There are days when I absolutely must slow down. I cannot, even if I try, do things at my "normal" speed. But I do them and am ok with having to slow down. I do them with a happy attitude (most of the time). But I refuse to tell myself that I am letting fibro run my life or that just because I slow down, I will soon become incapacitated. There are days when I aim high and pay for it in a flare the next day. I absolutely must pace myself. Yes, I agree, make realistic goals, but some people cannot make it on positive attitude alone - the body rebels. I have been fighting hard against the need for a walking aid. It is because I am proud, because I think my difficulties are not as bad as others' difficulties, because I am ashamed for not being able to do what I used to do, and a whole lot of other reasons that I cannot even understand yet. We want to go to Disneyland and I know from experience that I cannot do it. My husband said we can rent me a chair so when the day gets hard I can sit on the chair and still get around. I have a cane and sometimes use it, even though it upsets me to do so. It has taken me a long time to finally accept that sometimes I need assistance (and still I fight it). When I read your response to Austen it upset me a lot. I am glad you can walk fine, but not everyone can. And those who can't are not self fulfilling a prophesy. When I have trouble walking and I persist, it gets worse.
Surely I misunderstand the meaning behind the post. I do my best not to feel sorry for myself and don't tell people about fibro unless it is necessary. I do what I can and stop when I can't (usually). It feels like the post was saying that all we have to do is keep a positive attitude, aim high and not let the fibro slow us down or impede our walking and other activities and it wont. That is not working for me. I have tried it already. Please explain.
I am sorry if I have upset anyone.
Thank you for explaining. What you said makes more sense to me now. Sometimes it is more difficult to understand another person on a forum because we can't ask each other right away: "wait a minute, is this what you mean or do I misunderstand you?" And I am glad that we can ask each other these questions and communicate. Yes. A positive attitude does help with this illness and no, your positive attitude does not upset me and you should not feel sorry for it. When I read the post reply, it sounded to me like it was saying to have a positive attitude and that will take care of everything. Now I understand that you do not mean that. Now I think what you were saying was that a positive attitude will help us do more than we thought we could do and will help through the tough times and will help us not give up. It also helps alleviate self-pity which can make us feel even worse.
Sometimes I have trouble with giving something a shot and doing great for the first part, then getting stuck halfway through and wondering how to finish. Like with Disneyland, I would be fine in the morning, but by noon, I would need a chair. So part of me would not want to get the chair in the morning because that would be giving up early. But another part of me knows I would have to get one in the morning because there won't be one available at noon and that it is actually that is smart thinking to do that.
Hopefully it makes sense that a lot of my own confusion as illustrated by my last paragraph helped me to misunderstand your post. Thanks Sherrine for clarifying so gracefully.
Fibromyalgia since 2007
"Tragedy is a tool for the living to gain wisdom, not a guide by which to live." Robert F. Kennedy
I also have hypermobility joint syndrome along with fibro, arthritis and myofascial pain. How does the hypermobility affect you?
Regarding the drugs discussion, as a clinical psychology grad student, I have seen instances where drugs tremendously helped kids with adhd and instances where it was prescribed when it should not have been. Looks like Tyno has been in both places. Lately I have been doing an internship at the court and mental hospital. Both places I deal with people who are mentally ill: some have comitted crimes and are being declared incompetent, some are elderly dementia patients, some are drug users and a whole lot of people in between. While there, I learned about two people who were really smart - top of their class - really successful until they started taking narcotics and now their brains are basically mush. I know, two people isn't very many and they probably abused it and that is not the norm. Then I heard about other people who got bleeding ulcers from too much anti imflammatories. Those got me thinking and wondering about my medication. Do any of you ever wonder about it too? I know we need the medication to function. How do we keep from overdoing the medication and messing up our bodies further?
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11