What have you given up due to Fibro?

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dolphinfire
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Date Joined Jan 2009
Total Posts : 120
   Posted 1/28/2009 11:22 AM (GMT -7)   
For me it has been dancing and snowmobiling, and for some reason I stopped drawing. I think due to being depressed about being sick all the time. So I picked up knitting and started reading more.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram,amitriptyline, and peroxicam, and vicodin.


Sherrine
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Date Joined Apr 2005
Total Posts : 17101
   Posted 1/28/2009 11:23 AM (GMT -7)   
I can't move the piano when I clean anymore.  devil
 
Actually, I haven't given up much of anything.  I just pace myself and get the stuff done but in a different time frame.  I also find I'm moving MORE with fibro than I did before I had fibro!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 1/28/2009 11:26:07 AM (GMT-7)


TeNNiSd0C09
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Date Joined Jul 2007
Total Posts : 1303
   Posted 1/28/2009 12:03 PM (GMT -7)   
Actually, I refuse to believe that I have "given" anything up! But, I am not able to play sports on our school teams because our coaches push us too hard and it hurts me too much..So I had to give up basketball, then volleyball, THEN tennis! lol And I was really good at all of those... rolleyes
 
But, I still play. I still do things. Not as much. I dont push myself very hard because I know I am just not able to handle it. Although, I still ride dirtbikes and I wont dare slack up on how hard I push myself with that! I love it too much! Its a very physical sport...but I just have a certain passion for it so...
 
I sometimes cry because I DO feel like I have had to give up so much....but in reality, I can still do all that I ever did, just not as long, much, or hard as I did before!
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 1/28/2009 12:15 PM (GMT -7)   
Nothing! I have adjusted how I do some things, but will never let FM limit me.

JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 1/28/2009 1:22 PM (GMT -7)   
I loved and played soccer for years... instead of playing now, since I know I don't quite have the energy for it, I've decided to coach kids this season... I can teach the basics without having to run circles. :P And 12 year old girls always need a little more support when playing on mixed teams (that's all we have here) learning to "chest" the ball takes a lot of courage haha.
Diagnosed with Fibro - October 2008

Venlafaxine 70mg/Armitriptyline 40mg to help me sleep and anxiety

Ativan... when things get real bad.


Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 1/28/2009 1:59 PM (GMT -7)   
Tennis...I"m sorry you're having to give up so much at your young age. Work at finding things you CAN do and be successful at while enjoying them.

I had to give up my job..and that still stings. I have given up speed and stamina but do most things, just at a slower pace. Have to ask for help now and then and I HATE that. But I manage to keep pushing on. When I get bummed or down I get on here and read posts from folks who 'lift me up'... ;-)

Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/28/2009 3:46 PM (GMT -7)   
my life.
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 1/28/2009 5:41 PM (GMT -7)   
mental clarity

            'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)                  
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, GERD,  IBS, Glandular fever, Migraines, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, PTSD, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, tinnitus, low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Celebrex. Mobic. Panadeine Forte. Digesic. Nexium. Phenergan.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


hurtinginaz
Regular Member


Date Joined Jan 2009
Total Posts : 33
   Posted 1/28/2009 6:39 PM (GMT -7)   
I have given up SO many things; happiness for one, the ability to walk up stairs without my heart racing and feeling dizzy and faint, the ability to go anywhere for more than 20 minutes without feeling really tired and like ive overexerted myself, the ability to keep my house clean and do the laundry. The ability to sit at the computer and read email or anything really for more than a half hour cause my eyes get so tired and its hard to sit up straight for a long period of time, being able to eat normally, being able to sleep, being able to be at all frequently intimate with my husband, hiking, working out, doing pilates. I could think of more but i think ill stop at that.
-kim
Fibromyalgia, CFS, Gastroparesis, IBS, tarsal tunnel in both feet, scoliosis, orthostatic intolerance, anxiety & depression. CYMBALTA, ULTRAM, SOMA, PROBIOTIC FORMULA W/ACIDOPHILLUS, MIRALAX, FIBER CHOICE, MULTI-VITAMIN, SUPER B-COMPLEX, MAGNESIUM MALATE.


Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 1/29/2009 12:46 AM (GMT -7)   
My engineering career. I'm earning less than 20% of what I'd be earning had I been able to continue my career. All those calculus classes in college turned out to be a waste of time. I've lost the ability to pay for decent medical care and dental work. If my youngest doesn't get a scholarship, he's not going to college. Neither kid got the braces they need.

On the other hand, I have not lost my sense of humor. I found a great husband. My kids are kind, decent human beings (with crooked teeth!).

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/29/2009 3:52 AM (GMT -7)   
Dagger,

Your post made me smile. I KNEW you were smart and now I find that you
are funny.
Well, here on the Forums we're all a little funny. Don't you think so?

Pamela smilewinkgrin

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/29/2009 6:47 AM (GMT -7)   
This is a tough one, since I do my darnest be positive.  I guess I would say self confidence, the ability to hold a leadership role in the community and enthusiasm (sp?).  I don't like having to think about how or where its going to hurt when I want to do something

spontaneous. Another thing I gave up was my job, that's a biggy!! 

 

Ugg.. I think I just bummed myself out!! (happy thoughts.. happy thoughts.. happy thoughts)... OK I'm better now!! 


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 1/29/2009 7:40 AM (GMT -7)   
on the one hand, fibro has forced me to give up everything. who i thought i was and what i was able to do is gone now. this dd has smashed me into a million little pieces and left me reeling with the reality that Life As I Knew It will never exist the same again. i can no longer push myself 24/7 to get done what i want to get done. i can no longer keep a spotless house. i can no longer go for walks and hikes that last for hours and hours. i can no longer go out with my friends or my husband and dance in a club until 2:00 am. i can no longer chase my kids around the park. i can no longer just get up and go whenever i feel like and go wherever i want to. i can no longer spend hours at a time driving around seeing new, interesting places. i can no longer pop out of bed and jump right into my day. i can no longer stand on my feet for 8 hours at a time like i've done in some of my jobs. i can no longer have deep, long winded philosophical conversations that last for hours. i am no longer who i thought i was.

on the other hand-fibro has forced me to give up nothing at all, and has in fact given me a whole new, wonderful world. after the fire that is fibro destroyed my whole world, i was given the wonderful opportunity to build a new life. i am kinder to myself now. i am gentler with myself. i am kinder and gentler with others now, too. in rebuilding myself i have discovered that i am much stronger than i thought i was. i have discovered that short walks and short dances can be just as sweet as the long ones. i have discovered that my children need me to just be there with them. i don't have to jump through hoops to make them happy, i just have to be there and love them, even if all we do is sit on the couch. i've learned that i am brave and strong and a survivor. i have learned i am a BETTER person than i thought i was before fibro came into my life.

so, when i think about it, in some ways i owe fibro my life. not my old one that was based on my need to please others or prove myself to be smart enough and capable enough to make everyone impressed with me, but the new me who is more aware of her life moment to moment, who is more loving, forgiving, and compassionate. if i am truly honest with myself, i have to say that i like the new me better and i have to say that, despite the pain and the fatigue and having to be very frugal with my spoons, my new life is brigher, richer, more fuller than the old one could ever have been.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 1/29/2009 7:51 AM (GMT -7)   
Jumping back in..
Way to GO DANIELLE!!!!! wink
High Fives Girl.  yeah
Great attitude!!!!! tongue
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Kris13
Regular Member


Date Joined Nov 2005
Total Posts : 208
   Posted 1/29/2009 10:53 AM (GMT -7)   
I feel like I've given up on a lot. Working hurts very bad. Sitting all day at a computer hurts, moving around and standing hurts. Everything I used to take for granted is now work. Gardening, walking, hiking, my photography all seems like work. The only things I really try to enjoy and make it not seem hard. So like others I take it very slow. If I see a pretty flower that I need to take a photo of and it hurts real bad to get down into the postion to take the photo I'd rather do that then pull the weeds around the flower. They just have to wait! I find that now I do things only when needed, not just because I think they need to be done. The laundry can wait an hour. The dishes can too. But fun stuff that makes me feel good can't. If I'm having a good time, I go out and do those things. The other stuff can wait.

One strange thing happened, I started taking a medication that really worked. It took ALL my fibro pain away. I still had pain but from other conditions. I had to go off it due to horrible side effects. But for that glorious month I felt normal. Now I feel bad again, only this time it's much more difficult to deal with becuase of that bittersweet month. I know what it feels like to be normal. I know even though that month was great I may never have it again. It makes me want to cry. I almost wish I didn't have it.

P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 1/29/2009 11:55 AM (GMT -7)   
Running, intense weight training, training for fitness competitions, and step aerobics.

Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day, .750mg clonazepam, 7mg Lexapro
1,000mg canasa suppositories (PM),
 Fioricet-Migraines, Nexium 40mg(Heartburn/GERD), Triple Strength Fish Oils
Colonoscopies-4
Upper GI and Bowel Series 11/08


FibroBooBoo
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/29/2009 4:58 PM (GMT -7)   
I had to give up my job. My biggest - I've given up taking things for granted.

The worst part is being given up on by people who you thought were your friends.

Fibro has taught me a lot. It's taken things away and introduced new things.
{{{hugs}}}
Tina

Diagnosed in 1999, SSD 2000, Fibromyalgia, Myofascial Pain Syndrome, Tendonitis, Arhtritis,
Hiatial Hernia, Acid Reflux, GERD, Hypoglycemic, Allergies... and the list goes on. My Doctor says
I am an enigma LOL.

Meds: Wellbutrin XL, Flexeril, Prilosec, Tramadol, Mobic, Zyrtec, Tylenol


MarcieinOhio
Regular Member


Date Joined Jan 2006
Total Posts : 38
   Posted 1/29/2009 7:37 PM (GMT -7)   
I have given up Karate. I was working on my black belt. I have also given up golfing as I also have Lupus. What I haven't given up in my ability to keep a positive attitude and take one day at a time. I have found joy in working with Stained Glass and Fused Glass. I have my own glass studio. It helps keep my mind on something other than pain.

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/29/2009 11:54 PM (GMT -7)   
I have given up everything.  I no longer can drive which means im stuck here at home as unable to use public transport, couldnt even walk to the bus stop let alone everything else. I feel I have lost my standing in the family like I no longer exists and my families life just continues around me. I can still wash and iron in small doses and dust the house and as for seeing peole I never really enjoy it anymore so in a way Ive given up my external life as well.  I do try but I cant think, or be what I use to be. Its not a matter of being strong because the pain is just to bad and everyones is different.  So I guess you can say Everything, though I try keep my daughters and my relationship going strong she use to be my rock but now is studying and always busy. sad sad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 1/30/2009 1:47 AM (GMT -7)   

I cannot work around my yard anymore with my flowers. My knees are so bad that I can't even lean on them to get into bed. I also don't read anymore which has always been my favorite hobby. It seems to make my neck hurt and then I end up getting a headache and also can't sit for that long without getting too stiff.

The thing I miss most...I cannot pick up my grandchildren anymore. I just don't have the strength in my arms.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/30/2009 9:36 AM (GMT -7)   
Danielle I loved your post. It wasn't until recently when Ken got sick that I realized how much slack he had been picking around here and how much I had given up in the past couple of years. Now it's time for me to regroup and try harder to push myself and not depend on him so much.
 
Like Danielle it has also made me a calmer person and I'm sure not the self driven perfectionist I use to be that drove not only myself but my family crazy. When your running through life you miss a lot of things but when you slow down and stroll through life you can see the little things around you and appreciate them. It would be nice to find a happy medium between running and crawling the way I have been.
 
Margie I have a garden stool on wheels that you can sit on to work, it also opens so you can keep your tools in it. I think I got it at Ace Hardware. That might make working outside easier.
 
My GD and I were talking about books last night and I don't read like I use to cause just holding a book in my arthritic hands can be a problem and like you said finding a comfy position for any length of time. I do have one book that she has read that she says I have to read so we can talk about it.
 
My grandchildren are all too big to pick up and have been for a few years since fibro has been bad but since we will be having a new baby in the family in April I so hope I can pick him up and rock him. I kinda got use to holding Krissy starting at about 2 lbs and I've worked my way up to 8 or 9 lbs that she weighs now so the gradual increase in weight has made it possible. I hope that helps me when the baby gets here.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Breezie
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/30/2009 2:19 PM (GMT -7)   
What I have had to give up in regards to having "Fibromyalgia", is my whole way of living.  I cannot work anymore..  that was the hardest thing for me to give up.  I have always enjoyed working, helping other people..  I have worked most of my life in the "medical field"...  I always told myself, treat someone the way you would want to be treated if you were sick, had a long term illness, etc. .  I was known as "Road Runner"...(for those of you who are old enough to remember that cartoon) LOL..   Also known as "speedy"....
I worked out at gym 3-4 times a week, did my "yoga".. done since highschool, and also worked full time,
cleaned home, laundry, all yard work, you name, I did it... ( and I could do it)...  Now, I have to pace myself with some things, and a lot of things I cant do at all.   But, life has to go on.  And I refuse to let this "Fibromyalgia" or anything else that may comes up with my health get to me.. and take my spirit away!
I say to all of you...  "Keep your Spirit"....   no matter how hard...  it may go away some days.. but let it come back to you...  
Breezie

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/31/2009 9:50 AM (GMT -7)   
That's the right word Breezie fibro broke my "spirit" without me even realizing it. I've had a do or die attitude all my life, if someone told me I couldn't do something I would have to prove them wrong. I've got a lot to prove to fibro.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/31/2009 10:46 PM (GMT -7)   
Well said Danielle. I am actually learning to take care of myself better now that I have the limitations. I have given up parking at the far end of the parking lot and walking to the store because I never know if I will be able to get back to my car later! Working in the kitchen can be hard but I am considering getting a drafting chair so I can roll about and do things while sitting down.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 2/1/2009 11:49 PM (GMT -7)   
Statgeek ...
good idea!
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.

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