Pain management physicians

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nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 2/12/2009 8:27 PM (GMT -7)   
My doctor is referring me to a pain management group to see if they can help me. Have any of you gone to such a group and what type of "management" things do they do. I've been through about every type of physical therapy there is and those just end up in another steroid injection or another surgery. I'm just curious.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


TAMTAM64
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 2/12/2009 9:50 PM (GMT -7)   
Nurse2,
I also have been refered to a Pain Management Physican but my appointment isn't until April 27,2009.I really don't know what they do,all I was told is that I will have to be on strong pain meds for a very long time and that is why I am going,hopefully someone will respond who has been there,
Psoriatic Arthritis and Fibromyalgia
God bless us all who are having to deal with these diseases.
:) Tammy


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 2/13/2009 10:45 AM (GMT -7)   
My pdoc suggested I go to a pain management group here in Canada where they teach, get this "coping mechanisms". I have a PH Li, degree in coping (Doctorate of Life), I was trained to teach adult Life Skills Coaches and taught Life Skills for twenty years. He seems to think if I just learned some new fangled method of refocusing myself on "the positive", and ignoring the negative, I'd be cured overnight, since it's all in my head, anyway. Humh.  

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 2/13/2009 12:56 PM (GMT -7)   
I went to a pain management clinic for several years, but...that was 20 yearse ago, so I don't know if this will be of any help or not. The one I went to was run by an anesthesiologist. He did an initial consultation and from there, did trigger point injections, epidural injections and then went to Fentanyl patches and vicodin. This actually was before I was diagnosed with FM. He finally referred me to a rheumy who diagnosed me with FM, weaned me off the patches, but I stayed with the vicodin and finally vicoprofen. It was my understanding, at least at that time, that most doctors would not prescribe narcotics on a long-term basis because they feared having their licenses taken away. For some reason, the docs at the pain clinic didn't have a problem with it. Today, thank goodness, doctors are more willing to prescribe narcotics/opioids. I don't know what I would have done without the rheumy I have had for the past 20 some years, because she never questioned my need for the vicoprofen. In fact, I asked her one time, because I had read an article on addiction and she said because I had never asked for more than what I had been taking. If addicted, I would have needed more and that would have increased...well, you all probably know this. Anyway, I don't know if this helps at all because as I said, it was a long time ago and things have probably changed a lot since then.
I wish you well,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 2/13/2009 6:07 PM (GMT -7)   
I am in the pain clinic program right now.  So far, I have done biofeedback, which somehow helps alleviate pain.  I can make the green, yellow and red lines go where they are supposed to go on the screen, but I have no idea how I am doing it, except deep relaxing breathing.  From biofeedback, I learned I should stop and lie down once or twice during the day and breathe for about 10 minutes to help get my body back to wherever it should be.  The psychologist calls me once a month to check on me and doesn't give me any chance to ask questions because he talks over me.  The medical doc gave me $800 of botox injections in trigger points in my neck because I also have myofascial pain there.  That helped awhile.  He prescribed mobic and zanaflex and when I ask for more meds he gives me a confusing answer.  The physical therapist who was not doing biofeedback gave me exercises to do.  Some help, some do not.  To her credit, I haven't been doing the exercises every day and haven't been walking as often as she wants me to, either.  I saw a podiatrist before the pain clinic and he told me what shoes to buy and the physical therapist contradicted him.  I told her I was skeptical of the shoes advice because everyone says something different and since I returned from Italy I had spent hundreds of dollars on shoes, to no avail.   I have shoes of all kinds - all expensive - all comfort line or atheletic kind (Birks, Born, Sofft, Clarks, Aerosoles, Ecco, Sketchers, Nike) and I still hurt, so no one knows the answer to my feet.  I start a fibromyalgia class next Wednesday for 8 weeks 3 hours every Wed. 
 
The PT at first said my pain was from underconditioning, which was just stupid, because before I started having trouble, I was in great condition.  She kept wanting to know: what causes pain, how long do you do it before it causes pain, how long does it last, what do you do to make it stop.  I finally got it through to her that every day is different.  One day walking 20 minutes causes pain, I can massage my feet and I feel better; another day, I can walk an hour; another day I am in pain from morning and nothing helps.  One day, shoes A work fine, another day shoes A kill my feet.  She finally said, it may be the fibro.  That can be variable.  Ya think!!!  Sheesh!
 
They do believe my pain is real.  That is a good thing.  I will let you know how the class goes.
 
Good luck!
Sue

kellywashere
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 2/13/2009 11:28 PM (GMT -7)   
I started at the Stanford Pain Clinic in November. I was diagnosed with fibromyalgia there, but to be honest, they have probably only made my pain worse. They didn't want to prescribe medication until I literally begged for it, trigger point injections made me sick, acupuncture was too painful, biofeedback gives me migraines...Maybe that's just me, I'm difficult. I hope it's better for you.
Fifteen years old. Fibromyalgia, chronic myofascial pain, chronic headaches, chronic migraines, TMJ, patella femoral syndrome, insomnia, depression, anxiety.


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 2/14/2009 11:08 AM (GMT -7)   

Thanks for your input on pain management.  I'll tell  you that if one more person tells me I need to exercise I may scream. My husband goes to the gym faithfully every day but it doesn't work like that for me. I do any kind of workout and I'm in so much pain it's awful. Sometimes when the weather is warmer I can walk a little but even walking in a mall is painful. I've had both knees replaced and like some of you, my feet hurt all of the time. I only wear shoes if I have to go somewhere. I've had inserts made and can't wear them. I've tried several brands of shoes but have yet to find " the pair" that works. I was on a cruise and went to a reflexology seminar and I always rub my feet at night but now I concentrate on certain areas. I don't really see a difference but the people teaching the class live by this stuff. I went the herbal route for a while but I have and atrial arythmia and have been in atrial fib before so those are not a choice anymore. There is surely something out there to help us....I guess we just have to keep searching. Have a good day!

Nurse2


Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 2/23/2009 9:37 AM (GMT -7)   
Nurse2,
Hope the pain doc is helping you by now. I have been seeing one for my issues and he is the one Dr that I can count on to listen to me. I tried the injections and for me, the nearly 4 weeks to recover didnt make it worth it. However I suppose you always have to try it once! I started on a pain patch and then switched to morphine tablets b/c of side affects (sweating, withdrawal). Morphine is much cleaner feeling, when you wish you didnt have to take anything. But they will work you up.
If you are sensitive to drugs and cant take alot of them or are on a tight budget...see if you can try a sample or if he can write a script for a few pills first before you pay for a whole month that may not work. Also when trying a new drug, be sure to not change anything else in your routine so you can note how your body is responding to the drug (e.g. wait to do that elimination diet, start PT etc) Of course, if you are a nurse, you prob already know this...
Good luck!
lost in philly
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibro, Endo, Migraines, Asthma, CFS

Topimax, Fentenyl Patch, Effexor, Crestor, Resoril, Loestrin

B6, B12, Magnesium, Melatonin, Omega3

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