I agree with the advice you have been given so far. I just want to welcome you. You're a special person for doing research on FM so you can understand your sweetie's medical issues. A lot of us get angry at this thing called fibromyalgia. There's times when I "feel sorry for myself" but then I remind myself it could be way worse.. it could be cancer or MS or Lupus. At least with FMS I have good days, too.
My husband is incredibly supportive of me. When we met I was just coming off of my last bout with Lyme Disease. So he has always been aware that, at times, I have certain limitations. I know there are times when he wants to do something or go somewhere and I just can't. He never complains or makes me feel inadequate in anyway. I know at times he's disappointed but somehow we work through it. Fortunately he enjoys taking little naps on the weekends or when he takes time off. (He has sleep apnea.. on a CPAP so he understands fatigue).
I wish you all the best in your relationship and hope you find the answers you need.
Be well and all the best!
Hello to all of you, and a very BIG THANK YOU!!! First I would like to say, no I am not trying to rescue him. My intentions is to walk through this life with him and show him love and happiness. We dated for quite sometime before I was told about the Fibro. I fell in love with him for who he is. I cannot and will not walk away from him because of this illness! He has become my best friend and we share many good times. I understand that there are times when he needs his space and I give it to him. Thank you all for the suggestion about the massage and the need for gentle touch. Yes I have seen the need for tenative plans and his need to cancel and I handle it to the best of my abilities, I know it is due to the illness and not personal. He is such a very special man! I no there is no cure, I just want to do whatever necessary to help ease his pain and let him know someone cares for him and will stick by his side! I have been reading your posts on this thread and I see there is light at the end of the tunnel and I see there is hope for a quality life. I continue my research with hope. Thank you again for welcoming me, you all have inspired me.
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ,
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11