New - not sure if I have fybro or not

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alim0nkey
Regular Member


Date Joined Feb 2009
Total Posts : 58
   Posted 2/28/2009 10:52 AM (GMT -7)   
Hello! I have been feeling unwell for some time now, and have an appointment to see a rheumatologist next week. For about the last 3 months I can barely get out of bed, and when I wake up I feel like I've never been to sleep! I seem to have a permanent headache, but headache tablets just don't shift it.

I've been feeling ill since last February when I had a shingles type rash and fever. However swabs and blood tests didn't find any sign of the shingles virus. Then in July I woke up one morning with numb fingers. At the time I didn't really have many other symptoms, but I was referred to outpatients at hospital anyway and they did some blood tests which were positive for ANA. I've been waiting for a rheumatology appointment since, and in this time my hands have got worse and I now have pins and needles in my hands, arms, left shoulder and neck and in my feet, I've had shin splint type pains in my legs. I have chronic fatigue, some afternoons I can barely keep awake, I can't think I can't concentrate, my head is numb.

My mum has fibro and thinks I might have it too. But I'm not sure with the ANA positive reading. Guess I'll have to wait and see what my rheumatologist thinks. I know I can't go on like this I feel terrible - like I've got flue all the time.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 2/28/2009 11:59 AM (GMT -7)   
Hi, and welcome!  Only your doctor can diagnose what you have but we can give you some ideas.  You see, the symptoms of fibromyalgia also mimic other illnesses.  Your rheumatologist will probably run some tests to rule out those other illnesses first before the diagnosis will be given.
 
Check out the Fibro 101 thread...the second thread on the forum.  You will find links to good info about fibromyalgia, including a list of symptoms.  There is also a link called What Else Could It Be.  You will get a lot of information on this thread.
 
Let us know how your doctor's appointment goes and what they have to say.  I'm glad you found us and I hope to hear from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 2/28/2009 12:24 PM (GMT -7)   

Welcome to the forum Alim!!

As Sherrine said only you doctor can really tell for sure.  I truly hope you don't have FMS.  But if you do you've found a great site to learn and get support from.

I have alot of problems with my hands and feet.  Fatigue is always lurking around and occassionally gets the best of me. 

It took me about 10 years to finally get my diagnosis, partly because I preferred being in denial and because I didn't think there was a doctor out there that would support my findings.  Since I've gotten on my meds, I'm doing better.  I hope you can get proper med soon too.

Keep in touch and let us know how you're doing.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 2/28/2009 1:16 PM (GMT -7)   
Hi, Welcome
Like everyone else has said only your Dr, can give you a diagnosis. but I have learned from everyone here that this is a great place to get support. Hope fully you will get a quick diagnosis. i will be thinking about you and sending positive thoughts to you,
LeeAnn

alim0nkey
Regular Member


Date Joined Feb 2009
Total Posts : 58
   Posted 2/28/2009 2:30 PM (GMT -7)   
Thanks everyone for the warm welcome. I keep reading up on symptoms etc and I'm convinced my pattern fits more with lupus, but my mum thinks I have fibro. I have terrible pins and needles down the back of my neck tonight and an intense throbbing headache that hurts when I move my head. I just don't know what's wrong with me anymore.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 2/28/2009 2:36 PM (GMT -7)   
You'll find out soon.  I'm glad you are seeing a rheumatologist.  But, even if you do think you have Lupus, you can still post here.  We have a guy that hangs out on this board that doesn't have fibro but has lupus.
 
But, we do get the pins and needles and the headache, too.  I hope your Mom is correct and she very well could be.  Many have other family members that have fibro.  I have a cousin that has it so there may be something in the genes, too. 
 
Please let us know, though.  If it's fibro we can help you and we do have fun on this board.  Hope to hear from you some more.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 2/28/2009 3:12 PM (GMT -7)   
Hi and welcome,

I am so sorry you are so challenged right now. Once you get a good diagnosis you will at least know what you are dealing with. For me that was the toughest part of this journey , not knowing. And you know the mind is a powerful thing and mine had me going crazy.

Try to calm yourself as much as you can and come talk to us anytime. I have learned such great stuff here. These are my friends.

Patsie

alim0nkey
Regular Member


Date Joined Feb 2009
Total Posts : 58
   Posted 3/1/2009 2:16 AM (GMT -7)   
I think the hardest thing for me at the moment is I'm very depressed because I don't know what's wrong with me and I can't do anything about it. I just feel lousy so much of the time. I keep having flare ups - my face and neck go bright red. My health is bad, but what's making it worse is not coping with it and being depressed.

I'm also not coping with work and arguing with my boss all the time because he thinks he's being supportive but I think he's being patronising. Before christmas I was allowed to work from home a couple of times a month and it was fantastic - I got so much done, but someone else in our department abused the privilege so now none of us can work from home. I'm going to see occupational health tomorrow to see if I can get them to reinstate it for me - it was the one thing keeping me sane and on top of things.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/1/2009 9:00 AM (GMT -7)   
Hi and welcome. It is hard when you know something is wrong with you but don't know what so I hope you get answers soon.
I get a lot of headaches, it is unusual for me not to have a headache to some degree and that alone can get you down.
 
Let us know what the rheumy says.
 
luv and hugs
Marlee 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/1/2009 10:58 AM (GMT -7)   
Welcome to the forum.  Being without a diagnosis can be very scary & depressing.  I hope the Rheumatologist can shed some light on your problems.  As others have said you will be dx'd by your Rheumy but you could definitely have Fibro.  You may also have Lupus or some other Auto Immune disease.  You have a good start in getting your answers, I hope this Rheumy is a good one.  You have found this forum as well, you will find lots of support & help here.  Hang on & you will get some answers.  I know how challenging it can be to try to work & be so tired you can't even see straight.  Once you know what you are dealing with life should get better.  Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


alim0nkey
Regular Member


Date Joined Feb 2009
Total Posts : 58
   Posted 3/2/2009 5:05 AM (GMT -7)   
Just got back from occupational health - they were incredibly helpful and supportive, really nice lady. It really helped to talk to someone who understood how I felt - she totally appreciated that I'm worried and emotional as I know there's something wrong with me but don't know what. It's really helping talking to all you lot too, thank you so much for all your comments and understanding. Reading what some of you are coping with, it must be so difficult.

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 3/2/2009 9:12 AM (GMT -7)   

Hi Alim and Welcome-

That waiting period before you get a diagnoses is scary. My body was literally falling apart when my fibro hit. It sounds like you on top of things and I hope that this will not be too long for you to get things figured out.

Keep us posted-

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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