We can all relate to what you are saying. No one knows what Fibromyalgia is like unless they have it or deal with someone who has it on a daily basis. Let what people say go in one ear and OUT the other. They are clueless and unable to understand.
Welcome Julie... Oh and I see you too over there Carney!! Glad you found us and I'm sure you will learn a lot from this forum. I know I have.
Here's something that might help you.. it was cirrulating around here last week. Its call A Letter to Normals (click below):
Please keep posting.. we're a family of folks from all over the place that shares your pain, questions and concerns. We support each other as best as we can and really understand the trials of this thing called Fibromyalgia.
Warm welcoming hugs,
Fibromyalgia separates the wheat from the chaff. For those that aren't familiar with that terminology, chaff is the seed covering and other debris that is separated from the seed during threshing. The chaff is useless and is discarded. The seed is kept and is either kept to grow new plants or it is made into something important to us...food. So, fibromyalgia gets rid of the acquaintances that were not true friends and allows us to zero in on the really important relationships in our lives. It's hard, at first, to lose those we thought were friends but we can spend our energy on those that REALLY count.
By the way, last October I lost, what I thought was a friend, to fibro. She said I had "changed". We had been "friends" for 34 years. I was surprised and hurt but I got over it. And you know what? God has given me some more true friends...people that do accept me with my illness. Besides, I have all of you on this forum so I am rich with friendships.
It is so disappointing and hurtful when friends and family shrug off our pain and confusion. I have thought about this so much and if I am truly honest with myself I think that I may have the same doubts as all those people if I were not living with this disorder. The reason I say this is because my mother, who is now gone, used to complain of pain and fatigue all the time. She would visit and then fall asleep on my couch and she used to forget things that we told her or repeat something that she had just said. She seemed completely confused at times. Well, both me and my brother would get irritated with her for seeming so self absorbed. On the outside she looked just fine. I am convinced that my mother had FM and I wish I could turn back time so that I could show her the understanding and kindness she deserved. So because of all of this, I try really hard to understand when others just don't get it. My new answer to them is "Ignorance is Bliss", smile and then walk away. I don't have the time or energy to worry about what others think of me.
This forum has given me confidence, acceptance, and a place to go when I need someone to talk to. Everyone here understands and cares, we are here for each other.
Welcome to all of our new family members, you have found a wonderful place. I have not been feeling well for the past few weeks and have been to tired to do much more than read the posts.
Hi Julie and Carney- Welcome!
Julie- You have had some doozies for comments! Most people in my life are pretty good. But I do get- well you look good! And I just respond with "yes, on the outside." I tell them this is an invisible disease- they don't "see" it, but I "feel" it! I have had no comments on getting a job- they know me and know I would be working if I could!
It is hard for people to understand what we go through unless they have this. And I thank God for the support group here as we all know what it is like and understand!
Nice to meet you and any others I missed on this post!