Hey there Sunshine!!
Lee Ann really hit the nail on the head. I can't agree with her more.
Yes, it stinks to try to go have some fun, like everyone else, and have fibro. Learning to pace ourselves is half the battle and it take FOREVER to learn how to handle it. Somedays we can do more than others and its really confusing to figure it all out.
Sorry you're going through a rough patch. I hope it gets better and you can figure out your fibro juggling routine.
I know having this is not easy- but I'm glad you got out and had some fun! I know the feeling of working and sleeping, and that is all you do. That is all I did when I worked fulltime and it becomes such a rut! I would think, is this all there is to life??? Yes, we may have to pay for it with having fibro but I am willing to do that because I want to live life! (I am not talking about all the time- because who wants extra pain) but we need to shake things up once in awhile.
Like Marlee said, in time, they may find better meds and even a cure- so gentle pats on the back for all you do!
Maybe a nap when you get home from work?
Hopefully today finds you doing well. I have to agree with Sherrine. As much as it feels like you might be different for not drinking the alcohol when you go out, it sure makes you feel better. And, if not eating gluten helps, then don't eat the gluten. I only say that because I know it is hard. I am 24 and experienced the whole "college life" and couldn't figure out why I didn't like to drink. Well, I never felt good...and not cause I got hammered, because I had fibro (didn't know it then). It turns out, by the time i was 21, I was the official DD. I learned to not let it bother me because I knew my friends had a safe ride home and I stuck to the free water at the bar. I also felt much better than they did the next day. ;) Granted, I didn't have the stories they did, but I could tell them the parts they forgot...well, the ones I didn't forget from fog. ;) Anyway, it doesn't have to be a death sentence. And if you feel you won't fit in, you will. At some point, your life will be everything you want it to be and you will be surrounded by those that understand you (and all that comes with it) and you won't feel the need to worry about doing something because it's cool. Not that that is why you are doing this, but it can be easier to go with the flow knowing you are going to be in pain the next day than to stand up and be different.
As far as the gluten thing, I just recently went gluten free and it was hard. However, i have noticed a TREMENDOUS difference in how I feel and I instantly know if i have contaminated myself. Looking back, I think I was robbing myself of the mere opportunity to hang out with others because i was ingesting toxins. Perhaps look at things from a different perspective...if you really want to hang out or go out with these people, do the very best that you can to put yourself in a condition to go out with them. If you are eating gluten and staying up late or missing meds, you aren't really helping yourself. I hope that you understand what I am saying. I am not saying that what you are doing is bad, but, I know you can turn your life around and feel better. and at 20, you certainly deserve it. I wish I knew I had fibro at 20, would have made things a TON better.
Also, now that i have been gluten free all of my friends and family are on board. i have had some wonderful dining out experiences lately as they all cater to my needs. I promise you, it is not easy at first, but you will get the hang of it. If you need help with it, let me know. I am more than willing to tell you what brands I use or what brands I like or where to start. I also sent my intimate friends and family the spoon theory story and that has really helped them to understand my energy level and how it differs some days. Also, if i know i am doing an all day shopping trip with the bestie, the night before i take it easy and get tons of rest (and wear comfy shoes the next day!!). I don't think you have to sacrifice being an amazing, energetic young woman for this "disease." Trust me, i thought so. But, i made a few conscious decisions and they really paid off.
I hope you are having an amazing hump day! If you have any questions or want any advice, let me know!