Who has psoriasis?

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pattipanda
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Date Joined Jan 2009
Total Posts : 1014
   Posted 2/24/2009 7:10 AM (GMT -7)   
Hi Everybuddy!!
 
I've had psoriasis most of my life.  When I was about 3 or 4 years old I had it all over my body.  As I've gotten older its gotten better and moved to different places.  Now I have it on my scalp at the nape of my neck and (of all the weird places..) in my ear.  Its no where near as bad as it used to be and I'm not on any meds for it.  (I don't like what I've read about embral and its not bad enough to need it.. I understand its very $$$$)
 
I was reading an article about psoriasis and psoriatic arthritis and I'm starting to wonder if I might have that along with fibro.  I plan to discuss it with my doctor at my next visit, as it dawned on me that I've never even told him that I have psoriasis.  I've learned to live with it and its not that bad.
 
I read that people with psoriasis have a high sed-rate.  Mine was high when I had my blood work done a couple of months ago.
 
I'm doing another one of my personal research projects and I need some input.  Do you have psoriasis??  Have you been dx'd w/psoriatic arthritis?  I can't help but wonder if there might be some connection with fibro and psoriasis? 
 
Thanks for your input and have a pain free day!
 
Warm hugs,
 
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 2/24/2009 8:42 AM (GMT -7)   
I didn't develop psoriasis till a few years ago. It sucks!!!!!
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram,amitriptyline, and peroxicam, and vicodin.


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 2/24/2009 8:49 AM (GMT -7)   
for what it is worth, my brother was just recently diagnosed with psoriasis and my other brother has a dermatitis that doesn't allow him to get the military flu shots...and well, i have fibro.

It will certainly be interesting to hear what your research unfolds.
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 2/25/2009 3:17 PM (GMT -7)   
I have psoriasis. Have had it since about puberty. It initially showed up as blotches in my chest. Now as an adult it's mostly confined to the knees, elbows, scalp, and ears like you mentioned....and backs of the hands. There's a few other random spots here and there along my legs and on my back but they're all relatively small spots.

For many years now I've wondered the same things. Since psoriasis is a sign of the autoimmune system trying to "heal" a "wound" that is not there, wouldn't it be more likely for someone to have some other autoimmune disorder?

From what I've been able to gather from a couple of different rheumatologists that I've talked to, those with psoriasis are much more likely to show OA signs sooner in life. The actual rate of those that have psoriasis and psoriatic arthritis was actually very low. (Ten years ago this was estimated at approx 5-10%) Personally I believe the relation is a lot more frequent than it was formerly estimated at. I'm not sure what the current rates are.

At different times I've been told that my SED rate was high, and that it was normal. I'm not sure if that's due to a matter of opinion as to what a high rate is, or if the readings were really that drastically different.

I'd really be interested in whatever you find out and am willing to try and help you in anything that I can. Psoriasis is something that has been all over my family (both literally and figuratively) and is something that has always interested me.

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/25/2009 4:21 PM (GMT -7)   

Thanks for your input everyone.  I was really thinking more folks on the forum would have psoriasis but we'll see if any others join in the post.

I have a Dr's appt. tomorrow and I'll discuss it with him.  I'm hoping that he'll send me to a rheumy for some tests or he'll order some x-rays for my hands and feet or both! 

I've been looking some stuff up online and as I go I'll share it with you.  I was also thinking about posting the same question on the arthritis forum.   Since some of the symptoms of psoriatic arthritis are alot like fibro I was thinking there could be some kind of connection. 

I'll post more soon, if anyone comes up with any other possibilites please feel free to share them with us.

Thanks again!!


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


merfy5
Regular Member


Date Joined Jul 2008
Total Posts : 58
   Posted 2/26/2009 11:22 AM (GMT -7)   
hi i was diagnosed with psoriasis and psoriatic arthritis about a month ago mypsoriasis iscall guttate apparently is not that common my doc wants me to start embrel and i am a little scared because it has alot of side effects but she told me it will help me move again i think alot of my pain is the arthritis and fybro is bad but we will see ifthe embrel worksmy hubby said i should give it a tryi am on tramadol but it does nothing for me i have 5 kids so i can't sit around and watch them i am a very active person and when it gets to bad i get depressed which you know makes itworse let me know how itworks out for you goodluck

merfy5
Regular Member


Date Joined Jul 2008
Total Posts : 58
   Posted 2/26/2009 11:27 AM (GMT -7)   
i also wanted to share that my dermy is putting me on a shot 1 aweek for the arthrits but i can't remeber what she said it was called i will let you know i think she said the embrel will help with the soriatic arthritis i will keep you in mind when i find out take care

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/27/2009 7:20 AM (GMT -7)   
OK.. so I went to the Dr yesterday and we discussed Psoriatic Arthritis.  He dosen't think I have it but told me the minute I start showing signs of it to get back there right away.  He said that my joints didn't appear to be red or swollen.  But my question is.. why do they hurt so much?!  I don't by any means want PsA so please don't misunderstand what I'm saying.  I guess I just wanted some kind of an answer.. maybe I was hoping that that's what my problem is and NOT FMS.  But no.. it Fibro.  Dang it all. 
I also don't think that psoriasis has any connection.  I was thinking more folks would have it but it doesn't seem to be a common link.  Oh well, it was worth a try.
Thanks for all of you help and input.
Hugs,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


moekelly24
Regular Member


Date Joined Jul 2008
Total Posts : 35
   Posted 3/16/2009 7:04 AM (GMT -7)   

hey,

 

I just found this topic.. I have fibro and PA  I didnt tell rheumy that I had psoriasis,, didnt think it mattered for him and didnt know about the PA.  He looked at my finger nails, saw the pitting and figured it out and dx me with the PA..  I am fairly new to it and finding things are popping up, so trying to figure out what is connected to what and what to expect.


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/16/2009 12:01 PM (GMT -7)   
Hey Moe!!
 
I don't know too much about it, I did some google searches on it.  I didn't show any symptoms but the doc. wants to keep an eye on it.
 
You might want to check out the Arthritis Forum, too.  I remember a couple of members over there had some great advice.  I posted a similar thread over there.
 
Sorry you have PA, sounds like its very much like Fibro.  I'm not sure if you hang around in this forum.  Either way, feel free to stick around.  The folks here are really nice!!  And really get it when it comes to chronic pain and fatigue.
 
Take care and hope you're having a lovely Spring day!!!
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Realest
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/16/2009 11:02 PM (GMT -7)   
Hey
There definitely is a connection I can remember the first visit I had with my rheumy and she asked me if I had any psoriasis, any dry skin in my eyebrows, or in my ears, and I gave her this puzzled look like how the heck do you know I have that ? I was there being tested for arthritis, but after lots of blood work, cortisone injections and MRI, I was diagnosed with Fibro.

Take Care
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