I'm ashamed to admit this, but if we're being honest here, I'm sometimes embarrassed to tell people that I have fibro. If you tell someone you have MS or lupus (no offense to those struggling with those horrible illnesses), you get a, "Wow, that must be tough." If you tell them that you have fibro, you get "the look." I often tell people I'm in pain because of my back sugeries, which is true, but not the whole story (everything else hurts too).
Fibro has such a bad rap because it is so little understood. For the longest time even the medical community thought that it was all in our heads.
I wish the skeptics, judgemental, and non-believers could experience an hour of the pain I feel every day, all day long. Call it fibromyalgia or XYZ syndrome or whatever, it's real, it's debilitating, and it can be disabling. Sometimes I wish the medical community would rename it: "All over body pain, fatigue, mental clarity, and co-existing conditions which is not all in the patient's head disease."
Oh, and I'm all for a poster, tattoo, bracelet, anything that would raise awareness for fibro. There is actually a website that promotes awareness for "invisible" chronic illnesses (fyi - it is tied into a Christian site) at http://www.invisibleillness.com.
Hugs - Austen
Forehead tattoo, bracelet, or whatever will bring more awareness for Fibro, count me in. I too am tired of getting the look when asked what is wrong. Sometimes I do look bad, but not always. It's true that most people understand better Lupus and other diseases. I will admit that I too, get embarrassed sometimes to try and explain what is wrong with me.
It's hard enough convincing my family that I am really hurting. Hopefully one day Fibro will be more understood. At least now, I hear about it more on t.v. so maybe one day we won't have to stress so much over the name of our disease or trying to explain!
Never regret something that made you smile!
Fibromyalgia*Osteoarthritis on Spine*SleepApnea
Menopause*RLS*Spurs on Spine*Allergy/Sinus