New Member (Myofascial Pain Syndrome)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Scarlett Dirt
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/23/2009 7:27 PM (GMT -7)   
Hi All,
I just got diagnosed with this today. I know it isn't the same thing as fibromyalgia, but I can't seem to find a forum anywhere for it. Does anyone know if one exists?
Thank you,
SD

Post Edited (Scarlett Dirt) : 1/24/2009 2:58:55 PM (GMT-7)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/23/2009 9:17 PM (GMT -7)   
Scarlett,
You're in the right place. Many of us, including myself, have this along with our fibromyalgia. When you run your hands over my arms you can feel the lumps and bumps under the skin... very weird! Drinking lots of fluids, gentle exercise and stretches and trying to keep a positive attitude are some of the things you can do for yourself. Also, don't be surprised if you eventually show up with fibro, as well. These two seem to run hand in hand. Wish I could be more helpful.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Thirteen
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/24/2009 1:30 AM (GMT -7)   
SD, I don't know if I could be of too much help either BUT like Jeannie has said, I do know for a fact that Myofascial Pain and Fibro tend to go along with eachother... you are very welcome here if you'd like to stick around, we definately know of what you are facing and we'll be here to support you, make you laugh, let you vent, and give you some answers to questions you may have...
 
xoxo
 
_________________________________________________
21 years old
 
Fibromyalgia, Bipolar Disorder, OCD, Irrational fears
 
"You can't be brave if you've only had wonderful things happen to you." -Mary Tyler Moore

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/24/2009 8:26 AM (GMT -7)   
Hi SD and welcome. I also have both fibro and MPS. I say I'm a "knotting old woman" I have so many knots in my muscles. Read the fibro 101 thread, second on first page, it contains lots of great info. There is a list of symptoms in it and you might find you also have fibro. There is also an article about fibro and MPS.
 
I have found on my upper right arm there is like a hole in the muscle that is very tender I don't know if this is just between the knots or what but it feels strange to the touch. I have so many knots on the outside of my thighs you could do laundry on them. I was getting massages by a therapist that knows about fibro and MPS but life has been so hectic for the past several months I haven't gotten one. I could really use one even though it is not a cure for it but it feels good when she works on the knots. They can't go too deep and do too much at a time cause it dumps a lot of toxins in your system when they release the knots and you can end up feeling worse for a while.
 
Ask questions and read and we are here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Scarlett Dirt
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/24/2009 2:55 PM (GMT -7)   
Thank you for welcoming me. The knots I get are mostly in my neck and back. For the last 8 years it's been blamed on a herniated disk, but nothing has helped it and several surgeons couldn't figure out what was bad enough to be causing so much pain. My doctor gave me this diagnosis yesterday and I googled it as soon as I got home. It fits perfectly. Though obviously I'm not thrilled to have this, it's really nice to have a name to put to everything I've been going through since I was 18 years old.

Back in November I woke up one day, got out of bed and fell right to the floor. I wasn't dizzy, my legs just didn't seem to work anymore. After an entire day of this it occurred to me to go to the ER. For the next 18 hours or so I was down in the ER and my entire body was twitching to the point where it looked like I was seizing. I was totally conscious, just scared out of my mind and no one seemed to be taking it seriously. Finally I was moved to neuro and stayed there for 4 days but they never figured out what was wrong. The twitching (and horrible tremor) slowly reduced in frequency, I could walk again and eventually they sent me home. I was still experiencing the twitching but much less often.

A few weeks later I experienced the same thing with the twitching/conscious convulsions and was hospitalized again for 5 days. This time however I was completely incoherent for the first 2 days and remember none of it (fortunately I happened to be visiting my parents for thanksgiving at the time so they were there to get me to the hospital and stay with me). At the hospital they reduced my lamictal but otherwise couldn't figure out what was wrong.

I had another period of incoherence without the muscle spasms twice over the next two weeks. The incoherence may have been a strange reaction to oral morphine that I was prescribed for pain (i've always been fine on other narcotics however). I had taken significant doses of it each time prior to the incoherent episodes. I stopped taking it and I never had another episode. This still doesn't explain the twitching however. If you're still reading this thank you! Does any of these symptoms seem in any way related to Fibro/MPS? I have thousands and thousands of dollars in hospital bills (I'm uninsured) and no explanation for any of this.

Also Marlee, I never understood why deep massages (that feel so good at the time) end up making me feel worse in the long run. Thank you for the explanation.

Post Edited (Scarlett Dirt) : 1/24/2009 3:13:20 PM (GMT-7)


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 1/24/2009 3:12 PM (GMT -7)   
WELCOME!!!!!
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram, flexeril, and peroxicam, and Tylenol.


Scarlett Dirt
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/25/2009 3:26 AM (GMT -7)   
I'm sorry, I don't mean to bug, but if anyone else could possibly read what happened to me and let me know if it sounds familiar, I'm having a really hard time with all of this.
Myofacial Pain Syndrome, Generalized Anxiety Disorder, Eating Disorder NOS (basically I'm not bad enough to warrant a real diagnosis anymore) and Major Depressive Disorder (my favorite!).

Now we list medications? This doesn't like, show up on google under your name or anything does it?

Paxil
Xanax
Lamictal
Seroquel
Dexedrine
Baclofen
Dilaudid


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/25/2009 2:26 PM (GMT -7)   
That had to be really scary to go through all that. I take it they have checked for MS, lupus and RA which mimic fibro.
 
The weekend before Christmas I was getting comforters out from under one of the guest beds and pushed my knee into my ribs and feel a pop, being use to broken ribs I didn't go to the hos. On the 24th I started having muscle contractions in my ribs that kept getting worse as the day went on and I finally gave up and gave in and went to ER and they x-rayed my ribs. I was so glad my doc was on call and was there so I didn't have to explain any of my problems to another one of the doctors, which would have taken some time to do, hehe, there wasn't a radiologist there so my doc looked at the x-rays himself and couldn't see obvious new break but a lot of old breaks, the reason I have a lot of old breaks is another story. He did isolate the spot that had to have been cracked by pushing on my ribs and gave me a shot of kenalog and a shot of demerol and we came home. I went right to sleep but woke up at 3 am having worse contractions than I had been when I went to hos. I was contracting so bad I had to wake my DH to have him help me up cause I couldn't move. He got me to the recliner and got my TENS unit and they calmed down and I really didn't have any more contractions after that. Why am I telling you all this ??? I'm sure fibro was the cause of the contractions even though I didn't think to ask my doc. I had never felt anything like it except childbirth. Fibro can cause some really strange things in our bodies that make no sense to us or doctors but I do hope if this is not from fibro/MPS they get to the bottom of it.
 
Feel free to ask all the questions you want on here.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 1/25/2009 3:14 PM (GMT -7)   
Scarlet, You are not bugging anyone, we are all here seeking answers. Welcome.  I am sorry for all you are going through.  It is very hard to deal with symptoms that have no diagnosis.  I don't have the myofacial syndrome but can relate to the pain it causes, so in that way, I can say I know how you feel & truly empathise with you.  The only thing I can think of is epilepsy.  My stepdaughter has a form of epilepsy that causes her to shake & tremble but doesn't present as a full blown seizure.  Or it could possibly be a reaction to a medication.  Or it could be good ol' Fibro.  I sure hope you find the answers you are looking for.  I am sure someone here will be able to shed somekind of light on it for you or at least head you in the right direction.  Hugs, Denise     

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 1:07 PM (GMT -7)
There are a total of 2,731,734 posts in 300,955 threads.
View Active Threads


Who's Online
This forum has 151128 registered members. Please welcome our newest member, Diane82256.
314 Guest(s), 10 Registered Member(s) are currently online.  Details
Rikky1, Mrs. Brady, Girlie, Jack84, panicgirly, couchtater, Duffykani, Old Mike, Myself 09, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer