hi and welcome! Fibro is a sly little devil and it is difficult when it rears its ugly head to imagine all those symptoms are 'just a flare'. I have gone years with 'white noise' pain and right now I have been in a flare for almost 7 months. I too have had every test known to man. I have pain every single day and it moves from one part of my body to the other. Burning, gnawing, stinging, stabbing...you name it. Also tingling in my legs with a numbness sensation that I never ever had before in a flare. Blurry vision..never had that before either.
So I guess my answer is yes...I have had the pain worsen even after a battery of expensive tests also. And have had a new symptom pop up out of nowhere.
There are some excellent moderators and resources on this forum that can maybe articulate better than I can...The Fog!
hope you feel better
Hi Patsie. This whole nightmarish flare began with the crawling/tingling numbness sensation in my legs. I was on a grand jury and after sitting for 10 hours I stood up and there it was. I went running to my rhuemy and he did not seem that concerned with it...gave me lexapro for anxiety and valium for the leg thing, as I had been dx'd with RLS years ago but it never acted like this...24/7. Anway, mine seems like it might be in the skin because if I don't have any clothing against it I don't feel it as much. My calves feel tight, like the skin is contracting around the muscle. I can't really explain it. I can't wear any clothing against my legs that have a texture or it really kicks in. My legs aren't really numb...it just feels that way. I also get 'shivers' or goosebumps' on them...really I get these all over my body. I honeslty don't know what the heck it is...skin sensitivity? I don't know. I feel for you...it is really disturbing.
Aww Philly, I wish I had some answers for you, but sadly I don't. I think we're all a little different when it comes to Fibro and pain. I have constant pain in my hands, feet, ankels, lower back and hips. Some days its a lot worse than others. I think a lot of it depends on our doctors too. I don't know what meds you're on but finding the right meds seems to really be hard and can really make all of the difference.
I agree with everyone that mentioned that the more stressed out you are the worse the pain can be and it sounds like, your running here there and everywhere to be tested might be causing your stress, not to mention the money you've spent.
I've been in a flare for about 4 months now and can't imagine what a year would be like.
I see that you're new to the forum and wanted to welcome you. Check out the second thread on the forum called Fibro 101. I hope you find your answers soon and keep posting... we're here for you.
Hi Philly and Welcome-
I got fibro a year ago next month and when it first hit the pain was excrutiating. And it lasted for months- by the end of last summer it started to settle down but when late fall rolled around, the bad pain was back and have been dealing with alot of pain over the winter months. I am hoping too that with spring around the corner things will ease up some.
I feel for you- hopefully with some time off from work, and having less stress things will settle down. Nice to meet you and you have come to a great place! Having a support group has helped me alot.