Please welcome Baloo!

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Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/24/2009 11:42 PM (GMT -7)   
I found Baloo's first post in another thread so I copied it here so you all could meet the newest member of our fibro family... Meet Baloo!

Chutzie
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I am new to this site but not to fibro. my daughter is 15 and going thru alot of the things that have been mentioned on this page. I have taken her to the doctors because she keeps fainting and pain. The tell me she is fine and stop putting my disability on her. I am so angry about that, my doctor has told me i am an inspiration to her and her office living with this fibro and chronic pain. I never would want this on my daughter at all. Like many of you as a mother it is very hard to see your child go thru pain. Tomorrow is another appt. and with some of these comments it has given me a new way to speak to her doctor. Baloo
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Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
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(='.'=)
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fireandice93
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 2/25/2009 2:50 AM (GMT -7)   
I know EXACTLY what this person is going through!  I am experiencing the same thing with my 15 y.o. son.  I am so frustrated and upset right now that I can't even find the words.  On top of knowing how much pain he is in, I am dealing with the guilt that I am in so much pain and having so many physical problems myself that I don't feel like I am giving 100% to advocating for him.  I am trying my best to fight for him but I am so exhausted... sometimes I feel like the worst mom in the world because I don't have the fight in me and sometimes I feel like a mother tiger, willing to rip anyone apart who gets in the way of me helping my baby.  But I often wonder if... 1) he feels his pain is taking a back seat to mine, and 2) he would get better medical attention if I didn't have something that none of the doctors around here take seriously.  I am so confused!!!!   They would be so much better off with a different mom.  That is the only thing I'm sure of right now.

Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 2/25/2009 5:32 AM (GMT -7)   
Thankyou for welcoming me chutzie. I am replying to fireandice. I know its hard walking thru the obsticals that are there, but know that you are a gift and so is your son. Perservance and Courage is what I am finding that comes from walking thru Fibromyalgia. I am sure your son would not want another mom. Your his. So please know even though there are days it hurts to even look at a spoon thinking you have to pick it up, there also are days you do pick it up. Even though it hurts to watch my daughter go thru this, I know that if she does have fibro we can walk it together. Today I can hold my head up and I know there is days I can't. That is why I am so thankful for this site. Blessings everyone.

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/25/2009 5:58 AM (GMT -7)   
Welcome Baloo and Fireandice!!! You've come to a great place to get support and share your feelings.
First, please don't be too hard on yourself, I'm sure you're an awesome parent, if you weren't you wouldn't be feeling what your feeling right now and you wouldn't have listened to your kids and be working so hard to help them. Second, having Fibro make everything a little more challenging. So, be kind to youself and your kids, go slow and try to get some rest for both of your sakes.
Its heartbreaking to watch your child suffer and knowing what's about to be in their future, if they have Fibro, only makes it worse. But as Baloo said.. you can "walk together" and support each other.
My sister and I both have Fibro and we support each other and learn from each other .. we have a built in support group. I'm glad someone that close to me understands my pain and fog, but I wish she didn't have to go through it.
Warm welcoming hugs,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 2/25/2009 6:20 AM (GMT -7)   
Hi Baloo and Fireandice and welcome. I'm sorry your both going through this with your children but don't blame yourselves. I'm sure your both being the best moms you can be. I get very upset with fibro too when I can't be there for my loved ones the way I think I should be but none of us asked for this DD.
 
We do have some teens on the forum if your children would like to come on and talk to them. Read the fibro 101 thread, second on first page, it contains lots of great info.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 2/25/2009 7:58 AM (GMT -7)   

Hi Baloo/fireandice and Welcome-

Sounds like both of you are "great" moms- and are doing the best you can under the circumstances. I know how hard it is to watch your child go through physical or mental/emotional pain. My 17 yr. old ended up with anxiety over the winter and we would have numerous, numerous talks in the eve. as that is when it got worse for him. He was having all these impending doom thoughts, would be shaking and as white as a ghost. He also could not get to sleep at night and it started to affect his work at school because he was so tired. I let some time pass to see if it got better or worse and it got worse.

Into the Dr. we went and she started him on Zoloft and it has been like night and day. The anxiety symptoms are gone now and we even suggested he see a counselor but he says he doesn't even think those thoughts anymore. 

Baloo- You know what is best for your daughter so keep hanging in there with her no matter what kind of response she gives you. Love those teenagers!

fireandice- I hope you can find a Dr. that is knowledgable and believes in fibro because it makes a world of difference.

Nice to meet both of you!

GamJill

 

 

 

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 2/25/2009 8:15 AM (GMT -7)   
You've gotten some good advice but I did want to pop in and welcome you both!  It's a tough situation you are dealing with...especially when it is affecting your children.  But we will help you along and our members have good ideas to help your kids. 
 
I'm really glad you found us and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
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Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 2/25/2009 1:44 PM (GMT -7)   
Hello Baloo & Fireandice, I may have already welcomed you both but I just want to make sure so welcome.  This is a great place to come for the advice you are seeking.  As you can see by all the good advice you have received.  Please come back often.  Learn about this DD and come to terms with it.  Pacing yourselves is key to how you will feel not only today but also tomorrow.  I agree with Patti, you must be good mothers because you wouldn't care otherwise.  So, good for you.  Quality time doesn't have to be hard & your house doesn't have to be clean & company ready.  Sit down & talk or play a board game or watch a movie together with a bowl of popcorn.  Read a book together, cook dinner together when you both have the energy.  Take life easy & simplify it.  Just be there for them & they will remember all you have done for them when they grow up.  You will be very, very close.  Many hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 2/25/2009 2:30 PM (GMT -7)   
Hello Baloo and fireandice
Welcome, I also have a 15 year old son and a 13 year old daughter I have gone through the feeling of maybe they would be better off with out me
then I have the know one can raise my kids good enough for me feelings, Neither of my children have fibro but my son does have IBS and it is painful to watch him go through this just weekend he went to spend the night at the neighbors and 45 minutes later he was home sick and in the potty all night.
I hope that you find out what is wrong and that you can get some relief for your daughter and son, We went through alot to get a diagnosis for my son but be patient and if you can find a dr that is involved with a childrens hospital I would go to them.
LeeAnn

Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 2/25/2009 2:37 PM (GMT -7)   
Hi, thankyou for your encouragement. Well, the appt was the last of a string of findings, and today my daughter opened up to her physician and she admitted to being depressed. After she talked openly with her doctor We all realized she does need to go see someone and talk things out. They want to put her on antidepressant. To be truthful a well of tears came out when I heard all that was going on with her. She's been tested for thyroid, fibro and her heart. She needs my love and support and I will keep my head up, we both have our hope in God, and know this is an obstical we can get through. But for the moment between all of you my heart is breaking. Thanks everyone for your support.

fireandice93
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 2/25/2009 4:08 PM (GMT -7)   

I want to thank everyone for their support and encouragement.  Baloo, thank you for your words of kindness.  I am praying for you and your daughter.  I can't seem to hold a thought today so I can't write much but I wanted to acknowledge everyones kindness and let you know that my prayers are with you all.  I am so lucky that I found you guys smilewinkgrin .  I'll try to check in later.  I'm having alot of trouble with weakness the last couple of days ( a new symptom thats very scarey for me).   Thanks for letting me vent yesterday.

 

HUGS,  Michelle 


Rochelle Paul
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 5:09 PM (GMT -7)   
Hi fireandice, Thankyou... The one thing i absolutely hate the most with fibro is the weakness. I can walk and cry through the pain, but when you can barely walk because you are so weak is tough. Even trying to sit up or lay in bed I still feel weak. When I get like that i just have to accept it and rest, but i do try to at least walk in my house and sit up even if its for 5 mins at a time. It will pass eventually, but man my hearts out to you. hugs back.. baloo..

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/25/2009 7:52 PM (GMT -7)   
Nice to meet you Baloo and Fireandice!
The folks here are great, and you'll get lots of useful info for your kids
Do a google search on Fibro and look for a group that meets in your Area, and attend a
meeting to learn more on fibro, a moist heating pad is always nice too...
Good Luck to you both...
Lots and lots of soft HUGZ>>>>.........
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

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Rochelle Paul
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 8:46 PM (GMT -7)   

Hello Baloo and fireandice.

Im a 15 year old daughter of a Firbro mom, and I can honestly say if it werent for the pain that she goes through everyday we probably wouldnt have as strong of a connection as we do. I look up to her, whether or not she realizes it, and she certainly worries for me all the time as well as being a good mom for me.

I look up to her for being so strong with her pain. I know the pain i go through isnt half as much as what she goes through. It gives me determination to get through the struggles im in. I have also realized, people who go through difficult times (lives) are more compassionate, beautiful, respectful people. Having one of those amazing figures in my life has shown me to be patient, compassionate, respectful, polite, not quick to judge, and to take care of people. My mom does all she can to get through the day trying not to grit her teeth in front of her family. I love her beyond words and I think i speak for all of your families when I say your our hero.

Your all examples whether or not you can get out of bed in the morning, or run a marthon. Really, stop worrying about being a terrible parent nono and focus on loving your painful life, and your stubborn families. Really, its okay :))


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 2/27/2009 7:21 AM (GMT -7)   

Hi Rochelle and thank-you for your wonderful posts to all the fibro moms out there when you are dealing with so many things yourself! I hope many read them and realize what a good job they are doing! You couldn't be a better example!

Hope the weakness starts to let up for you soon!

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


griffin
Regular Member


Date Joined Jan 2009
Total Posts : 56
   Posted 2/27/2009 7:53 AM (GMT -7)   
welcome and hello,
so sorry to hear of a child going through this at such a young age.and i cant beleive what some of this doctors say to us. what cause they spend alot of money going to school it gives them a right to speak to us ant=y way they want to. i think if anything we should be the ones to tell them what is going on or am i just all messed up in the head some dr have said yes to that but i say no i am just fine just feed up with what is said.
i would go to a different dr if i was you i refuse to go see anyone that is rude to me and says things to upset me, and you daughter. good luck and keep the posts coming
I smile through fibro


dolphinfire
Regular Member


Date Joined Jan 2009
Total Posts : 120
   Posted 2/27/2009 8:53 AM (GMT -7)   
Welcome do both new members, new here too. I know you will love it here. Sorry to hear about your children. I hope things get better for both of you.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram,amitriptyline, and peroxicam, and vicodin.


fireandice93
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 2/27/2009 6:33 PM (GMT -7)   

Hi Rochelle,

Thank you so much for your words of encouragement to us fibro moms.  You must have one special mom and she is so lucky to have you.  I am so sorry that you go through so much pain and weakness at a time in your life when all you should be thinking about is shopping and going to the mall.  You are a special, special person and will be blessed for your kind heart.

 

(((((((special hugs)))))))

Michelle

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