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AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 2/18/2009 3:08 PM (GMT -7)   
I know I've posted a similar thread before, but I can't help it; I just have to again. I'm just so grateful for this site.  It is such a kind, caring, warm fuzzy place to be. 
 
I recently visted another "forum" which has to do with another aspect of my life.  I was absolutely appalled at the way people spoke to and treated each other.  I left the site almost in tears over the hatefulness that was being spewed over everyone (this was supposed to be a support site).  Needless to say, I won't be going back. shakehead
 
I know that the creator of this site is to thank for the rules and codes of behavior that were set up at the beginning.  But we really have to thank the moderators.  They have helped this forum evolve into the family that it is. At any given time, one or another of them is always ready to soothe hurt feelings, clarify comments, admit to mistakes, inform newbies, comfort the hurting, impart wisdom and common sense, foster a sense of community, edit posts (sometimes two heads ARE better than one), give encouragement, and throw great virtual parties. smilewinkgrin
 
I've not found any other support site like this one.  We are so lucky to have it and each other.  :-)   (Sorry if this sounds a bit over the top, but it really is how I feel).
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 2/18/2009 4:37 PM (GMT -7)   

Austen, Can I just say "ditto"?  That's about the extent of my mental energy, right now. 

I have wanted to say to you that I am a Jane Austen fan too.  When I am laying on the couch I usually can be found watching one of the movies made from her books.  I have read most of them & the anything I can find about her life.  Hugs, Denise 


 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 2/18/2009 5:40 PM (GMT -7)   

Hi Austen.  I joined another forum about a year and a half ago that has to do with another aspect of my life also.  I will say that I asked a question about Restless Leg even though it really didn't have anything to do about the real focus of the forum but I saw others asking similar questions.  The first response I got was a moderator telling me it sounded like I had MS.  I told her I was 61 years old and the doc wouldn't even test me for it as I am too old for initial onset MS. Plus I had been tested for it twice in the 90's.  She did not stop there and directed me to all kinds of MS forums and sent me info on this disease and she scared the crap out of me.  I just about had a nervous breakdown because the rest of them joined in and started diagnosing me with all kinds of horrible diseases.  I reported her to the administration and never went back again. 

It took me months to join this forum because I was so afraid of the same experience, but after reading the posts and the kind, sensitive responses decided this was the place for me.  I know fibro mimics other disorders and I can't honestly say that I don't think that somehow I got misdiagnosed sometime over the years, but for now, I have Fibro...was dx'd with it twice.

So, I know how you feel.  I am staying away from sites that think they are doctors.  Oh...have you ever looked at a Meniere's forum?  Just wondering if they have anything new that is helping people.

Huggies

donna

 

 



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Post Edited (vestabula) : 2/18/2009 5:52:47 PM (GMT-7)


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/18/2009 6:22 PM (GMT -7)   
Here here, I second that emotion!! This is an awesome forum. I've been to others too and posted questions, it was as if I was invisible. My questions were never answered and I was completely ignored. I wonder if I went back today if they would still be unanswered?!?!
Everyone here has always been so thoughtful and non-judgemental. I really care about the folks I've met here and I think they care about me too.
Yes, our moderators are terrific!! They all do a great job of looking after us and keeping things straight around here. And they help us laugh.. and as we all know laughter is the best medicine there is.
So, thank you for mentioning it, Austen. We should always be reminded how grateful we are for this wonderful forum. And if we have to have this horrible dd at least we have each other.. one of the best family units I can think of.
Hugs to all and to all a good night!!
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 2/19/2009 9:23 AM (GMT -7)   
Denise, I even watch all the different versions (BBC, Hollywood, etc.) of the movies so I can compare them.  I'm such a weirdo. tongue   
 
Have you read "Just Jane" by Nancy Moser?  It's a young adult book (I've gotten my teenage daughter hooked) based on Austen's life.  It is written in novel form and is somewhat speculative, but it is a very entertaining (sometimes sad) read.
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 2/19/2009 9:45 AM (GMT -7)   
I agree that this is a wonderful place. When I was first diagnosed with fibro, I tried to get involved in another forum, and found that most of the people there were pretty clickish and ignored me completely. I love how open and friendly and helpful every one is here-this truly is a special place!
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/19/2009 10:37 AM (GMT -7)   
The secret to this forum is people like you girls that are sweet enough to take the time to express your kind feelings and there are so many like you on here. The mods are here to make sure the rules are followed but we all help each other. Some of you don't even realize what a difference you make in someone's day with your kind words. You just made my day. smilewinkgrin
 
luv and hugs
Marlee
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 2/19/2009 11:25 AM (GMT -7)   
Marlee took the words right out of my mouth!  Everyone pitches in to help one another on this forum so it has, indeed, become a family.  All of your helpful advice helps us mods, too.  I know I never have to worry about greeting newbies because the wonderful members do that too!  I'm so glad I heard about HealingWell and checked it out.  It has been a blessing to me.  Thank you, everyone, for all of the kind words.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 2/19/2009 11:41 AM (GMT -7)   

I also joined another forum before I found this one. It was nothing like it is here. Like others said, I was ignored & there was not the warm caring feeling that you get here.

The moderators do make a big difference. They have time & time again proved that they care about helping others. They know what they are talking about and if they don't, then they direct you to the right place.

I have noticed the way they step in when needed and are always making sure that no post goes unanswered. We are not only lucky to have a great group of members, but so very lucky that our moderators keep it that way!

I am thankful every day that I found this place. That's why we always have lurkers who finally join. They too can feel the way everyone here treats each other and  they feel comfortable here. Of course we have our fun, too!

Wow, I must be in a sentimental mood today! Sorry this is so long, but I am very grateful to have a place I know I can go where people understand and care.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis on Spine*SleepApnea

RLS*Spurs on Spine*Allergy/Sinus


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/19/2009 12:25 PM (GMT -7)   
I was reading some of the comments on this thread, and yes I know I already posted something but I just had to ......
 
Send out a great big hug to all of you!!!!!!!
I don't know what I would have done before during and after my dx without you!! 
 
My life has changed SO much over the past few months and you folks have helped me stay sane.  You've given me a reason to get out of bed, on some pretty tough days.
 
I am forever greatful to all of you and this forum.
 
Much luv,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 2/19/2009 2:04 PM (GMT -7)   
Now that I am feeling better, I wanted to add to my earlier post.  I found a different forum at first, just like the rest of you, & was totally ignored.  Everyone said, on the forum, what a wonderful place it was but they were clickish & meant just their clicks.  I kept trying to fit in & yet no one would even say a word to me.  Oh, occasionally someone new would say thanks but everyone was just so into getting into the main click.  I found myself in tears many times because I wanted some help & I felt I was doing something wrong & they didn't like me.  I finally quit & said I would never go to another forum, but I finally decided I hadn't given them a chance.  OK, I know that was really disfunctional but I did it.  So, I went back & said "been gone for awhile". wrote a nice post about what I had been doing & got 2 answers, one from a new person, & one from someone I had posted to many times & she said, hi, sorry she didn't remember me but welcome back. So, that was the last time I posted there.  I was really worried when I started posting here but everyone "was" so nice.  They just didn't say they were nice but showed it often to everyone.  The moderators here are such real people to me & I know them, not just about them, & they are great & kind & giving.  I think this sets the foundation of the forum & how we all are drawn out & accepted as people not just another Fibromite.  Many thanks to you all, moderators & all.  Hugs, Denise 

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 2/19/2009 2:09 PM (GMT -7)   

Austen, No I have not read that book but as soon as I can get my hands on it I will.  Have you read the memiors of Jane Austen written by her nephew after her death?  Wow, talk about good.  I bought a copy of "Persuasion" & it was included in that book.  He remembers her from when he was a child & went to her funeral.  Really good insight into the family & the times they lived in. 

I watch all the different versions of the movies & have my favorites of each.  Nothing better then to put on my fluffy bathrobe & comfy slippers, grab my bed buddy, a latte & chocolate & pop in a movie.  I am all set for the evening.  How fun, hugs, Denise


 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 2/19/2009 3:14 PM (GMT -7)   
No Denise, I think I recall reading that he had written a memoir, but I haven't read it. I think the guy who wrote "Becoming Jane" might have mentioned it (fog - can't remember).  I'll put it on my reading list and see if I can find it somewhere.  Thanks.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 

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