Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
"Life is far too important to be taken seriously." –Oscar Wilde, 1982
For me, Fibro is that overall general malaise (flu like feeling) along with some specific areas of "pain" that seem to migrate from one place to another (but generally reside in the large muscle groups and low back) and can be low level, or completely distracting. I think the fatigue comes from the chronic nature of the pain. It takes a lot of energy to constantly override pain!
I don't take narcotic pain meds - I can't tolerate them. That means that normal activity is just impossible on some days. And that stresses and frustrates me which doesn't help the "relaxation" approach. I too, would consider that I have a 2-3 pain level most every day - which creeps up with wonky weather and or stress. I sometimes find that an Advil helps take the edge off. And when it does, I experience a little spurt of energy as well. In fact, my husband will often caution me to "slow down - remember you took Advil!" If I do too much during that spurt of energy - there is a price to pay when it wears off. My PCP has given me Darvocet to "keep on the shelf" for really bad pain. I have gotten some good results from massage therapy, but they are short-lived. At times it's very hard to distinguish which process is flaring....fibro or the AI stuff....or both.
Yep, flu like symptoms are constant for me. But every now and then, when I'm having what I call a flare, the pain gets pretty intense. I would rate it at about a 7-8. It migrates. Today it's in a new and different place than usual. My knee. I never have pain there but today.. its really bugging me. I usually have pain in my hands wrists, lower back, neck, shoulders, headache, chest, and of all the weird places - arm pits (almost like I've been lifting barbells - sheesh just the thought of lifting barbells make me shiver!!).
So long a short of it, the fatigue causes a lot of the pain and if I don't listen to my body it causes a big time flare.
Hope that helps a little.