New here, and so excited!

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sugarchic9985
New Member


Date Joined Feb 2009
Total Posts : 17
   Posted 2/11/2009 9:02 PM (GMT -7)   
I just had an appt. with a doctor today who was awesome! I'm 23, and have been having symptoms of FMS for about 3 years, although I just recently found out what it was. Apparently, this is something that my father, my aunt, and their father were diagnosed with. My pcp constantly blew me off and attributed complaints to depression, not enough water, exercise, too much sugar & fat, etc. I don't have insurance so it was just costing me way to much money to constantly be going to the doctor to complain about pain, exhaustion, ibs, headaches, etc. I pretty much gave up. I just recently had a baby and as excited as I am, I also feel worse than ever and have started to get really depressed about it. I had to quit breastfeeding because it hurt to much to hold him in position and I was not always alert enough to do it. I barely make it through the day at work. I never have the energy to do household things like laundry and cooking and dishes. It seems to all have fallen on my husbands shoulders. When my son would wake up screaming at night, I wouldn't always be able to pick him up right away because of how stiff I was. So, I scheduled another appt. with my pcp, who prescribed Lexepro and told me it had to be post partum depression. I finally got fed up and saw an advertisement for a doctor who would see uninsured patients for $50. His ad seemed really sympathetic so I e-mailed him and told him what was going on. I had my first appointment with him today, and thankfully he really listened. Since a few people in my family have FMS, he thought there was a good possibility that I do too. We discussed options, and he prescribed me Celexa, Neurotin, Flexeril, and Ultram. Because, these drugs are extremely cheap, we decided to try these first. I am happy for the first time in months! I realize that these drugs may or may not help, but I am happy to have found a doctor that is willing to help me find something that does work. It has been so long since I have done anything fun because I know that I may physically pay for it the next day. It really started to depress me the way people would insist that it is just laziness, or that since I'm 23 "I have no idea what pain and exhaustion are". And it doesn't help when it seems that my doctor agrees with them. I'm just really excited to have found a whole forum of people that have this, and a doc who is willing to help me with it!

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 2/11/2009 10:14 PM (GMT -7)   
Welcome sugar,

I am glad you posted here. I am also happy for you that you found a doctor that will listen to you. It sounds like he has some good medication ideas for you. That is a good thing, especially since you don't have insurance.

I know how hard having a new baby is too. My second granddaughter was just born and we are all helping out. I find it very hard to hold Anna for any length of time because of the fibro symptoms in my arms. I helped raise her 4 year old sister, but I am much worse off than before, so I am crossing my fingers with this one. Her mom goes back to work next Tuesday.

I'm glad your husband is being supportive. That is so important.

Well you have a new doctor, a supportive husband and this forum with wonderful, caring people. You are on your way to help manage this crazy disease. Keep posting and let us get to know you, OK?

Gentle hugs and remember I am here for you.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/11/2009 10:29 PM (GMT -7)   
Sugarchic,

I'm sorry that you have to get excited about finding a whole forum of people that are suffering like you...but, glad you did find us.

Hope you are on the right track to get some relief soon.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 2/11/2009 10:46 PM (GMT -7)   

Sugar,

So glad you were able to find a doctor who listens. Having a doctor that will at least talk about Fibro makes things so much easier. Sounds like he has started you out with some things that should help. I know we are all different, some things work for some & others don't. If they don't I'm sure he will try different things until he comes up with something that works well to keep you comfortable.

I can't imagine having a small child to care for with the way I feel. It takes me an hour in the morning before I can even walk & even pick up a glass. I applaud you for doing a great job! You will find many caring people here to talk with about anything, so glad you found us.

Good luck and keep us posted on how you are doing and if the medications help.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/11/2009 10:51 PM (GMT -7)   
Hi Sugar and welcome to our family! One thing I want to mention is that you should qualify for some form of state insurance. Most all states, if you're in the USA, have state sponsored insurance and that includes for working and non working people. If you are unsure about who to talk to you can always call your local Red Cross and they will hook you up. Especially with a new baby in the house you sure will need that insurance.

Good luck and hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 2/12/2009 1:43 AM (GMT -7)   
Hey Sugar, and welcome to a great forum. I think its great that you have found a resource in your new doc who can help you navigate your way through learning to live abundantly with this fickle health challenge. I would like to mention one thing about the meds he prescribed. I am on flexeril and ultram; for me they are a great combo. My warning is simple [and if you know this already please forgive me] that the combo can make you very drowsy, and flexeril can cause incredible cotton mouth. I am not usually hit by lots of side effects but the dry mouth is real for me. There are days, if I have something important on my agenda that requires public speaking or doing a workshop that I can't deal with dry mouth, I don't take the flexeril till night. The drowsy side effect doesn't bother me, but some people do say its a problem for taking during the day. I hope you begin feeling much better soonest!
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/12/2009 6:08 AM (GMT -7)   

Hello there Sugar!!

Welcome to the Healing Well Fibro. Forum!!  I'm sure you'll learn a lot from this great place and all of these wonderful folks!.  We are truly a family here and we all care very much about each other and anyone suffering from this horrible syndrome.  Please be sure to check out the 2nd thread called Fibro. 101.  There's tons of info on there and hints on how to have a life while suffering from Fibro.

I'm so happy for you... finding a doctor that has a clue is an important first step.  Getting proper meds is critical and learning to live with Fibro is really important too.  I know when I was getting my dx I was happy to know it wasn't MS, Lupus or cancer.. but I was pretty bummed out to find out I had a problem that would last for the rest of my life.  Learning to deal with this and accept it takes some time.  (I'm still working on the acceptance thing.. even though I've known I have FMS most of my adult life).

Congrats on the baby!!!  I know its hard to pick him up and enjoy him and hopefully when the meds kick in you'll be able to do so with no problems.  They're only little and snuggly for such a short time so love every minute of it while you can.

I wanted to welcome you and let you know we're all here for you, through the good and bad, we're always willing to help.  Sometimes we get a little crazy here.. but when you live with constant pain and brain fog its better to laugh than cry.

Give that baby a snuggle for me...

Warm hugs,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/12/2009 7:12 AM (GMT -7)   
Hi Sugar and welcome to the family. Sounds like you hit the jackpot with finding a doc that listened and US. This is a great group of people and you will learn a lot on here. Read, ask questions and vent when you need to.
 
Congrats on the new baby!!!
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 2/12/2009 8:27 AM (GMT -7)   
Hi Sugar,

Welcome to the family! I am so happy you found us! Definitely listen to the advice given and check out Fibro 101. There is a wealth of knowledge there and it's wonderful to have that info available. Also, please come and ask questions whenever you want to. The people here are super friendly and caring and will help you out in any way they can!

I am so glad that you finally found a Dr. who took your concerns seriously. That is so, so important (I'm still looking for one myself..ugh) I do hope that the medications work for you so you can get to feeling better soon.

Also-congrats on the new baby! They are so wonderful, aren't they? And please don't beat yourself up about not being able to breastfeed. I have three children myself and for some reason my 2nd child absolutely refused to nurse. He would reject the breast every time I offered it to him and I ended up having to put him on formula. I felt terrible about it for awhile until my wonderful delivery nurse told me "Honey. You have a beautiful baby and he's healthy as can be. What's important is that he eats, not so much how he eats, so please don't beat yourself up. Just enjoy your precious little bundle exactly as he is!" That really made all the difference to me. I know with your fibro your situation is a bit different with regards to nursing, but I did want to say that it is definitely not your fault! :-)

Welcome again! I look forward to getting to know you better!
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

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