Post Edited (ashphobiax) : 2/23/2009 8:59:17 AM (GMT-7)
I was one of those folks that LOVED my job too much to quit.. but it caught up with me and now I'm not working, I was the director of a non-profit organization - (big job). I commend you for trying to stay with what you're doing. I'm orginally from NJ and I know how great those horse farms in Eastern PA are.
Now my job is holding down my recliner at home. (wouldn't want my recliner to try to fly away or anything) I'm hoping to go back to work sometime soon, but it will have to be a part-time office job, I don't think I could handle another job like I used to have.
I also noticed that you're a new member to the forum. Welcome aboard!!! This is a wonderful place full of great people that are like family. Please stick around and keep posting.
I am the Secretary/Bookkeeper for a Tree Business. I love my job as I am the only one in the office and I pretty well can make my own hours. My boss is a wonderful person and trusts me to pretty well run things on my own. I can even answer calls from home when I need to. That is probably the only reason I am still working. Also, Winter is our slow time so I only go in a couple days a week to pay bills, etc.
I have been slowly getting worse and my Rheumy has mentioned it in the past, but it is kind of a wait and see thing if I can handle it this Spring when I will need to go back to work 5 days a week to keep up. I now make little mistakes I never used to & I even fall asleep in my desk chair!
It is a perfect job for me, so I am hoping I will be able to continue doing my job. I know I am very lucky. I worked at a factory for 10 years when I was younger and I know if I still had that job, I would not be working right now.
Never regret something that made you smile!
Fibromyalgia*Osteoarthritis on Spine*SleepApnea
Menopause*RLS*Spurs on Spine*Allergy/Sinus
Hi Ashley and Welcome-
Was hit very hard last winter with fibro and have been unable to work ever since. I was doing Administrative Asst. work and for a "good" company. Was very difficult for me to come to terms with not being able to work but my body just cannot do it. I think it is wonderful that you love what you do and I hope you can continue to do so!
Nice to meet you!
If you do not qualify for SSDI then you will qualify SSI. Just apply at the social security office. I wish you lots of luck. I couldn't imagine cleaning houses the way my body feels. I can barely clean my own.
I work in Trade Compliance for a large retailer. When I first acquired Fibro, I felt just as lost as you sound. I thought I would end up on disability and it broke my heart to think that all I had worked for was being taken away from me.
Like Jokat stressed, everyone with Fibro is different and the disorder affects everyone differently. Some people do end up needing to leave their jobs, while others are able to continue to work daily. Only you can know your own truth about how the disorder affects YOU.
That said, I do still work every day. My boss knows about my Fibro, but not everyone on my team knows, and she is understanding since she has RA. I work in an office setting (so the stress to my body is not as strenuous as it sounds like your job is). I have periods where everything is going great, where Fibro sort of settles into the background and I am productive and feel almost like my old self. But, this is always followed by a period where I am in tremendous pain, almost need my husband to push me out of bed, and where I forget everything and don't dare speak at any meetings (fibrofog). I have learned the hard way, after a HUGE error I made during one of my rough patches was made public, to stick to accomplishing simple, busy work during these times. I do not even attempt to tackle difficult projects, where my brain really needs to be working at 100%.
If you find that your job is simply too tough on your body, that doesn't necessarily mean that you have to stop working with horses. You may find a different area where you can still be involved. Or, you may be able to work with some flexability - where you can do more physical tasks on your better days and help out in the office during a flare.
One thing I do recommend is taking it in stages, rather than just throwing in the towel altogether. I started by switching my hours to 8 - 4. Then, during really bad days, I take my laptop home and work at my kitchen table. If it gets to the point where I was making too many errors to stay at my current position, I would probably see if I can find a position where I would fit better and had less stress.
Take care and always feel free to post any questions. :)
Fibromyalgia since 2007
"Tragedy is a tool for the living to gain wisdom, not a guide by which to live." Robert F. Kennedy