I am such a mess!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 2/11/2009 11:39 PM (GMT -7)   
I have been fighting with swelling in my feet and legs for about 2 months now. At the beginning it was so bad that I could hardly walk and I have scabs across the front of both feet where they meet my legs. I kept thinking it had to be from one of my meds.
 
When I went to see the Rheumy last month, I mentioned about the swelling, but he seemed to think it was no big deal(hardly looked at them) and started me on some water pills. Well, today when I went back I wore some stretchy knee pants and flip flops. ( I haven't been able to get shoes on my feet for 2 months now.)
 
He freaked out when he saw how bad my feet were! The tops of my feet and shins also turn bright red for some reason. Anyway, he acted like he'd never known about it or realized they were that bad.
 
He took me off a couple of meds and is trying another med for my swelling. He also had the results from my back x-rays and said that I have bone spurs from my neck down to my butt. Which probably explains all my back pain lately along with all of the weight I've gained. He didn't explain what if anything could be done about the spurs. He was too busy with changing meds and setting me up for some tests.
 
What is bothering me now is why he sent me straight to the hospital for an EKG and chest x-rays. He didn't say why and my mind was somewhere else trying to remember all of the med changes and stuff.
 
Anyway, I just wanted to check in since I haven't been on in a while. Haven't really been feeling good and didn't even have the energy to make myself care about anything. I am so sick of all the weight I have gained since being diagnosed. I know alot is from my meds and not doing as much as I used to. I guess I've gotten myself into a rut to where I am feeling sorry for myself. I am embarrassed for anyone to see me, so I don't go anywhere.
 
I'm hoping that once the swelling goes away then I can start working on my weight situation. Anyone have any luck losing weight? I would love to hear how you did it. I have alot to lose. I have gained 70lbs. over the last 5 years. I've tried to get my Rheumy to give me something to help, but he seems to think it is not a good idea with some of the meds I'm on.
 
Sorry this is so long but I guess I needed to get it off my chest. It seems like I am worse now than before I was diagnosed. I feel like I am never going to feel good again with all the new things popping up. Thanks for listening to my complaints and I welcome any advice!
 
Hugs!!   Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/12/2009 12:52 AM (GMT -7)   
Oh, Margie, I feel for you. I have gained alot of weight as well. Between meds and inactivity, depression and stress, I've gained 20 pounds just in the last 3 months. My husband had a heart attack right before Christmas, so we are trying to eat in a more heart healthy way. I'm not sure what to do about increasing my activity. I am on painkillers round the clock right now. I'm praying that I will feel better when spring gets here, as I need to pack up our house - we are moving in June (my husband is a pastor and we've been assigned to a new church).

I had a chest x-ray when I was in the ER one time and they ran a d-diner test which came back elevated. It's one of the indicators for inflammation, but it can also be an indicator for pulmonary embolisms, and they wanted to rule it out.

I have had some swelling as well, but not to the extent you have. My rheumy tells me that swelling is common for fibro folks.

I'm not sure any of this is helpful, except to know that you are not alone in your frustrations, hun.

Take Care, keep searching for the answers that will make your life better.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 2/12/2009 6:09 AM (GMT -7)   
Dear Margie,

Well at last you got the doctors attention, a shame it went so long. He did those tests to rule out anything serious going on.

I have never had the swelling but know how painful it must be. As for the diet try to take very small steps. I find if I make short goals it works. For some reason with me I cannot think long term on things right now. Perhaps that is the fibro. I am so proud of myself when I manage to get control of little things and really congratulate myself!!! I will even think about the next couple of hours and take it from there. Does this make any sense?

Hope you feel better fast!

Patsie

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/12/2009 6:59 AM (GMT -7)   
I'm so glad he is getting to the bottom of the swelling finally. I've been concerned about that. I'm sorry about the bone spurs that sounds painful, I don't know what they can do about them.
 
I think Patsie has the right idea Margie with taking one day at a time or one small change at a time. Fibro can be overwhelming and so can weight loss when you look at the big picture. I know if I sat here and thought about all that needs to be done it would drive me crazy so I don't let my mind dwell on it. Cut out one food a week that you know you shouldn't be eating and replace it with something healthy and when the swelling is gone set small exercise goals. Hopefully, we will be able to be outside more soon.
 
I hope you feel better soon both physically and mentally.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/12/2009 7:18 AM (GMT -7)   

((Margie))

I'm so glad your rhuemy is finally doing something about your swelling.  I hope you'll be able to get that under control soon.  Be sure to elevate your feet and when I say elevate I mean ELEVATE... above your heart.  So that might take 3-4 pillows.  I had a blood clot in my leg about 4 years ago and needed surgery.  So now I have flabitous, I need to keep my legs elevated when it sit.  Yeah, its a pain in the butt but its really important and it will help with the swelling.  NEVER CROSS YOUR LEGS, EITHER.  If it is a cirulatory problem it could create a clot.  I'm not trying to scare you .. but till they get to the bottom of things you need to protect yourself.  I'm sure your doctor told you all of these tricks, but if not, I wouldn't be able to live with myself if I didn't give you those words of wisdom.

As for the weight loss.... I'm in the same boat.  I've gained WAY more than I should have, I think it's the inactivity of winter and the new meds.  I'm planning on being a good girl when the weather breaks and start walking again.  That usually helps me get motivated.  Marlee gave you some good advice on dropping certain foods... a little at a time.

I really am concerned about you dear Margie... Please let us know how you're doing. 

Much Luv,

 


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 2/12/2009 8:34 AM (GMT -7)   

Hi Margie-

I have bone spurs in my neck and I know how painful it can be- but I do not know what it is like to have them all the way down my back- I feel for you!!

I'm sure he sent you for the EKG and chest x-ray to rule anything out with your heart with all the swelling your having. It is probably the medication but he is covering all angles. It sounds like he is very thorough. The diuretic he gave you will help also.

Next month will be a year since I got fibro and I have gained 13 pounds over the winter so far- UG! I know I will do more walking once spring gets here, I walk at the mall now, but not everyday. I used to work fulltime and never had to worry about putting on weight, but I do now. 

Do you have any hobbies that you enjoy? I know winters for me are awful for getting in a rut- I have more fatigue and pain. I'm hoping spring will give us a little more motivation!

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 2/12/2009 8:59 AM (GMT -7)   
Margie,

You have gotten some great advice here and I have never experienced this type of swelling so I don't have anything to add, but I did want to let you know that I am thinking of you and really hoping your Dr. is able to figure out what's going on.

{{{{{{{hugs}}}}}}}

I hope you start feeling better soon!
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/12/2009 11:59 AM (GMT -7)   
The gentle stretching exercises on the Fibro 101 thread were developed for people that flew a lot.  Many were getting blood clots in their legs from sitting too long so these exercises were designed to be done sitting down in the seat of an airplane.  They really help and could help you with your problem
 
I do have a little swelling in one foot.  My doctor thinks it's from gout but I'm not too sure about it.  And the front top half of my foot is a darker color, almost a bluish/purple.  It almost looks like it's dirty!  LOL  He said the discoloration is from the swelling.  That can cause some diffiulty with circulation.  But, I do have total feeling in the foot so I'm hoping this will clear up soon.  I find that if I wait long enough, things go away and other things crop up.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 2/12/2009 8:43 PM (GMT -7)   

Thanks everyone!

I am feeling a bit better today. Yesterday was just a bad day all around and I let everything get the best of me! I'm glad my doctor is finally doing something about my swelling. I've never had anything this bad before and it has been worrying me.

Sherrine - I have always used the stretching exercises in the Fibro 101 thread. They have really helped me alot. Especially when I sit at my desk. I'm afraid since the swelling started 2 months ago, I haven't been doing much of anything. Which probably is making it worse. I need to start moving & doing more.

I can't wait for Spring! It has always been my favorite Season. I love working in my yard and feeding the birds. We moved last August to a smaller place and my son-in-law almost has our new deck done. It will also have a roof so I can sit out even when it rains. That is one thing I wanted for our deck at the old house.

As far as the bone spurs down my spine/back, he never said what(if anything) needs to be done. He said we would take one step at a time. He wanted to work on my meds and the swelling first. I already knew that I had Osteoarthritis of the spine(in my neck), but the spurs down my back came as a surprise.

Anyway, I wanted to thank everyone for their concern and caring. It really helps to know that you're not alone when something like this comes up. Hopefully doc will find out soon what is going on and take care of it. I've got to start losing some of this weight, so I can feel better about myself. I feel as if it has taken away my ability to enjoy the things I used to. I let it get out of hand & now need to start pushing myself.

Oh well, as a few of you said, one day at a time. Thanks again to everyone and I hope you are all having a good pain-free day!

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/13/2009 12:09 PM (GMT -7)   

Margie,I'm glad your feeling better about everything.  I think the weather changes we have gone through this week has gotten to us cause I had a couple bad days too but feel better today. What are we, about an hour apart???

luv and hugs

Marlee

 


Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 2/13/2009 2:06 PM (GMT -7)   

Spring is coming.  We are one day closer!

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 2/13/2009 2:13 PM (GMT -7)   

Marlee,

Yes, we are just about an hour apart. My husband swears he can make it in 45 minutes, but he used to race stock cars!

Sherrine,
 
I am even daydreaming of Spring. That's how ready I am. I think I need to get a life!

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 2/13/2009 3:57 PM (GMT -7)   
Margie,

I am anxiously awaiting spring, too. (I love your user name, by the way :-)) It can't come soon enough in my opinion!!

I am so happy to hear you're feeling a bit better. {{{{hugs}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 2/13/2009 6:20 PM (GMT -7)   
(((((Margie))))),
I'm glad your doc finally listened to you and that you are feeling better.  I don't know much about losing weight.  My way may seen counterintuitive.  I make sure I eat frequently throughout the day to keep my metabolism up.  I am not a big fan of eating and sometimes have to force myself by telling myself that I will gain weight if I don't.  I haven't lost any weight, but my body composition must be changing.  My pants do not stay up and I have to wear a belt.  I have gotten back into smaller sizes and they fit comfortably when 6 months ago, I couldn't button them.  I also exercise when I can.  Do you think chasing attorneys around downtown count as exercise?  ha ha!!  My exercise is slowly paced walks across campus and back to my office which take about 10 minutes and the exercise the pt gave me which I call "my moves." 
 
I don't know if it will help, but it makes me feel better:  can you stretch your calves by standing with your toes on a step and dropping your heels down below the step?  Gentle stretching is good for pain.  Gentle stretching stretches the fascia without hurting it.  Cardio is good if you can do it, but that is hard for fibromites.   Then maybe you shouldn't do it if your doc is afraid for your heart. 
 
Please be more concerned about your health than losing weight.  I know it is important for your health, but take your time.  We would rather have a 70 pound overweight margie that is not in terrible pain from too much exercise than a skinny miserable margie.  Besides, skinniness is overrated anyway! 
 
Sue

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/13/2009 7:39 PM (GMT -7)   
I suggest you don't try to make any changes until you get your test results back.

As for losing weight, I lost over 50 pounds by cutting carbs down to no more than 100 g/day. I eat 6-8 small meals and snacks a day whether I am hungry or not. Every time I eat, I include protein, fiber, fat (small amount, healthy types) and carbs. I lost the weight in about 6 months with a small increase in physical activity. My fibro was really bad when I decided to lose weight so exercise was not an option. The hardest part was the wheat withdrawal that lasted about 10 days.

I kept the weight off for many years until I had multiple surgeries. I added back about 25 lbs because I am a stress eater. When you eat an entire container (1.75 qts) of ice cream in two nights on a regular basis, you shouldn't be surprised when you gain back what you lost. I can also eat half a batch of brownies in one sitting when I am stressed.

I am now consulting with a personal trainer/nutritionist who is helping me find more effective ways to deal with stress. He truly understands hypoglycemia so I have a lot of confidence in his advice. He believes that fibro people won't lose weight through exercise because we can't exercise with any regularity. We need to change our eating patterns and habits in order to properly nourish our bodies and lose weight. It makes sense to me, I hope it works.

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 2/13/2009 10:26 PM (GMT -7)   
Okay,

You know I like you guys and I do not want to burst anyone's bubble. But, the only way I lose weight is to perform low to moderate intensity exercise 6 - 7 days per week.

Folks, I could be reading an extra book a day in that period of time, eating a hamburger special meal or playing mah jong on a computer. Am I doing that? no.

Instead I backstroke up and sown the pool for 2 hours per day with the speed of a swimming volley ball.

Diets only succeed at making me gain weight (in the end) and besides, I do not like any of them.

Aside from that, there was a government study which concluded that in order to maintain weight loss, you needed 1 hour of moderate exercise 5 - 6 days per week. To lose it, 1 1/2 6-7 days per week.

The trick is finding a low to moderate exercise that people with fibro, arthritis, diabetes and a host of other aliments can do.

The government did not make blanket recommendations because doctors and exercise specialists, said that Americans would not follow the guidelines. They may have a point.

So far swimming and water exercises work for us. Even if you just play around in water for over 1/2 hour at a time you would at least feel better.

Donnaeil

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/13/2009 10:48 PM (GMT -7)   
"He believes that fibro people won't lose weight through exercise because we can't exercise with any regularity."

Oops, I meant to say exercise alone!

He believes that fibro people won't lose weight through exercise alone because we can't exercise with any regularity.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 5:08 AM (GMT -7)
There are a total of 2,734,572 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151342 registered members. Please welcome our newest member, Auroracousland.
242 Guest(s), 2 Registered Member(s) are currently online.  Details
maria2016, Traveler


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer