Welcome: You may find the elavil knocks you on your butt for the first week or so. I found that taking it two hours before bedtime worked better regarding morning grogginess. It takes a while to "kick in"anyway. You will learn as you go and as you read other's testimonials on this site. The bed buddy is grand, I have two. Good luck.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/21/2009 5:32 AM (GMT 0)   
Hey purple! (Purple is one of my fave colors turn )
I just wanted to say welcome and that I am glad you've found us!!!!! You'll love it here!
-Jenna :-)
21 years old
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 1/21/2009 2:02 AM (GMT -6)   
It is different for everyone.  I live perm in fog.  Lyrica is a good drug most fibro sufferers are on it plus maybe something for pain and sleep depending on the person.  If it gets to bad a specialist. Walking is good though ive stopped which I shouldnt of as its main source of excerise. I see pain spec and wear a patch as the pain was just to bad for me.   sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/21/2009 12:53 PM (GMT -6)   
Hi Purple and welcome. My fav color too. Having a new baby takes so much out of healthy people so I can't imagine having fibro and a new baby. Mine didn't hit til my children were grown. My heart just breaks when I read these stories from young mothers.
I have not tried lyrica but I've been on amitriptyline off and on for many, many years for anxiety. I was on 100 mg when I got fibro. I can't remember how I felt when I first started taking it. I do know I got the brilliant idea last spring to cut down on it cause I didn't think it was doing anything for me and with just cutting down a little I went into the worse flare ever til I got it back up in my system. I'm talking two weeks of burning pain all over my body. I had never had that much pain before and I have not had it since so that is the only thing I can relate it to. Compared to many on here I do not have as much pain as they do so I don't know if it is just the way fibro is for me or if the amitriptyline is helping since I was already on it when I got fibro. Fatigue is my demon that I fight daily.
I'm glad you found us and you will like it here.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Member

Date Joined Jan 2009
Total Posts : 7
   Posted 1/21/2009 5:07 PM (GMT -6)   
Thanks for all of your replies. I'm considering not taking the amitriptyline anymore. It just makes me feel like a zombie ALL DAY LONG. I can't handle feeling like that. Especially not with a four month old needing my constant attention. I plan to continue with the lyrica and just take the amitriptyline when I need a good nights sleep. So far the lyrica is working about as well as I thought it would. I still feel like I need a narcotic pain killer like vicodin to take as needed. My Dr. is not keen on prescribing narcotics though.
Fibro, IBS
Lyrica, Elavil
"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." ~Dr. Seuss

Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 1/21/2009 5:21 PM (GMT -6)   
Hi purple,
I'm on Lyrica and I do like it - it helps me a lot. I don't get debilitating headaches anymore since I started taking it. I take 150 mg at night and 75 in the morning.
How much amitriptylene are you on? My rheumatologist prescribed 10 mg and I could NOT tolerate it. Same with half a pill - 5 mg. Then I tried cutting them in 4 (2.5 mg) This also made me crazy tired - like I was in a milkshake all day - doped. Anyway, I perservered and crushed the 1/4 pill and took half of that. It did nothing! Took it for a couple of days then increased to 1/4 pill. After a week I increased to 1/2 and it really helps with sleep and also the pain. I take it at 9 pm and fall asleep around midnight and sleep soundly til 7 or 8 a.m. now.
As someone else said, everyone is different. I think if I took 100mg as some others have said they do I would be in a COMA! lol
Anyway, see if you can fiddle with the dosage until you get it working for you.
Take care,
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg

Regular Member

Date Joined Oct 2008
Total Posts : 257
   Posted 1/21/2009 11:11 PM (GMT -6)   
Welcome! Sorry you have to be here, though...

I couldn't tolerate Lyrica. I am taking 600 mg of Neurontin, and Tramadol for pain. Tramadol (Ultram) is a non-narcotic pain killer. It is not habit forming, but acts like a narcotic in other ways, in that it kills the pain. I'm presently taking 200 mg a day, but I'm going to ask about going up to 300 which is the max, on an as needed basis. Which, is almost every evening these days.

Am I foggy when I take these? I have to say I am. I function pretty well, but I'm afraid to go to work, as I need to make clear headed decisions regarding my clients. Mistakes could cost them and my boss, and me, plenty.

It's a terrible catch-22, but keep trying things until you find the right combination for you.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 

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