Danielle...I have added, subtracted, doubled up...you name it on foods and supplements that have helped others and do nothing for me. It's frustrating. It is also difficult to listen to those who don't know what this disease is all about...all their suggestions are ludicrous and unrealistic. I am NOT powering walking through a mall. No way. I am not buying another treadmill...it made me worse. These things work for others and I am happy for them. I walk my dogs and that's just about all I can do.
I have felt like I have the fllu since November. It's freezing here in Central NY and I am never warm. I guess it's just it is, what it is. I don't even talk about fibro to most of my friends. I always hear..."Well, I have...blah, blah blah and be happy you don't have that!"
Flares come and go, as you well know and try to focus on feeling better again. Pamper yourself today, if you can, and of course you can always vent here! We Wuv you!
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.
(((((Danielle))))))) ... that was a huge neighborly hug!!!!!! - Danielle and I live less than an hour away from each other, for those of you who didn't know that.
First let me send a big (((hug))) to Donna, Miriam, Karen & Lori. You all said a lot of things I wanted to say but couldn't find the words.
OK... Danielle, I'll try to make you smile .. Now that you know sugar isn't the cure-all, why not go out and get yourself a nice dark chocolate treat!!! As I recall in a recent post, you're not too fond of milk chocolate?!? (Geez I hope I'm right about that... if not, what the heck.. get a whole bunch of various chocolates?!?)
Awww, Sweetie, I do feel your pain and I understand your frustration. There are times when my dh follows me through the house to make sure I turn off lights, am not picking up something that I shouldn't since its too heavy, or not forgetting something I need to bring along when we go out. I can see in his face that he's just double checking (probably because he can tell I'm a little foggy or have a reputation of fogetting important things). But it kinda bugs me, I sort of feel like... I'm ok.. I'm not forgetting anything today. His intentions are awesome and he never says a thing, but well you know, it makes me kinda doubt myself and realize that I'm not "like everyone else" (especially a brainiac like my hubby who forgets NOTHING). I love the man to peices and he's so good to me, I know I'm truly blessed. But his good intentions can make me feel like he feel sorry for me or doesn't trust me to use my head I don't want sympathy I just wish someone or something will make this all go away (which is impossible)
Its incredibly frustrating to realize (for the 100th time) that you will probably be like this for the rest of your life. I know I'm always trying to find the perfect thing to make this all go away. But fibro does have some benefits, it makes us appreciate the good days that "normal people" take for granted. It makes us more sympathedic to others who are "different". It gives us moments of clarity to make us laugh at life a little. I think it in some ways has made me a better person.. not physically by any means but mentally, to grab the good things in everything I do and see.
Danielle, you're such a good person, you're having a bad flare and it make us a little more grouchy than usual. Try to step back, get some rest, treat yourself better than you would treat a friend that was ill. Don't be upset with yourself for being frustrated with people and their "good intentions". I think we all go through that now and then. But always feel free to vent to us, that's what we're here for.
Hope this flare passes for you soon and your day gets better.
Post Edited (Sherrine) : 2/12/2009 11:48:57 AM (GMT-7)
Aww Shucks Danielle you popped in today before I got a chance to give you an extra hug today.. I wanted to let you know that I was thinking about you a lot last night and earlier today, hoping you were doing better. Glad to see you are!!
Anyway... here's a ((follow up hug))!!
Hmmmm.. I was wondering what that smell was?!?! But between your brain frying and mine basically smoldering, we should have all the fire depts. in the area totally confused!! hehehe!!
Sherrine... you evil little devil I've always liked the way you think!!
I agree with Sue, you need to get some help somehow. Have you tried contacting any agencies in your area that looks in on seniors? We have an organization here called the "Council on Aging" Most counties have an agency that will check in on the elderly. You might want to contact your local United Way, they have listings of all of the non-profit agencies that can help you. They can send you in the right direction.
I'm really concerned about you. And I know that there are people out there that will volunteraly come and help out, especially if (and this is the important line that you should use when you speak to the agency).. " he's a danger to himself ". Caring for an aging parent it a really hard job and in your current condition, you could be endangering yourself. PLEASE contact the United Way or your local Chamber of Commerce to get the phone number of someone that could help you.
You wouldn't be "copping out"... you'd be COPING (and as I've said in many of my public speaking jobs on subjects just like yours).. You can't have hope, unless you can cope.
Let us know how your doing.. PLEASE!!