Does this sound like fibromyalgia guys?

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KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/22/2009 5:33 PM (GMT -7)   
Okay, my symptoms started approx 3 months ago, and I think it is important to mention that around this exact same time I was forced to stop taking my Effexor medication cold turkey due to lack of funds.  The first symptoms I remember were at the gym working out and I experienced a tremendoues drop in heartrate/ blood pressure and felt incredibly dizzy, with some abdominal pains.  This was a VERY intense and scary feeling that caused me to go promptly to the ER.  The nurse there attributed it to Effexor withdrawal and said it would subside within a week at the most.
 
Over the next few weeks I continued to experience these same symptoms, however they began to slowly progress and change with new symptoms.  I started getting chest pains and heart palpitations and weird twitching all over.  I had twitching and cramps in my abdomen and eye the most, but other twitches all over.  I would also get tremors and body jerks in bed that would cause me to jump up from my sleep.  Another very scary symptom was a very tight feeling in the throat that would cause me to have some difficulty breathing.  I also experienced very short bouts of nausea.  These symptoms were never constant, they would come on in waves, and sometimes wouldn't appear for days, but when one feeling popped up, a lot of the others would also.
 
It was the night after Christmas when the muscle and throat tension became extremely intense, along with a constant fluttering in the chest that scared me once again and I went to the ER.  This time he said there's no chance that the effects could be effexor related anymore because I had been off it for a good 1.5 months, and he sort of brushed it off as nothing and said to limit my caffiene and alcohol intake.
 
These effects all continued but again transformed a lot.  The palpitations diminished almost conpletely and the weird muscle stiffness, tension and twitching became much more prominant.  I also had unexplainable and fairly severe pains at various times in my muscles, ranging from my back, my toes, my abdomen, the tips of my fingers, my forearms, my chest, and most notably my obliques directly under my pectorals.  I started getting very sharp pains all over as well as twitching and a tension in my neck and body that caused me to feel restless and not be able to sit still.  My legs would also jerk during sleep and I would continue to wake up with tremors.  I've also had some bowel problems and random, off-and-on feelings of extreme fatique.  My heartrate and blood pressure also seem to fluctuate a lot.
 
Lately i've been getting the pins and needles feelings in my legs and arms that cause me to lose coordination.  I'm experiencing this right now and my left hand is having some extreme difficulties hitting the keys that I want it to.  Two times this week I have woken up with sore, swollen spots that eventually formed bruises.  One was on my quadricep and one on my forearm.
 
I went to the clinic last night to get another doctors opinion.  He said it was simple anxiety and I need to be put on an SSRI for it.  I just wanna mention I have basically had depression and anxiety my entire life, and have long periods of time on anti-depressants, as well as off of them, and have never experienced anything like this.  I'm not great with words and had a hard time explaining the symptoms to the doctor, but I am 100% sure this goes far beyond anxiety.  I have never suffered from panic attacks and I rarely even have bouts of anxiety while experiencing these symptoms.  I mean, who wakes up with enormous, unexplainable bruises on their legs from feeling anxiety?  I don't feel any of the doctors I have spoken to understand the severeity of the feelings I've been experiencing.  They are very scary and slightly debilitating.
 
I just want some peoples opinions - does this sound like fibromyalgia?

Orlo
Regular Member


Date Joined Dec 2008
Total Posts : 139
   Posted 1/22/2009 9:30 PM (GMT -7)   
I can't tell you for sure. The pains and twitching sound like the fibro I have. I may be going out on a limb here, but have you looked at Mutiple Sclerosis? I know there is a lot of twiching associated with that.
I would recommend going to see a rhumatologist. ER doctors aren't the most helpful people in the world. Last time I went they looked at me like I was crazy and 6 hours later sent me home with 6 vicodin because they were convinced I was just looking for drugs. Psh.
Hopefully things get better for you!
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg


KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/23/2009 12:34 AM (GMT -7)   
Thanks so much!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 1/23/2009 6:55 AM (GMT -7)   
Korey,

Why did you go off of the effexor??? I have been taking it for years. It is a hard drug to go off of. The withdrawals are horrible.

I just reread your post and now I see it was due to lack of funds. I am sorry that you had to quit taking it. Have they put you on anything else for anxiety and depression?

Depression alone can cause a lot of the symptoms that you are going through. Do you have a fibro diagnosis?

I hope that you feel better soon. I hate to see you without your medication. Try to find something that is less expensive.

Best wishes for a painfree day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 1/23/2009 11:34 AM (GMT -7)   
Hi, Korey, and welcome!  A lot sounds like fibro and a lot sounds like anxiety, too.  It could be a little of both but it is best to see your doctor and have them check you out thoroughly.
 
Meantime, be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro...including a list of symptoms.  That may help you and help your doctor.
 
Be sure to read back posts and ask questions.  We are here to try to help you.  But, as I said before, check with your doctor.  We are not doctors here so we are only guessing what is going on with your body.  Let us know what you find out because we really do care about you!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Thirteen
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/23/2009 12:32 PM (GMT -7)   
Hi, Korey, I must also agree with Orlo, the pains and twitching are the only thing that sound like my Fibromyalgia, and the chest pain and heart palpitations even. BUT giving your "tremors" episodes, Multiple Sclerosis could possibly seem like a better answer at this point in time, I have heard that many many people with MS experience "dizziness" as one of their very first symptoms when it is first developed, whether that is 100% true or not, I don't know, it's just what I have "heard".. you said that was one of the first things you noticed in these "episodes" ..I am NOT diagnosing you in any way, shape, or form.. just giving you an option, just something to look up on.. go to a rheumotologist and see what they have to say. They'd check your tender points to see if you do indeed have Fibro, but I must say, I haven't experienced a lot of those symptoms that you are speaking of. But EVERYONE'S DIFFERENT also, a condition can affect everyone in different ways... But if the withdrawal of effexor is as horrible as getting by has mentioned, maybe it COULD BE from that.. who knows confused   I just don't know about the tremors.. I suppose they could be from very bad anxiety, which you say you've had a problem with a majority of your life...... But just to be safe, I'd look into MS if I were you, look around maybe on the MS board here at healingwell... and call a Rheumotologist!!! Good luck, keep us posted!
 
-Jenna :-)
 
_________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
 
"You can't be brave if you've only had wonderful things happen to you." -Mary Tyler Moore

KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/24/2009 2:58 PM (GMT -7)   
Keep'em comin friends!

KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/26/2009 8:18 PM (GMT -7)   
Ouch my abdomen!!!

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/27/2009 8:21 AM (GMT -7)   

Hi Korey and Welcome-

This has had to be scary for you. I developed a laundry list of the weirdest symptoms too when the fibro began to hit me. For starters I got a migraine and have never had one in my life. Then my feet were starting to go numb, and not long after, my tongue, around my mouth and right cheek. Then the twitching began! Around my eyes and mouth. After time, it hit every muscle in my body and it did not stop for 3 months. Now I only get occasional twitching, and it is not bad.

Please see a Dr. or rheumy that is knowledgable about fibro and start getting things checked out. I had an MRI and tons of blood work done.

Let us know how you are doing-

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/27/2009 7:37 PM (GMT -7)   
GamJill said...

Hi Korey and Welcome-

This has had to be scary for you. I developed a laundry list of the weirdest symptoms too when the fibro began to hit me. For starters I got a migraine and have never had one in my life. Then my feet were starting to go numb, and not long after, my tongue, around my mouth and right cheek. Then the twitching began! Around my eyes and mouth. After time, it hit every muscle in my body and it did not stop for 3 months. Now I only get occasional twitching, and it is not bad.

Please see a Dr. or rheumy that is knowledgable about fibro and start getting things checked out. I had an MRI and tons of blood work done.

Let us know how you are doing-

GamJill

 

Thanks so much man.  With that post in mind, I have a question for you and the other fibro sufferers: are the symptoms you experienced during the onset/ beginning stages of fibro significantly different than the symptoms you experience now as a fully developed fibromyalgia sufferer?


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/28/2009 8:08 AM (GMT -7)   

Hi Korey-

When the fibro hit, I felt like I hit a brick wall going 90 mph- that is the only way I can explain it and within a few short months. Everything was to the extreme! After all the goofy symptoms hit me then came the pain and knocked me literally to my knees. And fatigue was so bad I could not function. 

I do not get anymore numbness in my cheek, lips, tongue. My muscles only twitch once in awhile now and the area is small. I have not had another migraine. The pain remains and it varies from day to day. I am having more pain right now because of the bad, bad winter we are having. The fatigue varies also day by day. I still get numbness and tingling in legs, feet, hands and arms and then I rest them to get the feeling back.

So now that I made a long story long, Hee-Hee, I would say that I still have the symptoms I did from the beginning just not to such extremes and some symptoms are gone.

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


KoreyS
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/28/2009 9:14 PM (GMT -7)   
Super! Thanks so much friend!
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