doc appointment

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Marie76
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/4/2009 4:29 PM (GMT -7)   
Well I had a heart to heart with my doctor. I asked him what he ruled out and what was still on the table. He basically said he ruled out everything (lupus, ms, diabetes, thyroid etc). He said he was leaning towards fibro/cfs but he's not waving the white flag yet. I don't know why he won't be definitive and all the while not making me do more tests (i just thought of that or i would have asked him).

He told me to keep on the effexor 75mg and put me on amitriptyline 25mg for sleep and to help with aches and pains. I'm going to read up on it.

I got back in 6 weeks but in all honesty, i think i need to learn to live with this now and see what i can do to ease symptoms and what aggravates them.

What do you guys think?

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 3/4/2009 4:54 PM (GMT -7)   
Hi Marie,

It couldn't hurt anything. There are so many different things that you can do to combat the symptoms of fibromyalgia. Like walking as much as you can tolerate, even if it is just five minutes a day, it still helps. Stretching is a very good thing, just don't over do it. Don't stretch until it hurts, just stretch as much as you can. Keeping good posture helps, as a lot of pain can be in your neck and shoulders, you tend to give in to that and your posture goes.

Also read fibro101, there are many coping skills to be learned on there. Have you read about the malic acid/magnesium supplements? Take some time and read about them. It might help you. Also vitamin D3 helps a lot. Cut down on your caffiene, any type of stimulant can make fibromyalgia worse in the line of pain that is. Plus it can make you edgy.

There are so many different things that you can do to help yourself live with fibromyalgia. Just keep reading and ask questions. There is a wealth of information on here.

I hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marie76
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/4/2009 7:57 PM (GMT -7)   
I haven't had a chance yet to read. I've been too busy trying to catch up on stuff that should have been done last week. I'm going to. I was taking magnesium but it had calcium in it and it really constipated me really bad. I'm going to just buy straight magnesium and new vitamins. Mine are old.

I really need to cut down on the coke, it's my only vice and I can't seem to give it up. I'm trying though.

You guys here are wonderful and I feel better knowing there's a place I can come and talk to people who know exactly what I'm talking about : )

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/5/2009 12:43 AM (GMT -7)   
Marie, it sounds like your Dr is being thorough & it does take time to rule out all the other things it could be.  It like "hurry up & wait".  See how these meds work for you & if they don't then talk to him again in 6 weeks.  There are alot of things you can do to help yourself, learning to pace yourself will help alot.  Have you read the "Spoon Theory"?  It is under the Fibro 101 thread too.  It will help you understand your energy levels & why you need to pace yourself.  When I first found out I had Fibro, I did alot of reading & came across a site that taught people with Fibro to pace themselves.  They even had classes you could take, I had planned to take it but never got around to it because the session was full & I had to wait until the next one.  They are 6-8 weeks long.  I wish I could remember what that site was but if you google, Fibro & pacing, you should find it. 
 
Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Marie76
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/5/2009 1:08 PM (GMT -7)   
Yeah I know he's being thorough but I've been seeing him since August for this. I'm ready!

I'll look up those classes. I try to pace myself because otherwise I'll be useless and dead for days after.

I'm going to read tonight : )
Fibro/CFS


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/5/2009 4:26 PM (GMT -7)   

Hey Marie!!

Well I'm glad you finally had your doctor's appt.  Sorry you didn't get your dx (diagnosis) yet.  I know we've posted to eachother before, but I can't remember (fibro fog) if the doctor ruled out Lyme Disease?!?  I've had ALOT of experience with Lyme and I always remind people that are getting dxd to be sure their doctor tests for it, because Lyme and Fibro are very similar to one another.  The difference is, Lyme can be treated with antibiotics and Fibro needs to be treated differently. 

I take amitriptyline too, 50mgs (same thing as Elevil).  It has really helped me with my sleep issues and I think its helping with pain.  It takes atleast a week, if not more, to kick in.  So don't expect a miracle overnight.  Hopefully it will work for you as well as it has for me.  Another thing is ... and this is the bad news, even when your taking meds you can still have a flare, they will come and go.  But I do think the meds will made it better, atleast for me.

We all suffer differently with this horrible syndrome, some folks have more pain than others and some folks have more cognitive problems than others and the list goes on and on.  Some people have other problems aside from Fibro ..so they have different issues to contend with on top of the fibro nightmare. 

Keep reading and learning as much as you can.  There's so much to learn on Fibro 101 it will keep you busy for a while.  I also recommend doing any web searches you can to learn other bits and peices.

Hope you feel better soon!!

Warm hugs, 

 


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marie76
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/5/2009 4:29 PM (GMT -7)   
Thank you so much! I actually slept really good but was in a haze this morning.

He did a blood test, i think lymes would have shown something (higher wbc? i can't remember) but all my labs were normal.

I'm ok with it, i'm just going to consider it a dx until he tells me otherwise and read and learn from you guys. I know there are people who are hurting a lot worse than I am and I'm going to learn to pace myself and to not overdo it.

*hug*
Fibro/CFS


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/5/2009 4:42 PM (GMT -7)   

Good Girl.. LOL.. I've had FMS for atleast F O R E V E R.. actually probably most of my adult life.  It took me forever to get a confirmed dx - mostly because I was in total denial and I didn't want some stupid disease that would last for the rest of my life (go figure.. that's normal)  Anyway, its taken me about 8 years to learn to pace myself and I still have to remind myself everyday that I just can't do things the way "normal people" can, but I never give up atleast trying.  It will take time but you'll learn your limits.

Hope you get a good nights sleep tonight!!

Hugs till later..


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 3/5/2009 6:43 PM (GMT -7)   
Did I read you need to give up the Coke. Ya I have my own personel story about that. Back in 2000 I could'nt get out of bed at all. My legs were like rubber. My mom sent me to a holistic doctor in Provo Utah, and he ran certain tests. He was the only one that did this in the US that I know of. He works with Cancer patients thats how my mom beat cancer. Well, the test showed I had so much acid in my muscles from drinking Coke and pepsi that I couldn't move. I gave up soda and just now have a soda once in awhile. I can walk now. I was drinking alot of soda. At least 2 to 4 cans a day. I know its hard, but it takes over 20 glasses of water to replace one soda. So dehydration.. Well, think about it, It made a difference for me.

Marie76
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/5/2009 6:50 PM (GMT -7)   
he told me to cut down. I'm not dehydrated, he checked that and my sodium level is fine too. I do need to give it up though. Unfortunately I hate water but I'm going to try to find something. I don't like flavored water. I do like apple juice but I can't drink too much of that. I'll figure it out and I'm glad they found what was causing your issues!
Fibro/CFS

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