Hi I'm Buddasmom...

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New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 3/8/2009 2:23 PM (GMT -6)   
This is my first time posting here. I think I have had fibro for most of my life but was only dx about 12 years ago. It can be a very lonely way of life so it's good to find a group like this. When I got my first computer about 9 yrs ago I joined a fibro group and when I read the messages I just sat and cried. It was such a relief to know that there really is someone else out there that understands what I go through! I was soooo sick and tired of being told I am just out of shape and/or need to be more active. I always felt like certain people in my life thought I was just lazy and my problems would all be solved If I would just do something. Grrrrrr!

I also have several non fibro problems. Pulmonary hypertension, arthritis in several places, chronic bursitis and tendonitis in both shoulders, gerd, and I could go on if my memory and concentration was working better right now. lol

When this hit me hard I was probably in the best shape I had ever been in physically. I was addicted to exersize and did so several times daily. Not a lot of arobic stuff but lots of weights and stationary stuff. I have had problems with my breathing for many years so arobics never were in the cards for me. Even so, I looked good, and felt good.

Then, all of the sudden I started to hurt in odd places, had trouble sleeping, and no energy at all. So when someone suggests to me that if I would just be more active or I needed 'conditioning' I wanted to scream.

I went through many tests and never any answers until someone decided I had fibro.Some of the drs I saw didn't seem to believe in it, and some did. I couldn't work and after much hassle and finally getting an attorney and going before a judge I was given ssd. I was prescribed many meds which I took for several years. They caused me to gain over 50lbs. It took me a while to figure out that the meds were causing the weight gain. I took amytriptilyne for help to sleep and was told it also helped with the pain. Well, it did help me sleep, with awful nightmares by the way, and it also gave me another side effect. I had a craving for sugar that you wouldn't believe. It took quite a while before I put the two together. I have decided that I don't want to take the pills any more. I quit it all except for once in a while when it gets real bad I will go back to the anti inflammatorys for a spell. For the most part I found meds did'nt help a lot after I had used them for a while anyway. Also at the same time the fibro hit I began menopause, and quit smoking which defineately did not help me. Now I take generic benadryl every night to help me sleep, ibuprofin for pain, a low dose asprin, nexium, hydrochlorathiazide, and a variety of vitamins every day.

I was put on a cholesterol med and after being on it for a few days I started to hurt twice as bad as normal so I quit taking them and went back to just my usual pain. That sounds strange doesn't it. lol My dr's get frustrated with me because I won't take a lot of meds. The weight gain during the time I was has been really hard on me and I dont' need to gain any more for sure. I have not been able to take it off either because I don't have the energy to be very active. I also admit that since I am so limited in what I can do, and I live alone with just my dog for company. I eat things I know i darn well shouldn't be eating. So even though I haven't gained any more since quitting the meds I seem to be stuck with the weight. The only exersize I really can do is in a pool and I don't live close enough to get to one regularly

Anyway, that's been a bit of my journey these last few years. At this point I have read a lot about fibro and have learned to live with it. I dont' like to dwell on it though. That said there are times, especially lately as the pain seems to be increasing rapidly this last year, that I need to express my frustration with being so incapacitated so I am happy to have run across this group as the one I found years ago is long gone.

Post Edited By Moderator (getting by) : 3/8/2009 1:50:08 PM (GMT-6)

New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 3/8/2009 2:29 PM (GMT -6)   
OOP's, for got to give this thread a title......thanks fibro

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40384
   Posted 3/8/2009 2:49 PM (GMT -6)   
Hi There, I gave your post a name, then I realized I spelled your name wrong so then I had to go back and change it. Well, I have yet to do that, and watch me forget or something, fibro fog...

I would like to welcome you to the fibromyalgia forum. And oh does your post sound so ever familiar. I was the same way as you. Physically active, mostly working on muscle tone and a lot of walking. I looked good and felt good. I just don't understand why it picks us. But it does.

We have a wonderful thread called fibro101. I think that you would enjoy looking over it. It has a wealth of information on it. And it will help you to feel not so alone. That is one wonderful thing about this forum. You know that you aren't the only one with all of these dreadful symptoms and you realize that you aren't crazy after all.

I hope that you stay with us. I think you will just love everybody here. I do.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 3/8/2009 3:59 PM (GMT -6)   
Hey there Mom and welcome to the fibromyalgia forum of Healing Well. We are so glad you joined us.

Boy do I know how I hate that phrase, "if you would just do a little more, get in shape". If I could, don't you think I would??

I have gained a lot of weight too over the past eight years as well. I have had this disease for almost thirty years, but have taken a dive during the past eight. I can't walk or stand very much these days so exercise is hard. But I've got my stationery bike and I'm not giving up.

about the cholersterol problem though. I am a retired nurse and understand about the residual muscle pain that some of those drugs can lend to an already hurting body. But have you tried the Tricor?? It is supposed to have less of a side effect that the other drugs present with. I am taking it for years and have had no side effects from it. I also take another one too but can't remember the name of it. See how this fibro fog affects me?? And I used to be a nurse- a registered nurse, and now I can't remember the name of a drug that I am taking. Ohhhhhhhhhhh I get so frustrated with myself. lol! Lescol that's the name of it. Whew!! I am redeemed!

Well you have to keep a sense of humor about yourself and not take anything too seriously you know??

We are here to support you and listen to you and hope you will be a support to all of us too. Glad you are here.

Gentle hugs,

Moderator Chronic Pain
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 3/8/2009 5:24 PM (GMT -6)   
Thanks Karen for adding a title for me! Yes, Linda, lol I fully understand fibro fog!! And thanks for the welcome too. I'm sure I will drop in often and both need, and try to give support. Some days ya just gotta whine to someone who understands and I see plenty of that here.

I haven't tried either one of those cholesterol med Linda. I am just so fed up with taking meds and when I told the dr that the last one was causing me severe muscle aches he as much as said no they aren't. I am on medicare, and medicaid and I go to a clinic where I see mostly residents. Sometimes I think I know more than they do and I certainly do know more about my own body than they do. Medical care is one of my biggest sources of frustration after the physical stuff.

I have looked over the 101 thread and see lots of links I will be exploring.

I have a question too for anyone who might like to answer. I try very hard not to concentrate on my pain and I find a result of that is I often cannot remember what has hurt me, or when. So when the dr asks me about it I feel like an idiot when I have to say, "I dont' remember". Is this common, or am I really an idiot? (Well, I know I'm really not. LOL)

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 3/8/2009 7:35 PM (GMT -6)   
very Common. I know it is yet another thing to do every day but I now keep what I call my "fibro journal" I write everything down in it. If my right foot was twitching, If my wrists hurt and so on. I also use it for my food, schedule and all that. It seemed to be a pain at first but now if a doc asks me I can go back and say "this and this " happened on such and such a day. The fibro fog is so debilitating. I hope you find friendly and helpful people here and good luck.
p.s. fibro people tend to be more sensitive to meds. So you are normal on that at least right? lol

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 3/9/2009 7:09 AM (GMT -6)   
Welcome Buddasmom,

I can so relate to the "being fit" issue and fibro hitting. I was a major tennis player when this dreaded thing gripped me. I am trying so hard to get it back but now know I have to accept what it is. Now I will not give up but that is a different thing. I too gained the weight but not from meds. I do not take the meds and manage. I attribute my gain to the lack of aerobics and my unusual cravings I never had before.

Have you tried the magnesium/malic acid formula? It has really helped me along with vitamin D3 and many others. As for not concentrating on the pain you are very smart. It is so very important to not let the pain win. That may sound strange but remember it is the brain producing the pain. I truly find when I refuse to think about it and rather think about the emotional things happening my pain either reduces or even more often moves around!!!!

Hope to hear more from you.


Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/9/2009 8:20 AM (GMT -6)   

Hi there Buddasmom!!!

Welcome to the Forum!!!  You've landed on a great site!!  I don't know what would have happened to me if I hadn't found this Forum and I'm very proud and honored to be a part of this Fibro Family.

So, you were asking about keeping track of your symptoms, I'm a lot like Patsie and Ang.  I try not to dwell on them too much, unless of course it is too severe to ignore .. my bad back makes it very hard to get out of bed sometimes.. but somehow someway I do.  I keep a little journal on my symptoms, too.  I just started doing it more out of my own curiousity, I'm trying to figure out links that create my pain & fibro fog.  But my theory is when one is in extreme pain their brain gets a little foggy so to forget the pain. (hope that made some sense)

I've gain more weight than I would like and yes, I'm far less active then I was when I was feeling pretty good 20 years ago.  I hope when the weather changes I can get out and get some exercise, even if its only for 5 mins a day, its better than nothing.

I agree that this can be a very lonely disease.  That's one of the reasons that having a support group like this is so important.  I try to get out with friends a few times a week.  I gave up my job in Nov. so the lack of social interaction has been hard to accept.

I take some of the meds that you were sensitive to, yes I've gained weight on them but I know they are helping me with pain and sleep issues.  So, at least for now, they're helping.

I'm so glad you found us.  I look forward to hearing more from you & getting to know you.  This group gives so much support and they can be a ton of fun.  Join our Koffee Klates every morning, its a great way to get to know each other and every now and then we have virtual parties that, well, can get kinda routy!!!

Take care and warm welcoming hugs,

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/9/2009 9:44 AM (GMT -6)   
Hi Buddasmom and welcome to the family. So many of us have simular stories. I was all alone with this DD too til I found this forum, it has been a godsend. I still feel alone unless I'm on here cause no one can possibly understand this if they don't live with it.
As you have probably already read we talk about everything on here cause it all affects us. I've heard it all too, exercise and you will feel better, take that pill they advertise on TV and you will feel better and you need to get out and get involved in something that will make you feel better.
I do get sugar cravings from amitriptyline but have been lucky in not gaining a lot of weight but I do believe it helps with the pain. My body doesn't take well to many meds so I don't try anything that I don't have to take.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 3/9/2009 1:38 PM (GMT -6)   
Thanks to you all for such a warm welcome!! I have tried keeping a journal but...I forget to do it. My brain is on vacation about 90% of the time. I think that has a lot to do with never really getting quality sleep. It seems like my life these days is just one big circle. I'm darned if I do, and I'm darned if I don't.
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