Hi, I'm new to this site

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FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/22/2009 2:32 PM (GMT -7)   
I just wanted to take a moment to introduce myself. I'm a 36 year old single female. I'm from Upstate NY. I hate the cold!! I've been diagnosed with Fibromyalgia, and just about everything that comes with it, for 10 years. I'm extremely sensitive to medicines and had bad reactions to Lyrica and Neurotin. I'm currently taking Wellburtin XL, Flexeril, Tramadol, Ibuprofen, Prilosec, Vitamin C, Calcium Magnesium Zinc tablet, Vitamin A, and Folic Acid.

I found this site while searching "Fibromyalgia and foot pain". I'm so excited to have found this forum.

So Hi to all of you and I'm sure you'll be seeing posts from me!!

{{{hugs)))
FibroTina

FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/22/2009 2:34 PM (GMT -7)   
OOPS... I always use FibroTina as my screen name..... but on here I wasn't allowed...so
I have to learn that on here I am FibroBooBoo LOL

Thirteen
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/22/2009 2:39 PM (GMT -7)   
Hahaha that's okay, I like FibroBooBoo, I think it sounds cute tongue I am Jenna, you'll see in older posts I was JCgurl but now as you can see I am Thirteen (logging-in trouble, no biggie), just remember Jenna.. or you don't even have to LOL I know how fibro fog can be smilewinkgrin Welcome and I am so glad you have found us!! I was recently diagnosed with Fibro in december and I have found this forum to help me greatly.. everyone is so compassionate and fun-loving! Hope you stick around here!!!!!! I'll love to hear from you more.
 
xoxo
 
_________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
 
"You can't be brave if you've only had wonderful things happen to you." -Mary Tyler Moore
 

acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/22/2009 2:49 PM (GMT -7)   
WELCOME!!
 
I too, am a new member. The people here are great. And honestly, you'll find answers to just about everything. Just post a new thread and people respond. It is great.
 
So, anything about the foot pain and fibro that we can help with? It's probably one of those chronic pains that is just chalked up to fibro. But, if you let us know more, we might be able to help. I know I've read a few threads about other peoples foot items. I am big into good, comfy shoes, so if you need help there, let me know (that is if it isnt really the fibro). If it is, we all understand and feel your pain. smilewinkgrin Yesterday, I had the worst pain in the hip/groin area and by the time I got home from work it was the same pain in my left shoulder. It is also the same pain that has been on and off in my right elbow. Just crazy how the fibro works.
 
Anyway, I am Aimee and was diagnosed with fibro in August of 2008. However, I am pretty sure I have had it my entire life.
 
Hope to read more from you!!
 
Aimee
 
ps- I am from Indiana and hate the cold too!!
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/22/2009 2:58 PM (GMT -7)   
Hi, Tina, and welcome!  I'm so glad you found us and joined in.  You have come to a great place.  We have wonderful people here that have good ideas to help you live a full and enjoyable life with fibro!  And, as an added bonus, we really do care about one another!
 
I use ibuprofen (600 mg. with food) and Tylenol for my pain and malic acid/magnesium supplements for my pain and fatigue.  These don't help everyone but many on this forum have gotten some relief with these...me included!
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to some good information about fibromyalgia in there...including a list of symptoms, some good stretching exercises to help keep those muscles flexible, and also information all about the malic acid/magnesium supplements and how they work in your body.
 
Keep moving, keep a good attitude, and keep your sense of humor and nothing, even fibromyalgia, will stop you!  Read back post because there is a world of information in them, too.  As I said before, I'm glad you joined in and I hope to hear more from  you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/22/2009 3:00 PM (GMT -7)   
oh yea, fibro fog...i knew there was something else. If you need help trying to convey how you feel to others, the SPOONS THEORY found in the fibro 101 thread has been amazing. I sent it to my family and my best friend and i think it has truly changed their outlook on me/my fibro. It's a nice way to explain it without the medical jargon. highly recommended.
 
Aimee
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/22/2009 5:01 PM (GMT -7)   
Jenna, Aimee and Sherrine,

Thank you all for the warm welcome!! I have been taking advantage of the prior posts and the Spoons Theory...wow... that made me cry
while reading it. I've done a lot of research and have been on a few different forums, but am so glad to have found this one with real people with
real feelings. I will definitely be sticking around and look forward to making new friends.

I'm having quite the flare up today so I can't sit here much longer, but I will write more about my situation tomorrow.
Aimee, any advice on comfy shoes is greatly appreciated. I need to find some that won't kill my feet.

I went to grade school with a girl who spelled her name the way you do, Aimee.... it's very pretty!

Hope you all have a great night.
See ya all again tomorrow.

Tina

Orlo
Regular Member


Date Joined Dec 2008
Total Posts : 139
   Posted 1/22/2009 9:41 PM (GMT -7)   
Hello Tina! Welcome to our lovely forum. This place is basically a godsend for me because I was so sick to trying to explain to everyone around me that I was sick, not crazy! Like everyone said, we can answer any of your question, you can share funny stories or just have a shoulder to cry on when this terrible disorder gets the best of you! Oh yes, and make sure you check out the daily "Koffee Klatches" posts. It's a nice way to begin your day and also a break from all this fibro talk.

Halsey
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/22/2009 11:11 PM (GMT -7)   
Welcome Tina!

Finding that there are others in this huge world that have the same problems you do can be such a relief and I believe can actually help with pain relief. We share so many ideas the experiences that we get the best of all worlds...the medical community and our 'family'.

Come join our daily Koffee Klatch. It's a small part of each day we can think about things other than our misery.

Hugs,
Chutzie >*^-^*<
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/23/2009 6:51 AM (GMT -7)   

Yay shoes!! smilewinkgrin  

I tell you, it really depends on the person, but here I go:

My favorite tennis/running shoes are Mizuno's. They great lines for all types. I have a neutral foot so I don't need support on the inside, however, my husband does and so we found him some with moderate support. SO, i love that they have shoes with support. Second, They have a wave plate that allows for the shock absorbtion in the heel to move throughout the length of the plate (usually 1/2 or full length of shoe). My second favorite brand is Saucony. I have literally have had about 5 pairs of these. They feel like I am walking on pillows. I have not had much experience with their non-neutral shoes. I have not fallen in love with Asics, but they do have good shoes. Be aware of their Middle of the line vs. top of the line. Make sure that you are getting what you need out of your shoe.

My favorite comfy, casual shoes are Merrells. They are the number one repeat buying brand in America. I really think that the comfort I get with these is worth the price. Also, they have a large selection of styles and colors and are designed for a woman's foot. Oh, and they are easy to wear right out of the box.

My dress shoe (for slacks mostly) are Dansko or Ecco. These are expensive, but I am nearly positive that Danskos are approved by the APA (American Podiatric Association). When I worked at the mall, I could wear my Danskos for nearly 11 hours and my feet didn't hurt a bit. Also, they are the stapled clogs that most nurses wear for 12 hours on end. Very good shoes. I like the Eccos because they aren't as bulky. They have a sole that molds to your foot over time and is VERY durable. The bottoms are made of bouncy ball material and have shock absorbtion. I was also able to wear these shoes right out of the box...The Dankos take some getting used to with their rocking motion. It helps to eliminate all of the work that your calves and feet do and lets the shoe do the work.

For sandals, Choca's are good and have good arch support. Merrell also has really comfy sandals. I haven't tried, but really want to, Moszkito sandals. They look to have very good arch support for flip flops. Honestly, I am partial to my Adidas Soccer sandals. They have a great footbed, similar to that of a Birkinstock. http://www.birkenstockusa.com/foothealth 

I know that some of these are expensive, but they last forever. Especially if you take care of them. I spray ALL of my shoes with a silicone waterproofer. Make sure it can be used on leather and mesh.  A can is usually 5-10 bucks, but it really does make the shoes last.

OH, I almost forgot...the danskos, eccos, and birkenstocks are european brands. They don't measure in wides because of how they make their shoes. They emphasis the holding of the heel in the heel cup and allow your toes lots of wiggle room. My husband has wide feet and was able to buy the European equvalent in Eccos (3 different pairs) and hasn't had any trouble. Also, because they use high quality leathers and materials, they mold/stretch to your foot.

Let me know if you have any questions or comments. Hopefully this helps. I know that if I am walking for a day (doing shopping, going to the park, tourist-ing) I make sure I am wearing some of these shoes and not my overly cute ones. smilewinkgrin

Hope you have a fabulous Friday!!

Aimee


24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/23/2009 9:02 AM (GMT -7)   
Hi Tina and welcome to our family. As you can tell this is a great place to be. Aimee seems to be our shoe expert. tongue Make yourself at home here. We help each other with about everything that goes on in our lives cause everything in our lives affects fibro. We even have virtual parties that can get pretty wild. So if you read a thread about some wild party going on join in the craziness, it keeps our minds off the pain. Ask questions and read and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/23/2009 9:24 AM (GMT -7)   
Aimee, I wear Birkenstocks exclusively.  I had plantar faciitis so bad that I could barely walk.  My husband would have to get a wheelchair for me to get out to the airline gates when we would travel.  I couldn't walk more that two city blocks.  Now I have no pain....except in a toe...supposedly it's gout.
 
If you are interested, I order them straight from Germany and they cost about 2/3's less than they do here in the US.
 
Sherrine
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/23/2009 10:51 AM (GMT -7)   

I am VERY interested.

I had a friend who's mom ONLY wore Birkenstocks as well. I was quite a bit younger, so I never asked why, but I knew there had to be something good about them! smilewinkgrin

I am pretty sure that the Danskos are good for the plantar facitis as well, but I wouldn't fix it if it isn't broken Sherrine. wink


24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/23/2009 5:00 PM (GMT -7)   
Aimee...or anyone else....

Ever try the MBT Chapa GTX Fitness Walking Shoe??

What are your thoughts on these shoes?

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/23/2009 5:39 PM (GMT -7)   

Welcome Tina,

I'm afraid I don't know much about shoes. I've been wearing slippers for a month because mine are giving me problems. lol  You'll find many helpful people here and lots of great advice. Hope to hear more from you soon.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Denial~it ain't just a river!
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 1/23/2009 8:13 PM (GMT -7)   
Hi, I'm new here also but so far it seems to be a great site, both friendly and informative.  Good luck and well wishes!
"What lies behind us and what lies before us are tiny matters compared to what lies within us."  ~Ralph Waldo Emerson


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/24/2009 6:32 AM (GMT -7)   

Hi Tina and welcome-

I relate to your being sensitive to medications. I too am the same way. I am supposed to start Lyrica, but too afraid because I react to just about everything!

The group here is great and I think you will enjoy this forum- Nice to meet you, and like Chutz said, join us on our daily Koffee Klatchs when you can.

GamJill 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/24/2009 6:41 AM (GMT -7)   
Welcome to the forum. Glad you are here. I echo the comments made already--great people/ very caring indeed are found here. Hope to get to know you better.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/24/2009 6:56 AM (GMT -7)   

Hiya Boo Boo... Love the name!!!

Welcome to our fibro-fam.  Foot pain is one of my big baddies, my ankles too.  VERY ANNOYING!!  Check out the stretches on Fibro 101.. they've help me a lot!!  Anyhooo, this is an awsome forum.  Great folks, fun times and REALLY understanding friends.  You've come to the right place!!

My MD wouldn't put me on Lyrica.. he said he hasn't been happy with the side affects for other patients that have been on it.  That was all I had to hear, my list of meds follow my signature.  So far I'm happy with them. 

Again, welcome!!  We're happy to have you here!

Warm hugs,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/24/2009 9:21 AM (GMT -7)   
GamJill,

The only thing I had issues with, when taking the Lyrica, was they way it made me not be able to actually speak.
I kind of had a stutter and my tongue froze. I knew what I wanted to say, but couldn't get it out. It wasn't painful,
just annoying. I don't know if any one else ever had that kind of effect from Lyrica, but that was the only issue for me.


Tina

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 1/24/2009 10:43 PM (GMT -7)   
Tina, I wanted to add my welcome.  You have found a wonderful place & will love it.  I found it by doing a search on Fibro & I am so glad that I did.  I feel like I really know these people & so will you.  I use a generic of Flexeril to help me sleep & Ibuprofen for pain.  Wow, that was quite a reaction to the Lyrica, sounds like a bad allergic reaction.  I hope you come back often to see us.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

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