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WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/21/2009 1:49 PM (GMT -7)   
i'm having one of 'those' days.I have been up since yesterday,a day and a half with no sleep.The pain is horrific.hot baths,goody powders,nothing  works.My doctor does not perscribe pain meds,I can't go to the er because I went twice in dec. and I guess I have been flagged as a drug seeker.I want to walk out my front door into the street and just leta big truck do the rest.I thought I was strong enough to fight it,but I have run out of courage.Smoking cigs constantly,my heart disease loves it I bet.just needed to vent...
Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 1/21/2009 1:55 PM (GMT -7)   
Hi Orchid,
Wow that sounds like a bad day indeed. Maybe you need a new doctor? I can't imagine trying to get through this without pain medications, geez. What's up with that?
Cyber-hug to you
K
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released)


telula68
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 1/21/2009 2:03 PM (GMT -7)   
Is there something in the water? I am having a crappy day too.

I think if I ran out in front of a truck I would only be maimed and have more pain.

I posted earlier about this stupid flare I am having. I would consider it mild right now but the problem is that it will get worse and nothing will stop it. NOTHING. Just knowing what is to come is so scary I want to knock myself out somehow. The doctors make it hard to get well. Social security would rather we just drop dead!

I'm with ya here....I wish we could all be somewhere else!!

Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 1/21/2009 2:16 PM (GMT -7)   
shakehead  Oh No that sucks....No pain meds shocked   I wouldn't even be sitting here if I didn't have mine.  My doc is got me on Fentanyl patch and Ultracet.  They work pretty well together.  I get cortizone injections in my hips about every 3 months.  I can't wait til next month, thats my next dose. smilewinkgrin
 
Well hugs to you hun, sorry you have to suffer so with the pain.  I more or less just ache and feel nauseous and all over icky today.  I do have some pain in my right hip that the pain meds can't quite relieve.  Hope your home, not stuck at work like me where not to many folks give a crap.  Oh I forgot that is L.A. for ya. 
 
Take care, I gotta get over my tears and start some work.  (Avoided my boss a few minutes ago, too many tears and a red face.)
 
Hugs,
Lori
 
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 1/21/2009 2:47 PM (GMT -7)   
I am sorry that you all are having such a painful day. Try to keep your chins up. Tomorrow is another day and it may be better. Try to think positive. I know it is hard, but it can be done.

Best wishes to you all for a better day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/21/2009 3:48 PM (GMT -7)   
Ugh, everyone is doing horribly today.. I'm in an awful mood as well... I also do not have any pain meds whatsoever for this condition and I find myself in a lot of pain often. I, being stupid obviously, CHOOSE to not be on meds for anything BUT maybe you need a new doctor, one who will be okay with relieving your pain with meds. I wouldn't go to the ER either, I was in the hospital 5 times last year! 5 TIMES!!!!!!!!!! And if you were there twice in december and they have the wrong impression of you, I would just simply find a new doctor... and soon! Don't be ashamed of feeling like you can't handle this, it is a tough thing to handle!! I feel very weak and have no courage left either. Sorry I couldn't tell you to FIND courage and be strong, kind of hard to do seeing as how I feel the same as you do. BUT you are not alone. *Hug*
 
Please let us know how you are doing at a later time!!
 
___________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/21/2009 4:38 PM (GMT -7)   
K9,just a quick question.I see that you are on 225mg of Lyrica a day.I've been on it twice,75mg once aday,and at the last 2 75mg twice a day.the fog got much worse and i started haveing tremors and it did nothing for the pain.Have you had any problems like that?I had to stop.

ps...thanks all for the support,you don't know how much it means.I've just reallllllllllly had enough.

Due to the rules I had to edit your post.

 

Post Edited By Moderator (Marlee2) : 1/22/2009 8:59:02 AM (GMT-7)


Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 1/21/2009 4:54 PM (GMT -7)   

For some reason I've been spared the joint pain that is so typical of Lyme disease.  I do know what sleep problems, low energy, malaise and brain fog can do to a person.  It wears you down.  Is someone helping you with depression issues?  It's very common with these kind of things.  Depression could be a major factor in the insomnia. 

 

 


Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/21/2009 5:12 PM (GMT -7)   
Wildorchid1513: Call around to various offices (Doctors), in your area. Ask 1) if they are accepting new patients and 2) if they treat Fibro. You cannot continue like this. There isn't any quality of life. A doctor who doesn't prescribe pain medication for chronic, devastating pain, ie. pain that interferes with your everyday life, likely has their own issues. Best of luck. 

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/21/2009 6:44 PM (GMT -7)   
I went to the er several times myself, couldnt handle the pain was praying I would pass out and I actually did once and the ambulance came.  I think you need a dif doc for sure and ask to see a specialist for stronger pain meds if the docs ones dont work for you.  Bare in mind it can take two or three trys to get a decent doc or spec but you must try, especially the doc.I find that the men docs are more inclined to give meds.  good luck    sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/21/2009 7:18 PM (GMT -7)   

I agree with the rest. You need a new doctor. Trying to get thru this without pain meds is not the way to go! I don't think I could handle it. Are you on anything for depression? Depression comes right along with Fibro and you should be on something for that too. It will help you to get thru this alot easier & it also helps you see that you can live an almost normal life with a bit of help.

Please start looking for a good doc. As tyno3 suggested, ask if they treat Fibro. A good doc will make a world of difference in how you are treated and also how you feel. Good luck and keep us posted.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/21/2009 7:38 PM (GMT -7)   
Thanks sooo much to all of you.I've been handling things well up til the new yr.2 years of being wore down has finally caught up with me.I have,in that time,been to 4 pcp,2 neuro,accupucture,every herbal remedy,countless med changes,the Lyrica and such and the mood-elevators,with no result.Just a long slow slide into pain and poverty.And to be truthful,to go see a head doctor and have them doping me with those drugs again,scares the crap outa me.I destroyed my kitchen one bright sunny afternoon on Lexapro....very Valley of the Dolls...*sheesh*
ps..in the last two yrs,I have probably been perscribed pain meds a total of 15-20 times.And they were like 15 to 20 of them at a time.Once,a reallllly*sarcasim*nice er jerk doctor gave me 8....after he made me feel like trash while I was having a flare.I hope kangaroos on angel dust get loose in his house....amd the cat is in.... devil
Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 1/21/2009 11:26 PM (GMT -7)   
What about asking for zanaflex, a muscle relaxant; lyrica for pain and vloltaren for pain. It does not have to be narcotics. Will they not prescribe these?

Donnaeil

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/22/2009 7:36 AM (GMT -7)   
Had some really bad side effects eith Lyrica,never have heard or been offered the other two.

Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/22/2009 8:42 AM (GMT -7)   
Oh Orchid,

Just read what has been happening. I so hope today is better and you get that fight back.. I tell you sometimes it just gets to be too much but you have to hang on and get through it.

I find trying to be normal for my family the hardest thing I have ever done. Now I have read all of you that say you have to be honest and let everyone know how bad you feel. But for me I find that depresses me more. I am blessed with 2 people in my world that really "feel' my pain and just don't want to burden them. It is not being a martyr I fully know what that is....strayed from your subject, prone to that lately.

By the way Orchid, it was 27 degrees on my garden thermometer this morn', praying I haven't lost too much. My flowers are my literal passion!!!

Praying for you. Patsie

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/22/2009 9:17 AM (GMT -7)   

patsie,thanks for the prayers....I to find being'normal' for my family is very difficult.My husband calls me everyday at 11 o clock to see how i'm doing,whichis usually crummy.He called today and asked if I would make him a sandwich for lunch and I thought my head would roll off.Yesterday was unreal...today is somewhat tolerable.I find to that I prefer being alone anymore...being around everyone is..well..to much trouble.I don't have to repeat all the time to the same ol' question "whats wrong?".I know they feel just as helpless as I do,but what else can I say.I know going inward is not healthy,but who knows whats healthy or not anymore.In the famous words of the Ramones'I wanna be sedated'.

*puts on headphones,turns up Amy Winehouse'Loves a Losing Game' and puts head on desk,contemplates demise*


ps,patsie...Those flowers will amaze you how they can hang on...I usually don't watch QVC,but cottage gardens was on last night..did you catch it? They have kick day-lilies.They were my specialty.I had one called 'Hot Cocoa' that  was killer.
Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty

Post Edited (WyldOrchid5150) : 1/22/2009 9:20:15 AM (GMT-7)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/22/2009 9:20 AM (GMT -7)   
When treating a chronic illness you have to find a doc or docs that treat the whole body cause fibro does affect every aspect of our lives. Wyld, I so hope you can find a doc that is understanding and compassionate to your needs. There are some out there so I hope you find one. You have to get their opinion on fibro before you waste your time and money going to them.
 
I hope you feel better soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/22/2009 9:32 AM (GMT -7)   
Thanks Marlee...I really appreciate it.I've tried going on-line to find docs in the area that treat fibro,but no such luck.We are in a very rural area.My main concern is if I change docs again,I'll have to start from square one all over again.We seem to have a shortage of compassionate doctors around here, or they just don't belive this DD is real.Hysterical females and so on.

Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/22/2009 9:47 AM (GMT -7)   
Hi Orchid,

You hit on something that has also been troubling me. I also have become quite isolated from friends. I went from an active tennis life to this.... they all called for awhile but slowly the calls stopped. No way I can even pretend to keep up. And like you do not want to answer all the questions. BUT on the other hand we so need to keep as active as we can.

I so get the feeling you had about the sandwich. Can it not just make you insane when someone even asks a reasonable thing at times. My patience is pathetic and I have to work on this.

This past holiday I had to tell my son, also now my best friend, that I could not hike Boston like I have always done. He was crestfallen as I have kept up with him like you would not believe in the past. It was something that had to be said and I just hated it. These limitations are tough but I have to keep positive about what I can do RIGHT??? What the hell are our choices.

Any advice for me, Patsie

WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/22/2009 10:26 AM (GMT -7)   

patsie,yea the friend thing,they have all gone away,but thats my fault.I'm a very social creature,but going out or having people over just got to be to high maintinence,even for simple conversation.the aloneness just is easier,and it seems that I'm pi**ed off at others for not hurting.This is a strange coralation but, when my dad died, I almost had the same feeling,like how can everybody else be happy and go on with life when my guts been ripped out,I well know that was grief,but I feel there is a connection.Like I'm greiving for the life I have lost and still losing.

Ps...But I still have you guys!!

pss..Binki..your in LA?I'm so coming over..lol..haven't been out there since I was a kid,now that i'm grown,there is tons of stuff I'd like to do there.Kat von D's tat shop would be my first stop if I could hit the lottery!and then lunch at the Ivy...

Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty

Post Edited (WyldOrchid5150) : 1/22/2009 10:31:46 AM (GMT-7)

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