Fibromyalgia help - Doctor's that don't understand

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Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 3/5/2009 4:37 PM (GMT -7)   
I have a doc. that either doesn't understand Fibro. or he just doesn't want to handle it. I also have Diabetis as well as a couple other issues. Has anyone run into that issue about your or a doc. that acts like he doesn't know what he's doing? I have also just had surgery for my 3 hernias and my mind seems to either go blank to gets a little foggy or confused at times. Oh, I had my surgery on the 17th of Feb. GOD my fingertips hurt right now and I've come down/up with some dizziness and feeling faint. I did call my doctor's office and left a message. I wish I could find a new doctor, but I am at a loss because most of the doc's in WA state don't take my insurance.
Any advise?
 
Hara shakehead

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40571
   Posted 3/5/2009 4:48 PM (GMT -7)   
Hi Hara,

Welcome to the fibromyalgia forum. You have come to a good and safe place where everybody is so understanding. I am happy that you have joined us.

Have you ever asked your doctor what he thinks about fibromyalgia? Does he believe in it? If not, I think that you should be checking around for another doctor. Not all believe in fibromyalgia and going to one who doesn't is wasting your time and money. My doctor doesn't take my insurance, but I only see him once every three months. I get my prescriptions monthly though. He is very kind and compassionate and I wouldn't want to leave him. He makes sure to ask me questions about it and keeps on top of things.

Make a few calls and find another doctor who believes and takes your insurance. It is worth the effort to find somebody who understands.

In the meantime you might want to check out a thread called fibro101. There is a wealth of information on there. I am sure that you will find it interesting. Also there are many recent and older posts that can probably answer some of your questions.

I hope that your doctor takes more interest in your issues or that you find one who does. You could have him refer you to a rheumy also. Somebody who has more knowledge than himself about fibro.

Best wishes to you,
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/5/2009 4:49 PM (GMT -7)   

Hi Hara,

Welcome to the forum.  :-)

Have you actually been diagnosed with Fibro??  Or do you suspect that you have it??  I don't know exactly what to tell you when it comes to finding a doctor that takes your insurance, but I would check with your local hospital and your insurance provider for a list that might have another doc. that you could see.

Be sure to check out Fibro 101 .. the second thread on the forum.  Its jam packed with lots of usful information that can help you.   Also look for a thread that was started by Sherrine called Welcome Newbies.  She has lots of advice on there.

I hope you can find some answers.  I know you'll find support on this forum.  Everyone here has helped me a lot and I consider them as family.  We really care about each other here and are always willing to help as much as we can.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 3/5/2009 4:53 PM (GMT -7)   
My doc. is sending me to a rheumotologist, but that's way in April. I'm just trying to deal with alot of emotions from surgery and the fact that he says I have Sleep Apnea (sp) and wants me now to do a C-Pap study. I'm sorry but I can only take so much news at a time..frustrated and emotional whacked out.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 3/5/2009 4:56 PM (GMT -7)   
Yes, I have been diagnosed with Fibro.

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/5/2009 5:10 PM (GMT -7)   

Aww.. Hara, I know what it's like to get a bunch of bad news all at once.  You have my total understanding and support with that.

As for the sleep study and CPAP.  My husband had it done about 2 years ago and it's made a huge difference in his quality of life (not to mention mine.. at least I don't have to worry about him all night long, like I used to)  After his study we found out that he was only breathing half of the night.  He never got to REM sleep and he was literally choaking at least 1/4 of the night. His snoring was AWFUL, it was like trying to sleep on a runway at JFK airport!!  LOL.. No wonder nobody was getting any sleep at our house!!

I'm REALLY happy that your doctor is sending you to a rheumy!!!  That's GREAT news.  I didn't know that in your earlier post.  Rheumetologists have a much better handle on FMS than alot of doctors.  If my doc. wasn't an accupunturist as well as a GP, I would have insisted on being sent to a rheumy.  But my doc. is great and I'm really happy with him.  I hope you'll get more answers from the rheumy.  A lot of our members see them and are very happy with them.

Welp, I'd better take a break, take care and keep posting.  I'm sure some other members will be along sometime soon and welcome you, too.

Take care and have a good night,

 


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 3/5/2009 5:35 PM (GMT -7)   
I've looked alot around the internet on Fibro. I think I know more than my doc does at this point and he's an internest...LOl I do however get to REM sleep but doc couldn't find the report so I'm going tomorrow to the place I did the sleep study at and get a report from them.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40571
   Posted 3/5/2009 5:56 PM (GMT -7)   
Hi again Hara,

It really sounds like you are on top of things, but I think that you have a little bit of anxiety going on. Try to relax and take some deep breaths. Breathe in through the nose and out through the mouth. It is called smelling the roses and blowing out the candles. Practice that when you start to feel overwhelmed. It will really help. And keep posting as we are here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 3/6/2009 3:48 AM (GMT -7)   
I got about 4 1/2 hours sleep when I came home. Plus I had a very pleasant, weird, and overall strange dream. I just took the wonderful parts from the dream. (smiles)
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