I just do not know how we do it )-)

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New Member

Date Joined Feb 2009
Total Posts : 1
   Posted 2/22/2009 5:40 AM (GMT -6)   
Moring All,
I have been awke or rarther i woke up aboup 3 hours age.  out if that 3 hours I have spent my time loking for a supportive chat group.  It still confuses me how I can go for a week in biter overwheling pain  then suddenly awake and be amaxed that i can get out of the bed without it takin 15 minutes and alot of tears.
I ask you now for your paitience as i do not punctuate well   ok usually
As my profoundly wise as he and all other kids that age has stated " mom you know they creatd peoriods fot a reason don, you"  now i knew i was gettin reeled but my curiosity got the best of me and the golden answer was ......"So people can catch a breath while they are reading  what you are writing.
So in the future I decided to let him do all of my corespondece. but then  he moved 2000+ miles away to CA. lol Indsight  "if i only knew then what i know now" IE Perhaps if  i had asked..... hin sooner  maybe he wouls have left b4 the agae  of 22 and 1/2 (I don't count college it was only 15 miles away and he came home every wekens because the speed he needed to play wow he was unable to acces,
Anyway  i am guessing you have somewhat of a picture of me now my screen name means exactly as it reads yet I have no clue where to star i have a good support system
her a great pcp that know my  rumatologist ?? they have me enrolled in PT 3 x a week
I have just signed up with a counselor whom i will see net wek and a dietician so i can learn to eat thing that are good for my body and my disease.
Ok I think this getting a bit long I was really hoping someone would be on line
so if you do not mind and you can let me know if this is a good support site for fibro
would much appriciated.
With Warm Reagards,

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 2/22/2009 7:30 AM (GMT -6)   
Dear I-only-want-to -live; You are in the absolute best place for advice and support. The 2nd post from the top of the forum, Fibro 101, has excellent information. This is the livliest forum I have ever encountered. I think it's kind of like us (Fibromites) against the world, because Fibromyalgia ofter goes totally unrecognized and misunderstood by so many, including some Doctors. I am gled you have good doctors. That is the starting point. Night-time wakefullness is very common amongst Fibromites. I always have to  get up and walk around a bit after four to six jours of lying in bed, at night, because I get really stiff and I hurt a lot. So, I try to find a quiet activity like reading or listening to soothing music to help me settle down enough to resume sleeping. I am glad you found us. You will get a lot of good information and support here.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 2/22/2009 7:36 AM (GMT -6)   

Hi, v and welcome!  Yes, you have come to a very good forum.  We have great members and they have wonderful ideas that can help you have a full and enjoyable life with fibromyalgia.  The bonus is that we really care about each other!

Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibro, including some good stretching exercises and also about malic acid/magnesium supplements that have helped quite a few members.

Be sure to keep moving.  Sitting and laying too much will make you stiff as a board.  I enjoy walking and that is a very good exercise, along with swimming if you have access to a pool.

Read back post and ask questions.  We are here to help you.  I'm so glad that you found us and joined in!  I'm looking forward to hearing more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 2/22/2009 8:13 AM (GMT -6)   
Welcome v,

I am so glad you have found this forum. It is the best support and has helped me so much. Sherrine, just gave you good advice and she has helped me SO MUCH!!! I was at loose ends when I found this group and will say I feel much more in control now. That is huge.

Will watch for your posts.


Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/22/2009 10:54 AM (GMT -6)   
Hi v and welcome to our family. Sorry no one was on last night, sometimes those that can't sleep get on in the middle of the night. I do wake up for a short period in the middle of the night but I'm able to go back to sleep and don't get up.
Fibro is unpredictable and we never know what it is going to do next. We don't know why we can be in terrible pain one minute and it goes away the next. There are times when the weather is changing or I'm stressed I can sit and feel the pain engulfing my body and I'm helpless to stop it. But it can go away as fast as it came too.
You did find a great support group so ask questions and we are here to help you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 2/22/2009 11:30 AM (GMT -6)   

Welcome v,

As everyone has said: this is a great forum for Fibro. The people here really care and there is always someone close by to respond when you have a quesion or just need to vent. I am happy that I finally joined!

I completely understand about being in pain for a week and waking up one day feeling good. I never know when a flare is going to hit, but now I have learned to try and get up and move around. Sometimes that is hard to do when you hurt so bad even to walk. The fibor 101 thread has also helped me out. I do the stretching exercises because I can't do too much right now.

It seems like you are making a good start at living again. (love your i.d. name!) Sounds like you have a great doc & Rheumy. Starting PT and also seeing a dietician are great ways to turn things around and help your body with all it puts up with. I too, should be seeing a dietician, as I have gained alot of weight over the last few years & I know I could be eating better.

I hope you stick around and make some new friends. There are some wonderful people here, just a great big family! Keep us posted on how the therapy and diet goes. Good luck!

Hugs!!! Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis on Spine*SleepApnea

RLS*Spurs on Spine*Allergy/Sinus

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 2/22/2009 12:08 PM (GMT -6)   

Hi and welcome aboard V!!

You've come to the right spot!!  I don't know what I would have done before, during and after my diagnosis of Fibro, w/o this forum.

The folks around here really care about each other, hence the "family feel" of this place.  We try to help each other, give each other a little laugh and sometimes we cry together, but we always know that our Fibro Family is there for support.

Again, welcome!!

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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