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realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 2/5/2009 2:14 PM (GMT -7)   
Ok so... for like the last month or two I have had these twitches... not like you just see a twitch under the skin... it actually moves me.  I just had one in my side and my whole upper body twitched a bit.  I have them in all my extremeties (SP?) and it usually happens when I am just relaxing, and my whole arm or leg will actually twitch.  I always forget to mention it to the doctor because its not a huge thing for me.  I just never know when it will happen...  It happens usually daily but very unexpected. Anyone else get this?


Wishing everyone a great day, ((((hugs))))
 
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 2/5/2009 2:21 PM (GMT -7)   
Hi,

As soon as I saw twitches I opened your post. Yes, yes, yes, they are referred to as fasciculations and I mainly have them in my calves BUT it is not unusual for them to be in other places. They come and go and the skin literally raises. I have seen 2 leading neurologists as they were driving me nuts. Apparently it is a part of fibro that affects the nervous system. Both the muscular and nervous systems are affected with this disorder. Now mine are benign. If you research BFS, benign fasciculation syndrome there is a lot on it. Cramping can also go with it and has in my calves. The malic acid, magnesium regimen I got from our forum has greatly helped my cramping. I still have some but nothing like I was. Do you cramp??

I noticed you list hypotension and hypertension in your bio, that's unusual isn't it?

Hope this helped, Patsie

julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/5/2009 2:26 PM (GMT -7)   
I get these random twitches all over. So far, they haven't bugged me too much.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 2/5/2009 2:30 PM (GMT -7)   
Hello Patsie...
 
First... no I don't get the cramping too often,sometimes my big toe likes to cramp.. hard to explain... I guess it's in my tendon really and just makes mybig toe bend down where I can hardly even straighten it... VERY painful!! But that hasn't happened much either lately. 
 
As for my Hypo and hyper tension... yeah I boggle them, all!!! It is VERY hard to treat but my dr had got my pulse to about 100 sitting still and THAT has been WONDERFUL for me.  I was at (on average) about 135 at resting.  He put me on a very low dose beta blocker and a low dose xanax and the combo has helped.  I have a friend that is a nurse and when I call asking about things she just laughs... she told me just yesterday that I am a very abnormal patient and that she CANNOT help me, because NO ONE has the answers as to why my body does what it does!!!! She has been there thru my whole 8 1/2yr long journey trying to find out why my body does what it does.  All at once I got everything listed below... except my fibro cystic breast disease which came about a year later. 


Wishing everyone a great day, ((((hugs))))
 
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.

Post Edited (realpain) : 2/5/2009 3:14:34 PM (GMT-7)


realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 2/5/2009 2:32 PM (GMT -7)   
Julieleaps,
 
yeah they don't necessarily bother me either, they are really the least of my problems, I just wondered if anyone else experiences this as well.  I actually chuckle a bit when it happens... it always catches me off guard!!! : )  You just never know what is related to fibro and what isn't ya know?
Wishing everyone a great day, ((((hugs))))
 
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 2/5/2009 6:03 PM (GMT -7)   
I get the twitches and yes they do kind of sneak up on you.  I recently realized that taking the malic acid/magnesium supplements have helped with the twitches and my speech.  I was taking the supplements for about two months and wasn't sure if they were working because my energy level didn't really change and the pain was about the same but the twitching and my speech improved a lot.  So, I stopped taking the supplements and the twitches came back and I started having trouble speaking again.  I think I have been off of the supplements for about two weeks now and was just telling my husband that I will be ordering another bottle of the supplements.  The twitches are embarrassing but managable but my speech is just crawl under the table embarrassing  blush .

Meggie
 
Fibromyalgia, Irritable Bowel Syndrome, Restless Leg Syndrome, Migraines
42 year old proud mom of three daughters


realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 2/5/2009 6:14 PM (GMT -7)   
Meggie,
 
I don't necessarily have speech problems... just get lost in converstion a lot.  Like I will be in the middle of saying something and completely have NO idea what my point even was.  Plus at times I get confused about certain words..and have to check and recheck while typing things.  What type of speech problems due you deal with?? I keep saying I am going to go get some malic acid/magnesium supplements but always forget I am writing it down now... yup just did.  Hopefully it will helpme some as well... I have horrible headaches and obviously those twitches, and my knees have been killing me lately and nothing seems to help, hopefully it will help take some edge off and I will have the energy to do my stretches and what not... so that I canget soem relief!!!  Take care of yourself... I hope things get back on track again for you!!!! ♥
Wishing everyone a great day, ((((hugs))))
 
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 2/6/2009 1:26 PM (GMT -7)   

Rach,

I get lost when I'm speaking also and typing, can't remember words or how to spell but the thing that really gets me is when I'm trying to talk to someone and it's like my mouth is working faster than my brain can think.  I start to stutter and say the wrong words.  I don't even know why I say some of the things I do, I'm not thinking about them.  An example would be me telling my kids that the milk is in the shower.  Then when they look at me funny, I say "What", I don't even remember saying it.  I have noticed a big improvement in being able to find my words and they come to me quick enough that I don't stutter or slur my words.  I also don't forget what I am doing quite as much.  I still get confused but it is so much better. 

I have been trying all day to order more supplements but for some reason my computer is not cooperating, it's working really slow, I think it needs some malic acid/magnesium pills.


Meggie
 
Fibromyalgia, Irritable Bowel Syndrome, Restless Leg Syndrome, Migraines
42 year old proud mom of three daughters


realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 2/6/2009 1:56 PM (GMT -7)   
Meggie,
 
LOL... maybe it does!!!! : ) 
 
 
That was a funny example you said... I have noticed myself doing that more and more lately.  My whole family thinks I'm nuts sometimes.  And I swearup and down that is NOT what I said.  I swear I said the right thing, but they tend to out number me!!!! : ) Well good luck on the ordering, I think I am going to shop around this weekend to find some.  Have a great weekend!!!


Wishing everyone a great day, ((((hugs))))
 
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.

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