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jstoops
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/28/2009 10:16 AM (GMT -7)   
Hi Everyone,
 
I've been reading this and other boards for the past few months and am trying to figure out what is going on with me.  Three months ago yesterday I had a routine endoscopy done (I have a history of GERD/Dysphagia).  I was sedated with Versed/Fentanyl(sp?).  I had two previous endoscopies done using the same meds.  I was more groggy than usual for the rest of the day and slept from after the procedure (about 11 am) until 6 pm.  Upon awakening I was extremely stiff and my joints were very swollen.  I assumed it was from sleeping all day.  That night while I was sleeping my arm kept falling asleep, enough to worry me that I was having a stroke or heart attack so I went to the ER.  By this point my hands were so swollen I could barely move them, as well as my ankles, feet and knees.  In the ER they hydrated me, told me my SED rate was elevated and that if the swelling continued to check in with my GP.  When I got home I called my GI doctor to find out if this was a common reaction; he so no.  It all started on a Monday and by Friday I was still miserable.  I went to my GP who took blood and gave me an Ibuprofen prescription.  Over the next couple of weeks the swelling went down by the pain 'moved' from my joints to what felt like my muscles and bones.  It felt like I was wearing blood pressure cuffs around my arms and legs.  Fast forward to three weeks later when a nurse finally called me and said the my ANA test came back a little high and that if I was still having pain to come in...I was...so I did.  My GP didn't think it was Lupus, thought maybe it was a virus (Parvo/Fifth's) so she took more blood.  I also told her the pain was now predominantly in my hands, arms and feet...felt like bone pain (was no longer joint swelling).  She pressed on my shoulders and back a few times and I flinched so she told me to go home and read about Fibromyalgia and tell her what I think.  A few weeks later I went for a follow-up.  She said my blood came back showing that I had parvo virus, but that the level was pretty low so I should be over the symptoms.  She said the next step was to see a Rheumatologist.  In the meantime I had a follow up with my GI.  My problem has been a swallowing issue...I get certain foods stuck in my throat when eating, which I either regurgitate or have need removed by him.  He had bumped up my Prilosec and was suprised when I told him I still can't swallow meat.  He then order a motility test (manometry) and PH monitoring test to check how well my esophagus works.  He said that all of my other problems could be linked to a motility issue...he suggested Lupus or Scleroderma.  These tests are scheduled for next month.  After reading about all of the possibilities Fibro seems to fit the most.  Currently my biggest complaints are chronic arm, foot and hand pain.  Exertion makes them worse (cooking all day, cleaning).  I also have my feet falling asleep a few times per week.  I am also very tired, never feel like I get a full night sleep.  Am very sensitive to being touched (which is very hard with a four-year old son with Autism and a two-year old son), have terrible PMS (like when I was a teenager...I am now thirty-eight years old.) My pain is worse when I'm out in the cold.  I am more anxious than normal.  My shoulders and neck always feel tensed up. I should also add in that my mother-in-law (who I helped take care of) was in the hospital dying at the time this all started, she passed away November 2nd.  My husband is very good at giving me breaks from the boys so that I can catch up on rest.  I don't work outside the home.  I also have Asthma (since I was two-years old...seems worse lately).  I also have a history of depression.  Have been on anti-depressants for about ten years (Prozac, then Celexa and now Effexor.) My GP has also prescribed Xanax for the anxiety I've been having. 
 
Anyway...thanks if you have read my very long post.  I see the Rheumatologist on Monday (Feb. 2nd) and am very nervous.  I feel confident that he is a good doctor, he was suggested by several different people including my GP...say he is a very good diagnostician.  Any feedback would be greatly appreciated, you all seem like such a great support system.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/28/2009 10:40 AM (GMT -7)   
Hi, and welcome!  Many of the things yo mentioned could possibly be from fibro but it is good that your doctor is being so thorough.  You see, fibromyalgia mimics other illnesses...illnesses that can be treated.  So, doctors want to rule out the other illnesses before a definitive diagnosis of fibromyalgia is given.
 
Check out the Fibro 101 thread...the second thread on the forum.  You will find links to good information about fibro including symptoms, a link called What Else Could It Be, and some good stretching exercises that may help you.  You just might see yourself in these posts. 
 
I'm so glad that you joined in.  We do have good people here that have good ideas that can help you live a full and enjoyable life with fibro, if that is what is finally diagnosed.  Let us know what your doctor has to say on February 2nd!  We really do care.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 1/28/2009 10:50:45 AM (GMT-7)


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 1/28/2009 10:54 AM (GMT -7)   
Welcome to the board, I know you will love it as much as I do!!!!
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram,amitriptyline, and peroxicam, and vicodin.


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/30/2009 2:20 AM (GMT -7)   

Welcome to the board!

Alot of your symptoms do sound like Fibro, but it is always good to get tests to rule everything else out. It is good that you will be seeing a Rheumatologist soon. I love my Rheumy and I finally started getting things done with him. At least you will be able to find out for sure what is going on with you and maybe get some meds to help you get thru it.

You have your hands full with 2 little boys. Take care and try not to over do. Keep us posted on your Rheumy appt. Good luck!

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 1/30/2009 8:07 AM (GMT -7)   

Hi jstoops and Welcome-

Alot of your symptoms sound like mine. Trouble swallowing, feet/hands/arms going numb, never feeling rested, neck/shoulder pain, etc. etc. Sounds like you have a great Dr. and she is being very thorough. And a couple referrals on the rheumy tells me he/she is good also. Let us know how the appointment goes, and do you have a list of everything you want to talk to him/her about? That does help. I forget things if I don't have it written down.

Keep us posted and it was nice to meet you!

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


WyldOrchid5150
Regular Member


Date Joined Dec 2008
Total Posts : 174
   Posted 1/30/2009 8:27 AM (GMT -7)   
Welcome jstroops,
wow..thats a mess.Just a thought,could maybe you could have had an allergic reaction to the medication they gave you? even if you've had it before,things in your body can change.I hope you can get some answers at you appt.
Any help we can give,we'll be glad to do it.These are wonderful people,have helped me more than they'll ever know.
Fibro,Heart Disease,Diabetes,Hyperlipademia,2 Stents,The Fog, other assorted twigs and berries.
       Metoprolol 100mg   Lisnopril 20mg  Glucophage100mg  Goody Powders 5 a day
                                             She Hath Done Wonderous Naughty


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/30/2009 9:00 AM (GMT -7)   
Hi jstoops and welcome. Do you have dry mouth from meds you take??? That could be causing swallowing problems. I have to drink with every bite of some foods cause I have so little saliva and I don't eat chunks of meat. I hope they get at the bottom of things and you get a dx soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40598
   Posted 1/30/2009 9:38 AM (GMT -7)   
Hi jstroops,

I just wanted to welcome you to the fibro forum. This is a wonderful place to come. The members here are so helpful.

As Sherrine mentioned, check out the fibro101 thread. It has a wealth of information on it. You will probably see yourself in some of the posts.

I hope that you stick around, this is such a wonderful forum.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


jstoops
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/30/2009 10:04 AM (GMT -7)   
Thanks everyone for your warm welcome and advice. I'm nervous but excited to see the Rheumatologist on Monday...just want to figure it out. To WyldOrchid5150, they don't think it was the sedatives...there is something called serum sickness but it usally applies to antibiotics. And to Marlee2, I've had the swallowing problem since my early twenties when I wasn't on any meds. I never looked into it (just thought I ate too fast) until one day I literally could not swallow even a drop of water, had to go to the ER and the GI found a piece of meat stuck in my throat (had been in there three weeks...yuck!) He said I have strictures (scarring) probably caused by acid reflux (although I don't have a history of heartburn!) He thought the Prilosec twice a day would help but hasn't after two years so thats why he wants to investigate more with the mamometry and ph tests. I will check back in on Monday after my appointment. Thank you all so much, I'm really glad I joined and posted. - Jennifer

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/30/2009 12:09 PM (GMT -7)   
Wow that swallowing issue sounds scarey honey. I hope you get to the bottom of that too. As to the other issue, the numbness and the elevated test results, I have faith that your highly recommended rheumatologist will get to the bottom of what is plagueing (sp?) you. Please PLease let us know how it all goes. I will be looking for your next post.

God bless. I'm saying a prayer for you right now.

Lindaloo

PS welcome to the forum from me too
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


jstoops
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 2/2/2009 10:45 AM (GMT -7)   
Hi and thanks again for all of your support! I just got home from the Rheumatologist, I loved him. He believes that I did indeed have Parvo Virus like my GP said (that I would have caught from my two-year old) that then triggered Fibromyalgia. He actually did a study in his fellowship that linked the two together...could I have landed a more appropriate doctor! He is also concerned about my swallowing issues, and when he reviewed my chart from my GI doctor he was even more concerned because my endoscopy biopsy came back showing something called Eonsophilic Esophagitis, basically extra white blood cells in my esophagus causing inflamation. The strange thing is that my GI did the endoscope in order to test for this, but told me the biopsy did not reflect EE. The Rheumy then showed me the file where my GI wrote that I have EE, even though he told me I didn't! So...my rheumy suggested a GI that is associated with our universtity (thank goodness I live in Pittsurgh, the University of Pittsburgh is known for great medical doctors). He wants me to see him to find out what is causing the EE, could be a link to my Fibro problems. So for now he put me on Gabapentin, told me to cut out caffeine, fatty foods and start excercising. He also did a blood work-up and I have a follow up with him on February 18th.

Did anyone else's fibro get kicked off by parvo virus? Does anyone take Gabapentin? If so, can you give me some inside scoop on it.

Again, thanks again for all of your support. - Jennifer

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/2/2009 11:05 AM (GMT -7)   
Jennifer, I'm so glad you found such a wonderful rheumatologist!  They'll get to the bottom of your swallowing issues.  Yes, the University of Pittsburg is an excellent hospital.  I live in the Tampa Bay area and my GI at Tampa General received all of his education at University of Pittsburg and he, too, is fabulous!  Teaching hospitals are the best, I think. So, you have a great team of doctors helping you now.  Congrats!
 
I have no idea what kicked off my fibro but I've had it nearly 22 years.  But, I have learned how to control the pain and have lived a great life so far.  A positive attitude and a good sense of humor helps a lot.  So, we are here for you and will help you any way we can.
 
I'm sure someone will come on that can answer your questions...especially the Gabapentin one.  Have a good day!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/3/2009 6:32 AM (GMT -7)   
Just wanted to say hi and welcome you to the forum!! I have some problems swallowing too. (although you'd never know it to look at me). I'm glad you've got some good docs!! Good luck with your dx and let us know how things are going for you.
Take care,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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